posted
Why would I feel significantly better on mebendazole?? It is not a systemic drug. It only works in the gut. Not sure if it is just a coincidence I feel so much better on it.
Any ideas?
Posts: 618 | From NC | Registered: Oct 2009
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glm1111
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posted
Could be that it is attacking G.I. parasites. Great that you feel better on it. Keep us posted, and of course let us know if you see any invaders come out.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
But my severely stiff neck and awful spinal pain subsided. I felt SO much better overall. how could something that works only in my gut help with those issues?
I should mention most of my Lyme symptoms are neurological.
Posts: 618 | From NC | Registered: Oct 2009
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posted
I have not noticed any parasites coming out. Would it be fairly obvious? I see things that could possibly be parasites, but I'm just not sure.
Posts: 618 | From NC | Registered: Oct 2009
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glm1111
Frequent Contributor (5K+ posts)
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posted
When the G.I. track is inflamed and full of parasites, it can affect how you feel overall, including your brain and spinal cord. Just like when you have a bronchial infection, but you don't feel well systemically. Same kind of premise. There is also a brain/gut connection. Google it.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Aww, yes. That does make sense!!! As soon as I stopped mebendazole, I felt worse within a day. I'm supposed to start it again on Monday, so I'll let you know if it helps again!
Thank you!
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glm1111
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posted
Keep us posted . Hope it works great for you!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Mebendazole affects mitochondria as well. http://mootha.med.harvard.edu/PubPDFs/nbt1387.pdf mebendazole is able to boost OXPHOS expression, which acts on ATP synthesis through the mitochondria. This temporary improvement was discussed on another forum.
Posts: 125 | From eu | Registered: Dec 2010
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quote:Originally posted by jwall: Why would I feel significantly better on mebendazole?? It is not a systemic drug. It only works in the gut. Not sure if it is just a coincidence I feel so much better on it.
Any ideas?
I am aware of four paediatric patients who appear to have got more or less cured after taking Mebendazole. They had become 80% on oral antibiotics at ILADS-type doses, but relapsed once taken off abx.
Dr Eva Sapi has found worms of the genus Onchocerca co-infecting New England Lyme ticks, although not much more is known yet as to their importance in Lyme.
There is no research in the public domain, as far as I know, on the possibility of a symbiotic relationship between Borrelia and parasitic nematodes.
Dr Willy Burgdorfer found a worm previously unknown to biology in the same batch of ticks he found Lyme. He even wrote a paper on it, but this research was never pursued, at least not in the public domain. Burgdorfer may know more, but, it seems, he wishes to take his secrets to the grave with him. As he said to the Under Our Skin crew after the cameras stopped rolling:
"I haven't told you everything".
It's very sad that even those who appear to be on our side are keeping secrets, and as a result, millions of people must continue to suffer.
Elena Cook
-------------------- Justice will be ours. Posts: 786 | From UK | Registered: Oct 2007
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glm1111
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posted
It's infuriating that Lyme sufferers are not being treated for this possible co-infetion. I read another post a while ago that said 60 strains of Filarial Worms were found in the dissected ticks and as an aside Burgdorfer found spirochetes.
I e-mailed Dr. Sapi, last year and asked her why Filarial Worms were not being mentioned and tx as a possible co-infection by most LLMDs? Her answer was baffling..."because it hasn't been published yet" Huh...what does that mean???
What's wrong with this picture?? Why did everyone jump on the spirochete bandwagon and ignore this? Too mnay people suffering chronically because this infection is being left untreated.
It was announced recently at the last ILADS conference that parasites/worms were now being recongized as the number 1 co-infection of Lyme. Probably thanks to Dr. K. who treats ALL of his patients FIRST for parasites and SECOND for Lyme.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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quote:Dr Eva Sapi has found worms of the genus Onchocerca co-infecting New England Lyme ticks, although not much more is known yet as to their importance in Lyme.
There is no research in the public domain, as far as I know, on the possibility of a symbiotic relationship between Borrelia and parasitic nematodes.
Dr Willy Burgdorfer found a worm previously unknown to biology in the same batch of ticks he found Lyme. He even wrote a paper on it, but this research was never pursued, at least not in the public domain.
Interesting info. Thanks. Never read it before.
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