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» LymeNet Flash » Questions and Discussion » Medical Questions » Alinia

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Author Topic: Alinia
Dartmccall
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Dr C had me on Factive then Tindamax but had to stop due to heart flutters and tachycardia. They now want me to go Alinia. I am waiting for authorization from ins to start two weeks iv rocephon 2 grams 2 times a day. But wants me to start alinia now. The tindamax for five days brought back lots of Lyme symptoms. Has anyone tried alinia?

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Dartmccall
Posts: 20 | From Tampa Florida | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
gmb
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It's on my List for next month. I hear it helps with real stubborn Babs cases and is also anti-parasitic.

good luck with the IV. Only 2 weeks?

gmb
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Dartmccall
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Seemed strange but he said possibly up to four. But 4 grams a day seems like an awful lot! I'll let you know how I do on Alinia. I think he's using as a cyst buster but I now have air hunger which I hope this will help with.
Thanks

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Dartmccall
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ktkdommer
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I have done 3 weeks of Alinia. The first week I swear it gave me protein cravings. I was ravished. Now I am taking it with no effects what so ever. I sort of was hoping for something that would say I was killing something. Not sure how long to keep on going.

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Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.
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Dartmccall
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Oh that's good news. I could use some cravings because I'm unable to gain weight. I'm having a hard time finding the drug because even Walgreens can't get it! Some kind of shortage. Hopefully tomorrow I will get it.

I'm still waiting for my primary to order Rocephon because Dr C will not actually write the script. I don't get it?!

Thanks

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Dartmccall
Posts: 20 | From Tampa Florida | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
Dartmccall
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@ktdommer. I forgot to ask if you're taking Alinia as a cyst buster or ??

That's what mine is for although I worry taking it before I start Rocephin because when I took Tindamax without an abx it stirred up Lyme pretty bad.

Thanks

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Dartmccall
Posts: 20 | From Tampa Florida | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
   

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