posted
These are the Igenex results for a 12 year old child with some crazy symptoms that may or may not be Lyme related. We have not done the co-infection test yet and are still searching for an answer for him. He suffers terribly.
IGM All bands deemed "-" except for the band 41kDa which is IND.
IGG All bands deemed "-" except for 34, 39, 83-93 kDa which are all IND. Positive "+" bands are 41 and 58 kDa.
Thank you for looking at these test results and providing your input.
Posts: 121 | Registered: Sep 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Is some doctor telling you this "negative for lyme"?
No child can have crazy symptoms, sadly. I'm sure he is very ill and there is a very real explanation.
No, I do not think lyme can be ruled out. Lyme is never to be diagnosed by any test alone, anyway.
ANY postive band -- or even ANY IND BAND on either IgM or IgG matters greatly -
- along with a history of symptoms & clinical presentation as he presents ("he suffers terribly") Sure points to lyme as I see it.
I'm just curious as to why the rush to think it's not lyme? Sounds like a regular doctor who is not well enough educated. I hope you can get to a LLMD for a better assessment.
I'm sure this must be very rough for you both. And, this being a Friday evening, calls must wait until Monday. However, you might gather some LLMD options from your local lyme support group over the weekend.
Take care and good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- See the Western Blot explanation posted below that explains that even one IND can point to lyme.
I consider an IND to be a positive, actually. It's measuring, showing, registering something, that's not fairy dust. More detail here:
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Is this the same person? this past Sept. 27 you posted:
"Family member just pulled an engorged tick off of his neck." (end quote)
If so, I'd say that it's lyme for sure, then, in light of symptom development and tests. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- J-dog,
Looking back over your posts, I see that have asked about complementary treatments and that you are struggling now with Cowden maybe being too strong for you.
My guess is that the alcohol tinctures could be a consideration. I can't do those at all so it just pops to mind.
Still, backing up but also keeping in mind that while it's best for him to see a LLMD or to a LL ND -- if you don't have access to either,
for you, and for your son, I wonder if a RIFE machine might be a good step right now. If you know someone (local lyme support groups?) or might be able to budget one . . .
ending withoug wrapping up the sentence (should be my signature line).
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
Thank you for your response, Keebler. No, this is a different person.
No, I am not rushing to think it is not Lyme. I just want to get some other opinions.
And, frankly, I am a little scared for it to be Lyme in a child so I guess maybe there could be a touch of denial present.
Posts: 121 | Registered: Sep 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
What are the "crazy symptoms"?
Bands 41 and 23 are often an indication of protomxzoa. Then there are all the other infections as well. As for borellia, you often do not get a strong positive result until you have treated. It would be a good idea to try antibiotics to see if there is a response.
Keebler is so right about seeing a LLMD. Mainstream doctors are actually afraid of diagnosing lyme.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Did the child take antibiotics prior to testing?
Seems like it could be Lyme? Is other testing being done like cortisol, vit. D, hormones...
Twelve years old is when my son started to crash. One theory is puberty and change of hormones etc... He went undiagnosed for nearly 3 years. If I could do it all over again, I would pursue the correct cause of symptoms with everything I had.
I can only assume what crazy symtpoms are. My son went there, and after 3 months of IV he returned. Over 9 months on IV so many symptoms improved. He continues treatment with an ILADS doctor.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
posted
Well, I see one confirmed Lyme band, 58, the heat shock protein one. 41 can be from flagellin of lots of spirochetes, including the Lyme one.
My opinion is that IND doesn't show up for no reason, that antibodies are lightly responding to very specific Lyme antigens.
I strongly urge you to seek out an LLMD for the child. You can ask in Seeking A Doctor.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Thank you for your responses. I think you all may be right: this child needs at least to be seen by a LLMD. It is too important to let these results slide.
Posts: 121 | Registered: Sep 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic