posted
Hello! We are semi new to the Lyme scene. My daughter was orig diagnosed with Lyme 2 years ago when she developed the bullseye rash everywhere, and had the pos blood test.
The hospital up here said regardless of the bloodtest, if you show the rash you get 3 wks of antibiotics. She completed 3 wks of Ceftin (as shes alergic to Amox).
And we thought our troubles with Lyme was over. A month ago we had her in the ER for a severely swollen knee. We didnt know what she did to it, we just thought she twisted it or something (she's 4 and has the gracefulness of a 4 year old).
Immediatly the ER drs thought it was Lyme arthritis and we ended up being sent to Childrens Hospital of Pittsburgh via ambulance. She was admitted to Childrens and stayed overnight. Infectious diseases came in and they said its gotta be Lyme again, and she had 2 doses of ceftin while in the hospitals (IV), and sent home on 4 weeks of Ceftin.
Butttt.... She's a stubborn 4 year old, and it was awful trying to force gritty, thick, tuttifruity-mint antibiotics into her. So we were left with Doxy or IV therapy. We did 4 weeks of Doxy (had to hide it in her drinks up until the end where she was squirting the dose into her cup) with no issues really.
We did her 4 week post check up with infectious diseases, and I got a copy of her Western Blot test back..
I guess we are done with Infectious Diseases, but I'd like to find a local LLMD to see her. What does this look like to you?:
Does that look like chronic lyme to you? or that she was bit again and developed Lyme disease all over again (Like what her pedi is trying to convince me of...).
IDK.. I am tending not to believe the drs anymore..
[ 12-16-2012, 11:25 PM: Message edited by: Kailey ]
Posts: 5 | From Kittanning PA | Registered: Dec 2012
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Not sure how to read this -- is "NReactive" meaning "not reactive" and "nPositive" meaning "not positive" (in which case it would be negative and why wouldn't they just say that?
not knowing what their nomenclature is it looks like it has moved from being an acute infection (that's the IgM antibodies) to the negative (that's the IgG. In which case that's a good thing, that's what you want to see. However, this would not explain why her per would think she has an acute (IgM) infection all over again, because the test results don't support that.
Bottom line -- if she has symptoms, there's probably something else going on.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
posted
The nReactive means it was reactive. I dont know why it says it printed out like that, but it is. Her IgG says positive and the IgM says neg.. But she did still have a reactive band to it (23 IgM)
Posts: 5 | From Kittanning PA | Registered: Dec 2012
| IP: Logged |
posted
The other two IgM's were not positive, which is why there wasnt a nReactive on it.
Posts: 5 | From Kittanning PA | Registered: Dec 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic