canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Hi All,
This morning, while continuing my full-time work of determining what I can do to regain my life, I finally hit the jackpot and found, "Piriformis Syndrome".
Over the past 5+ years, I've asked a number of doctors, "I get a terrible nerve pain down my legs that starts with a feeling of fullness at the base of my spine � do you know what that is?", only to be met with a blank look. I've asked for MRI's, when no answer was forthcoming, only to be ignored.
So what's the deal? What are we, as patients, doing wrong? I am expecting too much in thinking if one presents a list of symptoms, that a doctor will figure out what is happening?
Best,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
well sorry to hear what you are going through.
We as patients are doing nothing wrong when presenting symptoms to a doctor .
we have all been on the Dr/specialist treadmill and only to be met with a blank look ,or told your old , crazy, its in your head etc . Just try to keep going forward ,
Posts: 238 | From Where | Registered: Aug 2012
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Thanks, lost.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
I still have problems with iron levels and cyclic inflammation levels. I had blood work recently looking for rheumatoid factor. It was negative. Unbeknown to me was the fact that the doctor also tested for babesia, which was negative 2+ years ago when I paid for a babs test through Igenex. If I have babs, it is a variant strain that hasn't a test for it yet. I wish he would do a bartonella test, but that will never happen. I have repeatedly said the "L" word to all my docs that I have seen. Some appear to listen but do not have the experience with Babs, Lyme or whatever to be useful.
We can only do so much as patients. That's why we congregate here passing along as much knowledge as we can as to what works for us--or not. Keep saying the "L" word. I know this doesn't work for some people, but I want the docs to know I won't be silenced. My symptoms are skewy enough that I can't be making this up.
Posts: 482 | From Oregon | Registered: Feb 2011
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posted
For those wondering what this is, here is a definition for you:
"Piriformis syndrome is a neuromuscular disorder that occurs when the sciatic nerve is compressed or otherwise irritated by the piriformis muscle causing pain, tingling and numbness in the buttocks and along the path of the sciatic nerve descending down the lower thigh and into the leg."
My sister had a problem similar to this, though it turned out to be something else. She went from doctor to doctor (sound familiar?!?!) and found the solution HERSELF! She was treated with Prolotherapy and got better.
"Prolotherapy is a nonsurgical treatment which stimulates healing. Short for �proliferation� therapy, Prolotherapy is also known as nonsurgical ligament and tendon reconstruction, or regenerative injection therapy.
Prolotherapy works by stimulating the body�s own natural healing mechanisms to repair injured musculoskeletal tissue."
Here is the doctor's YouTube video and explanation (he is the one my sister went to for treatment):
Hope this can help you. I know there are very few doctors like this one (he is a Physiatrist) who do this treatment. Call his office to find out if there is one where you live.
"Physiatry is a non-surgical specialty treating musculoskeletal and neurological conditions."
Note: I am in no way affiliated with any of this, just trying to help.
Posts: 9020 | From Illinois | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Google: UPLEDGER INSTITUTE -
Posts: 48021 | From Tree House | Registered: Jul 2007
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