posted
Good evening all! Has anyone experienced crazy head rushes? I don't know how to describe them other than they are only momentary but I have to jerk my head back and it's gone as quickly as it came. I've had them before but I feel like alot of my symptoms are increasing in my head (pressure, dizziness, general strange feeling). I've been on bactrim for 6 months and just started monodox last month. Any input is appreciated!!
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Buried on page two.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I don't know if it's the same thing as what your having, but I have what feels like a power surge in my head.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- First, a safety question. When you say that you "have to jerk my head back" I assume you mean that you have control over this.
Please, even if it seems to help, (kind voice here) do NOT ever jerk your head even a little bit. Ever. Damage can occur to your brain.
Lyme can cause all kinds of brain symptoms. The brain is often swollen, too. The inner ear can be affected as well.
ANY jerking can hurt the brain and the tender ear system. Even a mild jerk can cause a concussion (especially with an infected brain) and that can lead to long term trouble.
Now, if you are not doing this of your own free will, that could also be a symptom along the lines of myoclonus that often goes with lyme.
MAGNESIUM & fish oil should help regardless but do tell your LLMD about this.
Certain gentle cranial-sacral therapy might help but NEVER let any doctor or PT suddenly twist your neck or spine. ONLY a gentle method such as
UPLEDGER or FELDENDKRAIS - just Google. -
[ 01-17-2013, 04:42 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I call mine brain zaps. I believe it is the same brain malfunction that causes seizures, only much milder. Encephalopathy is common with Lyme.
Mine never happen if I'm resting, only exercising or moving around.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
It feels exactly like a power surge or brain zap!! They only seem to happen when i'm more at rest most of the time. My brain fog prevents me from remembering if they've happened when i'm active but I don't think so. What causes this and what should I look into to get rid of them. I have a panic attack without fail everytime it happens because it scares the life out of me. I know it sounds ridiculous but I get scared that i'm having a stroke of some sort and i'm only 34. Hope everyone heals well!
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Jessig627,
Be sure to tell your LL doctor. It's important, even if very common to those with lyme.
I know when I had this happen it was very startling and disconcerting. Just because some of us lived through these does not mean you should not tell your doctor.
I just never had a LL doctor to tell or ask for advice in this matter. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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