Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I know many people suffer with dizziness, vertigo, etc...but this is very different and new for me, so I can't chalk it up to a typical "lyme and company" symptom.
I've been sick for 8 years. Less than a week ago I started suddenly getting dizzy spells. They mostly occur when I get up or lay down, last a few seconds, and everything sort of spins around or my head feels that way.
I have never experienced this before. They came on suddenly and they are happening several times a day. Sometimes they happen just while I am laying down.
Any ideas? Should I call my doctor? I'm just so sick of having to go to the doctor. I don't want another thing to go on.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Tracy, it's possible that some of the crystals in your inner ear have dislodged, causing vertigo.
I don't know if this is what you have, but it's the first thing that came to mind.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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I started this in 2003 and it was a few years just to walk without dizziness and light sensitivity. I'm much better now but at least I can function. I got lyme and co,s in 1992 just to give you an idea of the vast experience I've gained. I started 2 lyme support groups in CT. Have been to 3 well known LLMD's in CT./NY area.
Anyway get this test and get back to me ; I'd be interested in the results.
Al
My email adress here is no longer active here on lymenet because I moved out of state (CT)and have a new email address, so you can PM me if you wish.
Posts: 789 | From CT, | Registered: Jun 2006
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posted
Baroreceptors are in your inner ear and if your Lyme or co-infections are wreaking havoc with your ears, this can impact blood presssure. I agree with the tilt table test and the cortisol test, and would add to get your thyroid checked as well to make sure this is lyme sucking up all your hormones and making your life difficult.
Posts: 482 | From Oregon | Registered: Feb 2011
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Thank you for the feedback. I have had a tilt table test in the last year. It was okay. I do have dysautonomia and take medication for it and am on IVIG as well; both have helped with it tremendously and I don't have many symptoms anymore though this could be related.
I also realized our water filtering system was not working while I was having the bad dizzy spells but couldn't find where extra iron or sulphur would be related.
They let up a lot and are only slight now. My guess is probably what sixgoofy said; it may be stress/anxiety. My sister committed suicide on December 1st (my brother did the same not even a year and a half ago) and they did start after that.
I also wondered about inner ear. Either way it is better now, though not completely gone...mainly just some bed spins when I turn my head at times or first lay down.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh in re reading, yes my adrenals could be very screwed up.... I actually got very very sick after Christmas and totally crashed. In fact today was the first day I could really walk without any assistance.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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I just went to my LLMD recently and dizziness is my main symptom. He feels that it is my adrenals so we are working on that and I have seen some improvement.
He has me drinking celtic salt in water twice a day and it is helping. That may be something you could ask your LLMD about.
I'm so sorry for your losses.
Posts: 486 | From USA | Registered: Jan 2012
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Thanks so much. I have some Nutramedix Adrenal Support drops...I'll try to start taking them. I'm really bad with drops but I'll make a real effort!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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