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» LymeNet Flash » Questions and Discussion » Medical Questions » NEED HELP! Downsliding fast and getting suicidal (Page 2)

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Author Topic: NEED HELP! Downsliding fast and getting suicidal
lax mom
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What about Glutathione? I can't detox and it's the only thing that helps clear my head of all the neurotoxins.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
Piegirl
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I tried some Glutathione in pill form which I guess is not the best kind and had some very weird reactions. Tried it a couple times. May try again as it has been about a month since I tried it.
Posts: 161 | From AZ | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Carol in PA
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I was having frequent reflux and heartburn.
I take Excedrin for pain, and I know that the aspirin in it may cause gastritis.
I had to be careful about eating before I went to sleep, as sometimes I woke up aspirating stomach contents...inhaling it into the bronchus.

I found out about d-limonene for reflux, and I was pleased with how well it helped.
After a couple bottles of that, I tried taking PepZin GI, and WOW, that worked even better!

You can look at reviews for both d-limonene and PepZin GI at iHerb.com.


Then last summer I began a trial of Berberine, using GlycoX.
http://www.goodstate.com/category/Diabetic-Formulas/D322/page1

Berberine is antibacterial and anti-inflamatory and found in several sources, including Coptis, Oregon Grape Root, and Goldenseal.


When taking Berberine, my pain and headaches improved, and I had a period of two months where I felt better than I had in years.
Much to my surprise, the reflux improved too, significantly.

I stopped Berberine for six weeks, and I gradually began getting some reflux again.
When I started taking GlycoX again, the reflux stopped.

If you've already tried d-limonene and PepZin GI, look into Berberine.

http://en.wikipedia.org/wiki/Berberine

Posts: 6956 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Piegirl
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I have been on PepZin for a month and I don't think it is doing much. Tried Berberine it caused my hypoglycemia to get worse. Thought about trying d-limonene but since it is made from oranges and any citrus makes my reflux worse. I'm a little afriad to try it.
Posts: 161 | From AZ | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
nefferdun
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Camel's milk is extremely healing for people with digestive problems. Here is a site about a young man who got parasites in Israel and was literally dying because he couldn't hold anything down. The day he tried camel's milk he began recovering.

http://www.camelmilkforhealth.com/ourStory.php

Email me and I will send you the name of someone who can send you the milk. It is raw so as not to kill the antibodies, which are similar to human antibodies - only much smaller. They are referred to as "nano antibodies" because they can penetrate deeply into tissues etc.

Camel's milk is helping children with autism, children that have allergies so terrible they cannot eat much of anything, and people with lyme disease.

You might also have protomyxzoa because it causes twitching, profound weakness, insomnia and can lead to ALS. It responds to ivermectin - an antiparasitic drug. I don't know if that would bother you or not.

You could follow the low fat diet first to see if you improve. You should eliminate meat and fat. You want to restrict your fat intake to 15 grams a day. The camel's milk has about 6 grams per cup but you only need 1 cup a day - 2 if you can't eat much of anything else.

I have trouble with drugs too. I was off and on them for over 5 years. The low fat diet helped me but I also take LDN and methyl cycle supplements. It sounds like you could really benefit from knowing your methyl cycle mutations so you are eating and supplementing properly. When you have these mutations you can't detox well but you can open those pathways so you are.


There is always a reason for what is happening. When you don't find the answer in one place, don't keep looking there. Look somewhere else. Look at protomyxzoa.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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tick battler
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So sorry you are having such a hard time. You have a lot of good options above and I know you will get better. I think the rife option is a great idea. Aloe is very helpful as well. The camel's milk could help - my kids are taking it and tolerating it well. Bone broth sounds soothing and healthy as well.

I have trembling and vibrating from parasites and then it became much worse after taking antibiotics to try to get rid of them. My EDS practitioner could see what was in my peripheral nerves and the drugs were there at very high levels. She was able to making a clearing rememdy from her EDS machine to clear the antibiotics out of my system using homeopathic drops imprinted with the frequencies of the meds that I took. It did help. Since my nervous system is a mess right now I have a very hard time taking drugs and have to stick with herbs. Even some herbs negatively affect my nervous system.

Maybe you can find a practitioner in your area that can make clearing remedies to get the abx out of your system. Our practitioner says it stays in the body for life unless it is cleared. She can test you and tell you every antibiotic you ever took, even those taken as a child.

One thought - do you have to have surgery right now - I guess you will have to weigh the benefit of the surgery to the exposure your system to more drugs.

I like Dan's idea of trying to rife away the H pylori. If instead you are interested in trying another herb to treat it, our practitioner uses pyloracil.

