I'm currently on Mepron, Zithromax 600mg at night, Bactrim DS and Cholestyramine.
M, T, W- 1200mg of Artemesia Annua, Parastroy
Everyday- alpha lipoic acid, salt/c 4x a day (working up slowly), Curcurim, Grapefruit Seed Extract, Olive Leaf, 6000mg Vitamin D3. I take coconut oil with my Mepron.
I started treatment on October 1st. 2 Months before that, I was on 100mg of Doxy twice a day thanks to going from doctor to doctor. After that, my doctor put me on 200mg 2x a day which I stopped at the end of December.
While my head pressure is less often and intense at times, It still comes frequent and full throttle, like it is right now.
I have episodes of bad heart pain, ear popping/pressure, weird looking eye floaters that look like worms, sharp random pains in my body, headaches, off balance/dizzy feeling, and sores on the top of my head. This past weekend for the first time while I was walking around in Ikea, I felt like I was about to faint and had to sit down. The past week I have felt like absolute crap since starting the salt/c solution.
A lot of my symptoms are new and have come after starting treatment. So far I have come back positive for is Babesia Duncani IgM, and an IgG of coxsackie, mycoplasma and mono.
What medicine could benefit me that I could ask to try? Anyone with Duncani have any success with a particular drug? I was thinking about Flagyl.
Thanks for any input I really appreciate it.
Posts: 251 | From Baltimore | Registered: Oct 2012
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I haven't been able to treat much for babesia because I can't take Mepron. So I take bactrim DS and Biaxin. I'm thinking of pulsing art eventually. Right now I'm on too much though.
In the past I have taken clindamycin and Mepron. Some find that to be helpful. Some people add Plaquenil as a way to raise the effectiveness of zithromax. Also, you could consider Coartem, but you probably would have to go off almost all the other meds for a while to pulse that.
I take Flagyl but from what I've read, that is mainly for the cystic form of Lyme. That's what I'm using it for.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Rather than "what med to ask for?" you might ask questions about the doctor's plans. Let his or her expertise work for you. I hope they can help shine a light as to the next step but also what's to be after that.
We should not have to figure this all out for ourselves if we have a good match in a LL doctor.
Still, I know that finding out some of the possiblities in advance can help us be more prepared for discussion but I do hope your doctor will guide you with great skill. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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You're on a great plan, I'd stick with it! I found that staying with the same meds, over the long-haul, was the key to my success.
The fact that your body can handle all these medications is reason to be grateful....I am so grateful for that, as many cannot.
Posts: 964 | From san diego | Registered: Oct 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say that The past week you "have felt like absolute crap since starting the salt/c solution."
and " This past weekend for the first time while I was walking around in Ikea, I felt like I was about to faint and had to sit down . . ." (end quotes).
Be sure your doctor knows ALL this.
Also: just stay out of all big box stores until you are much, much better. They are all very hard on us in so many ways.
I hope your doctor is aware that you started salt/C. Still, with such a strong reaction, I wonder if the dose of salt might be too much? Back way down on the dose - spread it out - and see if that helps.
How much did you start with? Sea Salt (not table salt, to be sure)?
Still, it's probably best to back down on that. It's never good to push "feeling like absolute crap" as that can be just too hard on any body.
I also wonder if your liver support is adequate. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
The type of salt I'm using is 1/6 teaspoon of raw pink himalayan salt shaken with 1 gram of vitamin C 4x a day. I've stuck with this since last Tuesday. I actually see my doctor this Thursday and got my blood back from last week and everything is normal except my lymphs and monocytes that are always high/low. I am wondering if I should hold off or not but I have heard such great things about doing it and have obviously been herxing a lot. Blah
Posts: 251 | From Baltimore | Registered: Oct 2012
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