Ellen101
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posted
Wow you already got your book? I'm still waiting for mine. Should be arriving tomorrow. How is it so far?
Posts: 1748 | From United States | Registered: Dec 2011
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lax mom
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posted
Hi Ellen! Yeah I got mine today. I guess I must live closer to a shipping warehouse.
I love it. It's very inspirational.
My neuro/sensory symptoms completely suck, so I have to patch one eye while I read (my eyes don't work well as a team)...even so, I got through 88 pgs today.
I hope by the end of the book, I find out that stem cells aren't absolutely necessary for healing. Crossing my fingers
CD57
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posted
The author posted on here awhile back when she got back. She is from my area, and I know several others who have gone as well. Mixed results, but overall positive.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I think this is still an incredibly expensive treatment. People pay 20K per month for two months, usually, when they try it - that's India's cost.
We are having a basic stem cell research lecture later this month. If I learn of any cheaper way that folks are doing this, I'll post.
The lecture will be on getting stem cells from our cells, not embryonic ones that are being used in India.
Posts: 13116 | From San Francisco | Registered: May 2006
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Ellen101
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Lax mom I got it a few days ago. Unfortunately I have only had time to read a few pages, but seems really good so far!
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lax mom
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posted
CD57: DO you know the author's lymenet name? I'd like to look up some of her posts.
Robin: let us know what you find out.
When I finish reading it, I'd be glad to pass it on to anyone else who wants to read it.
ktkdommer
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posted
I read the book over the weekend as an E-Reader. I am ready to take my youngest to India. I figure I could just use my retirement money and never retire. Her MRI results were amazing. I have to get my 17 year old better. He needs his brain back. Life is so hard without it!
I googled more information and there is probably a cleaner location in Panama. I would die in the heat of India. I would prefer a room with no rats.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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lululymemom
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Embryonic stem cells? Well that raises all sorts of ethical issues..
Ellen101
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posted
KTDOMMER I wanted to get it on my ereader but it said it wasn't available as of yet???
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lululymemom
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posted
Lets hope the autologous cells show the same promise..
posted
I get an jnjection of embronic stem cells every 2 weeks. It used to be every 4 weeks. The stem cells are from the umbilical cords of healthy newborn babies, which reduces the ethical issue. The cost is under $90 for each shot.
I now focus more on reducing the damage from Lyme disease and on anti aging. I am pleased with the results. The treatment is in South America where the cost of living is much less than in the US. It costs less to live here and get various therapies than it costs to just live in the US.
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lax mom
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pigwit: I'm confused. Embryos are the unborn babies that are only a few weeks old newly formed in the womb. Healthy newborn babies aren't embryos. Are the injections called something else?
posted
I might have used the wrong word when I said embryonic. The doctor speaks Spanish and no English.
When I first saw him over 2 years ago my Spanish was not sufficient and a lady from the US helped interpret for me. She said embryonic stem cells. I believe the cells have differientiated some, but not to the extent of adult stem cells.
It is limited on how long they can store the stem cells. If they are not used within a time limit, they are disposed.
Posts: 158 | From Ecuador | Registered: Apr 2006
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posted
I was told that there were a few, on this forum, who have received stem cell treatment, but it failed them. (I'm not referring to Amy S.). I have been researching it vehemently over the past 6 months and spoke with some incredible doctors. In telling a friend this, They mentioned several on Lyme net have gone with zero results. If true, would you mind Pm'ng me? I would appreciate it so much. I could share the information I have learned. Blessings, Barbara. p.s. the fetal cells that Amy used in India were from a fetus that was miscarried. This may clear a few minds up and hearts. (they are still using those cells)
Posts: 4 | From eugene, oregon | Registered: Apr 2013
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posted
I wish we could charter a plane and all get this tx in India! I did correspond with the doctor there a while ago and they seemed very professional and knowledgeable!
Have difficulty reading so wondering if there has been new studies on stem cells! @lax mom, sorry it's so hard on your eyes, do tell us in a nutshell (if you can) when you finish reading the book what the general thoughts are?? Posts: 394 | From Southeast | Registered: Oct 2012
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Lymedin2010
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posted
Ellen101, can you make a thread & keep us up to date on your experience with stem cell?
