posted
I have been on Ceften, Azithro, Minocin, Flagl since january 1st pulsing Monday,Wednesday,Friday 2 weeks on 1 week off
My treatment will be changing next week to Ceften, Azithro, Malorne, Artemisinin pulsing M/W/F one week on one week off.
I am terrified and have already sent a request to cut the dosage in half for the first week. I was wondering if anyone has any experience or recommendations with this combo.
I am in Canada and going to Washington, DC for treatment.
regards maps
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
| IP: Logged |
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I'm on Ceftin, Zithro, Bactrim, Plaquenil all IV. I've been on enough different regimines to realize that it's never as bad as you think it's gonna be...
posted
"My treatment will be changing next week to Ceften, Azithro, Malorne, Artemisinin pulsing M/W/F one week on one week off." Currently taking this plus Bactrim every day . It's been a good combo for me.
Posts: 520 | From Maryland | Registered: Jan 2007
| IP: Logged |
posted
I never did well with all that pulsing. I can guess who you are seeing. I did way better when I switched to another LLMD in the same area who did not pulse.
I use ceftin, bactrim ds, flagly (two weeks on and two weeks off) mepron, arteminisin 4 days a week, cryptolepsis and I am on IV Clindamycin. Now I am getting better.
Everyone is going to be on a different protocol. The same things don't work for everyone as we are all different in our infeection, genetics, how we live and eat, etc.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
posted
Heard back from the doc and a no to reducing the dose and no to taking a week off, suggested i stay on my current regime for another three weeks which i think i will do as i need to do my taxes and try to refinance my house - need the money for treatment, hopefully if i can do that then i will be one of the very lucky lymies.
Thank you for the input it is very helpful, i live on my own so was just wondering if I should have someone with me the first day my total daily dosage m/w/f including artemisinin is 5400mg t/f will be 6500mg
So do you think it would be necessary to have someone with me?
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic