Its worse when I first wake up. My vision is worse then, feel it more in my head and vision then. And I feel it more when I have my monthly flare.
My whole body feels like I have a subtle vibration thruout it. Sometimes more noticeable than others. Vision and head i notice it the most.
Not talking about when I actually have all the muscle spasms and tics, which have been extreme, to the point that I had an EEG done. to make sure I wasn't having seizures.
I have been off abx for 2 mo. Trying to find another dr. In the meantime... wonder, the vibration feeling... anyone else??
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
me too. it is a new sx for me. ive had lyme 30 yrs or so and this sx a few months. i often wake up wondering if we are having an earthquake
no answers...maybe someone else will come along. also you can search on here...it has been talkied aboutn recetnly
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I have had this symptom for years and I am convinced it was from a parasitic infection. At times I felt like I was sitting on a drill.
After years of tx with antiparasitic herbs and salt/c it is gone. Parasite tx needs to be ongoing not just sporadic until symptom free and then maintenance.
Parasites/worms are now being recognized by Dr. H. at the recent ILADS conference as the number 1 infection to treat. FINALLY! I am sure Dr. K. has been instrumental in that.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I believe it's bart. It flared and then got better with treatment.
Posts: 418 | From NJ | Registered: Sep 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I get this off and on. For me it is an electrolyte imbalance. Minerals are needed to detox so minerals get used up when detoxing borrelia, heavy metals, parasites, viruses etc...
Mine goes away when minerals are balanced. The needed mix might be different for you but I can usually clear my problem with Nature's Sunshine mineral chi.
I had this again yesterday and via muscle testing found out I needed to add magnesium. Vibrations are gone today.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
These sensations are caused by roaming neurotoxins that have not left the body yet.
Most detoxing happens in the midnight to early morning hours and you may notice that when going to the bathroom in the morning some of the sensations lessen. Sometimes not.
"What are Neurotoxins?
Neurotoxins are substances attracted to the mammalian nervous system. They are absorbed by nerve endings and travel inside the neuron to the cell body. On their way they disrupt vital functions of the nerve cell, such as axonal transport of nutrients, mitochondrial respiration and proper DNA transcription. The body is constantly trying to eliminate neurotoxins via the available exit routes: the liver, kidney, skin and exhaled air.
Detox mechanisms include acetylation, sulfation, glucuronidation, oxidation and others. Often the host is triggered to produce neurotoxins (which are damaging to their own tissues) by the invading microbes through molecular trickery. The liver is most important in the toxin elimination process. Here most elimination products are expelled with the bile into the small intestine and should leave the body via the digestive tract.
However, because of the lipophilic/neurotropic nature of the neurotoxins, most are REABSORBED by the abundant nerve endings of the enteric nervous system (ENS) in the intestinal wall. The ENS has more neurons than the spinal chord.
From the moment of mucosal uptake the toxins can potentially take four different paths:
-Neuronal uptake and via axonal transport to the spinal chord (sympathetic neurons) or brainstem (parasympathetics) � from here back to the brain. -Venous uptake and via the portal vein back to the liver -Lymphatic uptake and via the thoracic duct to the subclavian vein -Uptake by bowel bacteria and tissues of the intestinal tract
HERE IS AN INCOMPLETE LIST OF COMMON NEUROTOXINS IN ORDER OF IMPORTANCE:
-HEAVY METALS : such as mercury, lead, cadmium and aluminum.
-BIOTOXINS : such as tetanus toxin, botulinum toxin (botox), ascaridin (from intestinal parasites), unspecified toxins from streptococci, staphylococci, lyme disease, clamydia, tuberculosis, fungal toxins and toxins produced by viruses.
Biotoxins are minute molecules (200-1000 kilodaltons) containing nitrogen and sulfur. They belong to a group of chemical messengers which microorganisms use to control the host's immune system, host behavior and the host's eating habits.
-XENOBIOTICS (man-made environmental toxins): such as dioxin, phthalates, formaldehyde, insecticides, wood preservatives, PCBs etc. -Food Preservatives, excitotoxins and cosmetics: such as aspartame (diet sweeteners) food colorings, fluoride, methyl-and propyl-paraben, etc.
I have found that mercury in its different chemical forms has a synergistic amplifying effect with all other neurotoxins. When mercury is removed, the body starts to more effectively eliminate all other neurotoxins, even if they are not addressed."
The more attention you pay to binders, binders, binders, the less you will have to fight by being reabsorbed.
It took me a few years to take binders seriously. 3-4 times a day - 15/20 min. before meals and before going to bed.
posted
Gigi... I appreciate the time you took to respond so throughly, and to try to explain. I have re read what you have posted a few times now. I have a question...
You stated "most elimination products are expelled with the bile into the small intestine and should leave the body via the digestive tract.
However, because of the lipophilic/neurotropic nature of the neurotoxins, most are REABSORBED by the abundant nerve endings of the enteric nervous system (ENS) in the intestinal wall."
How do you think this would be impacted by the fact that I have had gastric bypass surgery. I can't think of how to correctly spell it but, ru-en-y form is what I had, where they re route a portion of the small intestine.
Thanks for the information!
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thanks for posting this Gigi, it couldn't have come at a better time for me. I've had it with toxins. My metal levels just aren't going down, even though I've been detoxing for months. I've decided to go for it (amalgam removal).
I need to order some chlorella before my apt (soon). Has anyone tried the pyrenoidosa or the vulgaris? I read that the pyrenoidosa is harder on the stomach.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Catgirl, I've been using the vulgaris. I have had no problems with this at all with regard to nausea or noticing that it caused digestive upset. I have read that it is not as effective as the other type of chlorella, though. So it may take longer.
I remember you posting how much the parasite treatment has been helping you. What are your remaining symptoms?
Posts: 2386 | From New England | Registered: Aug 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thanks dbpei! How much vulgaris are you taking?
I have a little bit of babs left (mild air hunger), occasional bart (foot pain around full moon, which tells me maybe it's parasites), and the parasites are ongoing. Energy is better, but still room for improvement (some fatigue). I think that may be from parasites and or HHV6 or something else. Frequent urination at night is a little better too.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I take a little more than 1 gram of chlorella (4 - 6 tabs) 4 times per day. I have cilantro in the morning before breakfast and again at bedtime. It seems to be helping, because when I stopped taking both, my symptoms worsened.
Posts: 2386 | From New England | Registered: Aug 2011
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posted
I found some help with this by switching off the circuit to the bedroom I sleep in( as Dr. K suggests). the vibrating is still there but not as intense.
Posts: 857 | From northern california | Registered: Dec 2009
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