Posts: 2087 | From NY | Registered: Oct 2011
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lax mom
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posted
Hey tailfeathers: I did finish the book. She got well.
I initially wanted to get stem cells myself.
However, I have come to accept that some treatments are not gonna happen. So, I'm just focusing on what I can afford.
CD57
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posted
She also says, though, that she believed the meds she took killed the bacteria -- she does not specify babesia, bartonella, just says Lyme......and that when she went to India she believed most of her bugs were dead.
Posts: 3528 | From US | Registered: Apr 2007
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posted
There are others who have went into remission from chord blood as well. One friend did, one friend did not. Pretty sure Amy needed a booster as well. Did anyone on here go and get stem cells and it failed them, per another member? Autologous (our own cells) is on the rise and is considered actually better then fetal, chord. Let's hope the FDA approves it to be used in the USA. It was being used promisingly until this year, the Pharmaceutical companies informed the FDA that the same recquirements for them was not being mandated for the use of stem cells. So, they banned it until more studies were performed. So, our own stem cells are considered "drugs". It seems insane, but that is our health care system.
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lax mom
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posted
I couldn't remember that CD57. Good point.
I do remember she was on Babesia meds in the hospital.
If autologous stem cells were ever approved in the US, I would want them. (If I'm not 100yrs old when it's ever approved).
posted
Thx for that update lax mom.. sigh - yes, nice to dream but need to focus on what is available to us here and now...glad to know she got better though!
Posts: 394 | From Southeast | Registered: Oct 2012
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sammy
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posted
Keep the cord blood Nonna.
They might be able to use it in the future to help cure your little triplet granddaughter that has diabetes. This is the type of stuff being researched right now all over the world.
lerae100, will you come back and share what information you find out about how many people have been treated with stem cells and cured vs those not cured? You've reminded me about this treatment and now very I'm interested to hear about some outcomes. Thanks!
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oxygenbabe
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posted
pigwit how do the stem cells make you feel?
Posts: 2276 | From united states | Registered: Jun 2004
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Ellen101
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posted
quote:Originally posted by Lymedin2010: Ellen101, can you make a thread & keep us up to date on your experience with stem cell?
I don't have any experience with stem cell, sorry for the confusion. This post is in regards to a book I posted about in which the author had stem cell treatment.
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CD57
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I know someone who did the autologous stem cells, and it set off cascades of inflammation that put her in bed for a year. She is just now recovering. I don't get it, that means her body saw her own cells as invaders. ???
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lax mom
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posted
CD57: I bet that would be me too. My body freaks out when it senses anything the slightest bit foreign.
I think they do something to the cells before putting them back into the body. I just don't know what.
posted
I heard from someone who did the autologous stem cell injections and didn't get anything from it except $9000 poorer...this person is vehemently against the idea at this point.
We did hear the stem cell researcher speak - it's basic research, like figuring out how stem cells signal to each other.
I understand that Amy and others who went early on to India did better than people who have gone more recently. The question is, are the India stem cells not doing so well anymore?
I believe Scott Forsgren may be up on the latest re that info. Anyone can contact him at www.betterhealthguy.com and ask.
Posts: 13116 | From San Francisco | Registered: May 2006
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lax mom
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quote:Originally posted by Robin123: I understand that Amy and others who went early on to India did better than people who have gone more recently. The question is, are the India stem cells not doing so well anymore?
She stated in the book that the India stem cells came from the same miscarried embryo. Maybe that's possibly why it's no longer as effective?
posted
Scott went to Panama for a week for them. He has info about it on his website. He said he wanted to go to India, but didn't have that kind of time. It's my impression that a weeks worth doesn't do much. They were a different kind too.
In India you would do them for 2 months. 30k.
I just had shoulder surgery and the bill was 35k. I was there for a total of 5 hours. I have insurance, but a massive deductible. The way I see it as far as the cost of it (stem cells in India) it's a bargain.
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