I have been chelating for a year and 5 months now with my very well known llmd. Last time we tested, at the one year mark, my levels had gone wayyy down, but still not enough to stop. I just retested again this morning and sent my test off to Doctor's Data. I should have the results in about 3 weeks.
I am just curious to know if anyone has had to chelate longer than 1.5 years. I am REALLY hoping that I can at least check chelation off my list this time since I think I will start treating parasites this week and I just want to be done with SOMETHING since still treating Lyme and co bc I am STILL symptomatic.
Thanks in advance for your responses!
Posts: 200 | From Boston | Registered: Sep 2010
| IP: Logged |
Also make certain that you are taking plenty of binders to avoid reabsorption of neurotoxins.
Best wishes.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I got on the above site and was surprised to see the following paragraph by Dr. K
"There are many compounds I do not recommend: homeopathic mercury, N-acetyl cysteine, saunas, vegetarian diets, fasting and excessive sports - all of these have been shown to potentially drag mercury into the brain cells rather than away from the intracellular environment.
EDTA forms potentially toxic complexes with Hg which are hard to eliminate. Zinc potentiates the lethal effects of Hg."
I was all set to look into saunas and my LLNP had recommended N Acetyl Cystine. There is so much contradictory information with this illness. Posts: 2386 | From New England | Registered: Aug 2011
| IP: Logged |
posted
Nac is a precursor to glutathione, the body's own chelating agent. Why would we not want that? Very bizarre.
Posts: 131 | From Neptune, NJ | Registered: Oct 2012
| IP: Logged |
posted
Wow how comfusing. I have been on NAC for 18 months to help with going after chlamydia pneumonia, per cphelp.org. Going after parasites and candida so I may stop the NAC after I read a bit more.
Thanks for the Dr. K info. MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I don't trust everything Dr. K has to say such as not recommending a vegetarian diet when it has ben proven that a low fat vegan diet is the best way to control Protomyxzoa.
Also Dr. Roberts, who is a heart surgeon, not a LLMD, says if you have the CBS mutation eating meat promotes ammonia to build up in your body as well as sulfates. This cuts down on the glutathione you are able to make to chealte the toxins (incluiding metals) out of your body. Dr. Roberts says people with the CBS mutation collect heavy metals.
He also recommends EDTA instead of other chelators like DMSA which has sulfur and can be dangerous. EDTA does not leach mercury out of the teeth because it does not get into the saliva. When I tried to use DMSA, I thought I would wind up in the looney bin and he told me that was because of the sulfur.
I haven't chelated very long at all. Dr. Roberts recommends you get your sulfate and ammonia under control first and that has taken me a long time. I am using LipoPhos EDTA. IV chealtion might be quicker but I don't have a doctor to do it right now.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[dizzy]](graemlins/dizzy.gif)
Printer-friendly view of this topic