posted
Hi everyone..I have been experiencing pretty significant full body twitching for quite some time now.
I have tried magnesium and b12 and the twitching has continued unabated. I am currently on IV Rocephin and Tindamax..anyone have significant twitching that eased over time, and if so what treatment(s) helped?
Thanks Jess
Posts: 870 | From ct | Registered: Nov 2012
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Ellen101
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posted
How much and what type of magnesium are you using?
Posts: 1750 | From United States | Registered: Dec 2011
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posted
I did. I upped the magnesium high enough to tolerance and I still twitched for a few weeks and then it started to slow down. I also do B12 injections.
Some times it felt like parkinsons but I believe it was herxing. I use flagyl which is a cyst buster like tindamax. It got a lot better with time.
I would tell my LLMD about it. You might just have to ride it out.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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posted
Symptoms are verbatum to my wife's symptoms eight years ago. I.V. magnesium at the ER would slow the full body spasms down but they always returned. I.V. valium at the ER would have a similar effect.
My wife was correctly diagnoised with Bartonella and prescribed Bactrim. Since Bactrim is a sulfa drug and my wife has a minor allergy to such drugs, she was advised to take over the counter Benadrill to midigate the minor allergic reaction to Bactrim. Spasms are long, long gone now but she still has some toe twitching. She is not cured.
Before Bartonella was diagnoised she took bottle after bottle of vallium without lasting relief to calm the spasms and keep her out of the ER. Before the valium she was going to the ER by ambulance at least once a week.
I feel so very sorry for all of you people suffering needlessly with tick borne diseases.
Posts: 6 | From Northeast | Registered: Dec 2012
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Your body needs Vitamin D to absorb the magnesium.
Boron will help keep the kidneys from filtering out too much magnesium into the urine.
Zinc supplementation has been shown in various studies to be beneficial in the treatment of anorexia even in patients not suffering from zinc deficiency, by helping to increase weight gain.
Source: Birmingham CL, Gritzner S (2006). "How does zinc supplementation benefit anorexia nervosa?". Eating and Weight Disorders 11 (4): e109�11. PMID 17272939.
I'm taking 5000 units of D3 daily, along with my fish oil, as D needs fats to be absorbed. Boron is very inexpensive.
Aim for about 15 mg of zinc daily.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TAURINE comes to my mind as possibly deficient (in light of your being vegan).
If taurine is deficient, it can cause some very serious damage to the nervous system (spasms, weakness) and vision issues, so find out exactly how much you are getting each day in the TPN or supplements.
Taurine is not stored or manufactured well by the body and is only in eggs, muscle meats and fish. Therefore, vegans must supplement.
I did not know this for the years when I followed a vegetarian diet. I wish I had.
CLA was also missing and that could have helped. CLA is conjugated linoleic acid, mostly from GRASS FED BEEF - but you can find it as a supplement, too.
Since you don't take fish oil, be sure your OMEGA oils are in synch. Not all kinds of even the good vegetable oils contain all we need or in the right balance. And our nerve cells really need these good fats to help with signals to our muscles. -
[ 02-07-2013, 04:01 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Magnesium injections are the only thing that helps mine. The oral stuff just doesn't work.
Posts: 3528 | From US | Registered: Apr 2007
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
Ivermectin for parasites made a fast radical difference for me. I have taken it every other day for a year . I think parasites are a big part of our problems and almost totally ignored , which may explainwhy so many of us take ABX and meds and do not get well .
The herx from ivermectin was profound , which indicated it was targeting a pathogen involved with being sick or my "lyme" Dx .
Ivermectin / praziquantel combo has eliminated most twitching and asthma or breathing problems.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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glm1111
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Member # 16556
posted
I totally agree with annxyzz, I have felt for a very long time that you need to treat for parasites.
I know you are going through a lot, but I really think the parasites are causing a lot of your problems. Has your doctor considered this approach at all?
P. S. It can def account for your gastropraresis and weight loss because they consume half of what you eat. The twitching is a big flag. Google parasite symptoms
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Carol in PA
Frequent Contributor (5K+ posts)
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posted
Jessica has not posted in more than a day, which is unusual for her.
If anyone has her phone number, please call her and check on her.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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posted
Hi Carol...I am here, thanks. My fiance and I traveled back to his home state of Maine and are bracing for the blizzard that is about to hit.
I have been pretty sick, hence my quiet. Thanks for the concern. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Take some amino acid supplements (like taurine), make sure you're using a magnesium supplement that's appropriate. Avoid magnesium stearate or magnesium oxide, or "magnesium/calcium" tablets. For magnesium supplementing, I recommend magnesium chloride or Dr. B's favorite, magnesium L-lactate (used in "Mag-tab SR" caplets from Niche Pharma., avail at Wally World). Also, good natural sources of calcium are leafy greens like spinach.
I also recommend doing range-of-motion excercises every day, along with a quarter hour to eventually 1 hour of non-aerobic exercise every *other* day (build up as energy allows).
If the twitching's really bad, I'm suspecting that you might talk w/ your doc & consider a prescription "benzo" (benzodiazepine) like Klonopin, but limit it's use as it is addictive.
You should also see the twitching slowly clear over the coming weeks with further abx treatment. Good luck!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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CD57
Frequent Contributor (1K+ posts)
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posted
Annyzz are you still taking the Iver, how much every other day? I take a high dose once/week and don't think this is enough. My twitching has returned!
Posts: 3528 | From US | Registered: Apr 2007
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