I hope you start to feel better soon.

tickbattler

Posts: 1763 | From Malvern, PA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
k84
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quote:
Originally posted by Piegirl:


I have also develped a rash when I started getting bad. I looks like little pimples or razor burn it's all over my thighs and butt. Sometimes there is little white stuff that comes out. It does not itch.


I have this too, except it is on my upper back. Sometimes, when starting a new abx, it would spread to my lower back and butt too.

My LLMD feels it is must likely caused by bart, as it almost goes away with bart meds and flares on anything else.

You are in my thoughts and prayers. I can comprehend where you are now.

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mlg
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Hi,

I think you might have bile reflux. I think many of us with lyme encounter this at some point, maybe at different levels. You should talk to your naturepath or LLMD about this. One of my LLMD gave me somehting for this. It mildly helped ironically what helped me more was Flagyl and pepcid AC, peppermint tea and probiotics (Kyodophilus and VSL#3). 1/2 teaspoon of baking soda some days. I think Gael is right I think it's parasites.

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Piegirl
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WOW! So many great suggestions as to what to try. It's going to be hard figuring out what roads to go down.

mlg- I have thought it is maybe bile reflux too. Since things for acid reflux only work a little if any. What did your doctor give you that helped a little?

nefferdun- I just started some methyl supplements in the last month. I don't think I can eliminate meat & fat from my diet as that doesn't leave me much to eat and I can't afford to lose anymore weight.

tickbattler- I'm going to try the rife for H-Pylori. I'm afraid not to get the endoscopy done due to how bad this is. I just need to know at this point for peace of mind. I am worried about the meds to put me out though. They tend to make me throw up the rest of the day.

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Carol in PA
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I was just looking at iHerb to see what was on special, and I started reading reviews for apple cider vinegar.

I have not tried it, but many people are saying that two teaspoons of apple cider vinegar help to stop reflux.
This comes in tablets also, with acetic acid, and the tablets seem to work too.


Seacure came to my attention a couple years ago, when some people here said that their LLMD recommended it for digestive problems.

Seacure Hydrolyzed White Fish Protein
http://www.iherb.com/Proper-Nutrition-Inc-Seacure-Hydrolyzed-White-Fish-180-Capsules/4950?at=0

Posts: 6956 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
tick battler
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Piegirl - whenever I have surgery I tell them that I am super sensitive to drugs and I basically interrogate them about what they are giving me and if they can give me a smaller dose. You have to be very vocal but I think it does help. Unless you say something, they often give the same dose to men and women, regardless of weight!

tickbattler

Posts: 1763 | From Malvern, PA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
sillia
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quote:
Originally posted by Piegirl:
I am worried about the meds to put me out though. They tend to make me throw up the rest of the day.

I agree with tick battler, talk to them beforehand about the nausea! Tell them you have experienced this problem before and want to know what they can give you to prevent it, or how they can adjust dosage to prevent it. Also ask what they can give you afterwards if you do get nauseous, and have a prescription or samples ready. Some anti-nausea meds come in suppository form which is useful if you can't keep anything down.

When I had some minor gyn surgery a few years ago, I asked to speak with the anesthetist beforehand. I told him I get TERRIBLE nausea from anesthetics. He listened to me carefully and added something into my mix for nausea, as well as tailoring the anesthetic drugs specifically for me. It worked! I was fine afterwards!

I think that anesthesiology is improving, at least it seems like they have more choices to work with.

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Lymetoo
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Sorry to hear that things are so rough for you, Piebird. I have one suggestion that I don't think anyone mentioned.

Flagyl can cause DEPRESSION! bigtime! Please ask your Dr if you can drop that one. What is your dosage?

Hope this helps!

--------------------
--Lymetutu--
Opinions, not medical advice!

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AuntyLynn
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Nefferdun -

Thanks for the camel milk link.

But frankly, after reading this story, it sounds like exactly the same benefits that folks talk about getting from whole RAW cow's milk!

Raw camel milk
Raw cow milk
How much different could the two be?

www.realmilk.org

For my money - the key is "raw."

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mlg
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Hi,

I can't find what they gave me but I know it was something with bile salts and ox bile.

I found this link:
http://www.consultation.ayurvediccure.com/how-to-treat-bile-reflux-naturally/

I also know mimosa puddica is for what in spanish we call "bilis" bile reflux.

I believe other natural pathic doctor should have treatments. Some things that helped peppermint tea, organic ginger tea, phenergan, baking soda, aloe vera.

Take care,

Posts: 722 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
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