LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Gluten...

 - UBBFriend: Email this page to someone!    
Author Topic: Gluten...
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I have been having some gut issues. I have a history of c diff for 2 years and was afraid that was back or I had developed inflammatory bowel disease. I finally decided to bite the bullet and do the full GI panel through metametrix.

I recieved my results today and everything looked really pretty good...no yeast, no pathogenic bacteria, no c diff...except my antibody to gluten was off the chart high. It says next to the results....Gluten sensitivity. I dont have celiac disease.

I would never have taken the gluten free diet seriously enough but now that I have my lab results to support this..I have to go gluten free.

Just thoughts for others who may have GI issues. The antibiotics really change the flora balance despite probiotics and gluten and other food intolerances could be a problem. I think I have healed my gut considerably from the damage the antibiotics did, but apparantly I cant tolerate gluten now. Since reducing my gluten intake my gut is much improved, but the test confirms I need to go eliminate it all together.

Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Sorry to hear of your pain but so glad you have some clear guidance.

As for not having "celiac" - to be sure, many of the tests are not accurate for that. A genetic blood test is best.

Still, even if not a genetic celiac, celiac can be triggered by various gut infections.

Antibiotics and other Rx can damage the gut tissue but infections, themselves, can cause &/or trigger celiac even in the absence of Rx.

And the gluten sensitivity is also no small matter but at least that offers hope that after one is much better and in a good strong remission from lyme, some good quality gluten containing foods may be tolerated in moderation.

I'll be back with some links that may help you be sure you are avoiding it. Gluten can even show up in lip balm. And that really matters, too.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Gluten (in wheat, rye, barley, spelt, kamut

and added to "Mexican" or "Spanish" rice and other flavor packets - and in many processed foods).

It's not enough to sort of, kinda, do this most of the time. It's absolutely vital to be sure not a trace is even in your lip balm (since we really do actually eat whatever we smear on our lips).

Even a trace matters. And it is that important. For now. After lyme treatment, those who do not have genetic celiac may be able to enjoy good quality gluten-containing grains in moderation.

Also, even eating in a restaurant where "wheat flies" can be dangerous as can buying at the bulk bins in stores where those bins are all filled in the back room and "wheat can fly" so to speak.

Gluten free pizza in a regular pizza place is never gluten free unless they have isolated preparation space.

The same goes for gluten free dishes in ANY restaurant. If the kitchen (or an isolated GF food prep area) is not certified GF, the food will not be either.


www.celiac.com & www.celiacsolutions.com

Basics about Celiac


HIDDEN SOURCES OF GLUTEN (each link has detail the others may not):

http://www.glutenfreehelp.info/wp-content/uploads/2011/03/TS-Hidden-Sources-of-Gluten1.pdf

http://www.celiacsolution.com/hidden-gluten.html

http://www.tacanow.org/family-resources/hidden-sources-of-gluten/

http://blog.primohealthcoach.com/blog/bid/74158/Hidden-Sources-Of-Gluten

http://www.practicalgastro.com/pdf/September08/HlywiakArticle.pdf

7-page pdf


http://www.vanguardneurologist.com/new-study-links-gluten-sensitivity-to-brain-failure/

Vanguard Neurologist - A Blog by David Perlmutter, MD

New Study Links Gluten Sensitivity to Brain Failure (2007)


http://www.cbsnews.com/8301-505269_162-57505149/modern-wheat-a-perfect-chronic-poison-doctor-says/

Modern wheat a "perfect, chronic poison� - September 3, 2012 (CBS News)

Modern wheat is a "perfect, chronic poison," according to Dr. William Davis, a cardiologist who has published a book all about the world's most popular grain. . . .

Text and Video interview at link above.


Other food issues of vital importance:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors

GMO issues also highlighted
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
kimmie,

Some non-gluten whole grains, legumes, grasses and seeds that are very nutritious and also with a good glycemic balance and go great with any vegetables and proteins are:

Amaranth

Millet

Buckwheat Groats

Quinoa (Regular, Red & Black) *

Wild Rice; Brown, Red & Black Rice

Teff


These are best in their WHOLE form though, in moderation with other whole foods, most also come in flour form. Just remeber to account for the higher glycemic index the finer it's ground. Protein, fat and complex veggies must go with any flours.


* [note: some think Quinoa may have some gluten cross reactivity of sorts, I've not explored that. Some also say this for coffee. A web search should help shine some light.]
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Especially relating to lip balm:

http://thechart.blogs.cnn.com/2011/10/31/gluten-in-cosmetics-may-pose-hidden-threat-to-celiac-patients/

Gluten in cosmetics may pose hidden threat to celiac patients

. . . The vitamin E found in beauty products may be derived from wheat and contain gluten, even though the label just lists "vitamin E," . . . .
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
RC1
LymeNet Contributor
Member # 31923

Icon 1 posted      Profile for RC1     Send New Private Message       Edit/Delete Post   Reply With Quote 
These infections, and mold too, will make our bodies produce antibodies against gluten. One of the markers for this is the TGF b1, when that normalizes you will be able to have gluten again, so long as you don't have Celiacs.
Posts: 845 | From Northeast | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
daynise
LymeNet Contributor
Member # 39609

Icon 1 posted      Profile for daynise     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Kimmie,

I developed gluten intolerance about 5 years ago. I was suffering from IBS and acid reflux and both of those subsided after dumping gluten.

Just wanted to share this great gluten free recipe blog:

http://glutenfreegoddess.blogspot.com/

Her recipes are so delicious, I don't really miss gluten at all!

Posts: 428 | From Midwest | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you so much Keebler. You are always such a wealth of knowledge.

And Daynise, I am excited to look at some recipes. I actually made muffins today that were gluten free and my kids loved them.

thanks!

Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just printed out some great recipes....Yummy!
Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
daynise
LymeNet Contributor
Member # 39609

Icon 1 posted      Profile for daynise     Send New Private Message       Edit/Delete Post   Reply With Quote 
[Smile] awesome!
Posts: 428 | From Midwest | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
jjourneys
LymeNet Contributor
Member # 39813

Icon 1 posted      Profile for jjourneys   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have Celiac's probably have had for 45 years, diagnosed 3 yrs ago. Going gluten free changed my life for the better - then comes along Lyme to tear it down again - anyway.

My hubby is wonderful (the cook and grocery shopper) - he found: (all on Amazon.com - delivery usually within days)
Pamela's Chocolate Chunk cookies (taste just as good as any choc chip cookie around!)
Gluten free Bisquit - pancakes and waffles back in my life
Bob's Red Mill Pizza crust - just tried this last week - haven't had pizza in 3 yrs - wonderful!
King Arthurs Brownie Mix - it's wonderful

Celiac's I can offer help with. You all just keep helping me with LD!!!!

Posts: 250 | From East Coast | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
jjourney's,

thanks for the tips. Some more goodies:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030665;p=0

Topic: Book: Gluten-Free ASIAN KITCHEN


www.laurabrussell.com/my-book/

Book: The Gluten-Free Asian Kitchen � by Laura b. Russell

http://www.laurabrussell.com/

Author�s Blog

http://www.laurabrussell.com/recipes/

Recipes on line
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
While many of the recipes here are far too "refined" in nature, some excellent detail here and the more "simple sugar" recipes might still be good for special occasions or in combination with other more complex foods.


http://www.adventuresofaglutenfreemom.com/

Adventures of a Gluten Free Mom - Heidi's Blog
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
jjourneys
LymeNet Contributor
Member # 39813

Icon 1 posted      Profile for jjourneys   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'll be looking up many of these links!!! So helpful!!! Love looking for ways to add variety to my Gluten-free diet.

Thank you Keebler!!!!

Posts: 250 | From East Coast | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
a few more:

http://www.marysgonecrackers.com/

MARY'S GONE CRACKERS


www.latortillafactory.com/products-6.aspx

TEFF TORRILLAS & WRAPS


www.vitacost.com

VitaCost has many GF offerings at good prices
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
You will feeL SO MUCH better!!!

Be careful not to eat too much of the gluten free stuff .. it can be very "white" .. like eating white bread.

I like Canyon Bakehouse bread the best.

[ 01-29-2013, 02:55 PM: Message edited by: Lymetoo ]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone!
Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Here's a current thread posted by LymeToo:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/122554

Gluten Intolerance
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Lymetoo:
You will feeL SO MUCH better!!!

Be careful not to eat too much of the gluten free stuff .. it can be very "white" .. like eating white bread.

I like Canyon Bakehouse bread the best.

Never heard of that brand. Can you buy it online?

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=122855;p=0

w0tm just posted this

Topic: Newly discovered tie between gluten and Lyme

Also of note here is a post about how certain GF items in a deli may not be GF at all if they share equipment & the "air" with wheat.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.