I have just heard from a friend (not close) but I would consider her to be a kind and trustworthy woman- but I ran into her at the dentist's office.
I gave her the cliff note version of being diagnosed with Lyme, but the doctors' thought I had MS or something along those lines.
She told me of a close friend of hers, who years ago was diagnosed with MS, and after finding out her "you know what" husband left her alone to raise their two children.
Her disease has progressed to where she is in a wheelchair that she has to breathe in. Right now she is in an Atlanta Hospital with pneumonia.
I am wanting desperately to run an Igenex Test down to Atlanta- I am about 2 hours away. I don't know if a doctor would write an order for it, and I know her disease has progressed rapidly.
She may have MS and not any bacteria or parasites from an insect bite, but a part of me wants to do something. And if by chance she does have some positive bands, I pray with aggressive antibiotic therapy she can slowly regain her health back.
But I felt I needed to try and do something. Also, Dr. Wahl's who has great information on how she helped her own MS with her diet may be useful. But I feel this lady needs support and I am so beyond upset and angry that her husband left her.
Are my thoughts logical? BTW, I haven't even spoken to her yet personally about my idea, but our mutual friend is going to talk to her.
And if any of you are near Atlanta, could you pm me any docotr's names who may write an order for her. I have just started to be able to run some errands, so I am ready to take this Igenex test kit I have here at home and drive it down to her.
Thank you all ahead of time for your thoughts. Posts: 168 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Someone I used to work with was diagnosed with MS. He had a house on one of the MA islands that have a lot of lyme. He assured me that my suggestion to consider lyme was not needed, as his doctors said it was MS and he believed them.
So, you can only help people who don't have absolute faith in everything a doctor says, and will do some investigating on their own about other possibilities. Some will, some won't.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
Yes, Poppy is correct. You can only help people who are willing to help themselves. I would call first and make sure the person is open minded to at least doing the test. If her PCP will not sign the order then usually the next easiest option is to find a chiropractor to sign it.
Good luck and let us know how it turns out.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It does depend now on the doctors at that hospital - or others when she is released.
Can't really reply other than to offer links that may be of help. I know you know most of this but if you need to share your thought process with others, something here may help.
Also detail about other tick-borne infections, other stealth infections (such as Cpn) that can cause "MS" as well as environmental causes & complexities.
What ILADS is & WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Two key points for anyone with a dx of "MS" - UNLESS guided by an ILADS educated LLMD:
1. Do NOT take steroids. Steroids can make lyme MUCH worse (and also may worse any other stealth infection).
2. Do NOT do a lumbar puncture (spinal tap) for lyme. It is not an adequate test.
Reasons are likely explained in the "MS" thread above but wanted to be sure those two vital points are highlighted. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
The other thing is that people who don't know what is going on in the lyme arena are going to need some hand holding. You will not be able to just give them a test kit and hope for the best. It could jeopardize any doc who helps her.
Posts: 2888 | From USA | Registered: Mar 2004
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Have you read about the possible connection between MS and Chlamydia Pneumonia?
Can you research at cpn.org?
The antibiotic protocol of Wheldon and others?
Perhaps see if doctors will test her for Cpn - the IGG, IGM and IGA antibody test?
If not order the test through an online lab that does not require a doctor to sign orders.
PrivateMDLabs uses Labcorp. I have the test number somewhere.
For Lyme you might have them consider the culture test from Advanced Lab Services as well.
Oh, even though Labcorp misses some positive cases one can be tested for it also via PrivateMDLabs. They have it on their test menu.
Their prices are reasonable and oftentimes cheaper than what Labcorp charges when patients do not have insurance. PMDL does not take insurance BTW.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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