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» LymeNet Flash » Questions and Discussion » Medical Questions » i am admittied to a hospital right now.. help (Page 1)

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Author Topic: i am admittied to a hospital right now.. help
luvema
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i been on flagyl for a week and half..

i have uncontrolable sever head movements. my head moves on it's own really hard . sore throat

heart rate is 170

what is happining?
they seem to not have a clue

what ks scaring is the head movments. first time i ever get.

it's been happining for 10 hours

--------------------
Ema

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nonna05
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you poor thing,, first I'll prayer for you
do you have LLMD?

did you mention this,,,,,,,,many don't unless your already out there with label.
I still say chronic infection...still doing labs etc....also high virus

dis something feel different after 2nd or 3rd pill.
what else are you on

which disease was being treated at time


you could be having a major herx and had needed to start real slow..
this is a cyst buster and I think you opened some up,

do you have something besides tons of water with lemon
you need to get die off out of you

sounds like the movie
Under Our Skin

I've had smaller spasms
when Herxing/or very low on magnesium, IV


.I'd even ask for in muscle/butt shot more than 2-3 ml since that is what I took every few days
,,,can they get a bunch of electrolytes in you /fast/you could even be having a big potassium low,

I know someone who went into A coma/

I'm not a doc..just having ideas from history.

CSM start off with half, see how you do then a full packet,,It looks like Tang, supposed to pull stuff (die-off/toxins)out/

OK Em. I'm praying and listening to proverbs right now,,
Plenty other will follow and maybe not agree with a thing I said,

I heard cyst buster's can be tuff,but if you can get to the other side, maybe pulse in fewer days, that it makes a difference,.
Others have gone without, I don't know how,

It took me 4 different times to get past the 4th day mark ,after that I did the 14 day. survived.

I think it made a change for the better.

I think I lost feeling in lower half of body for 30 hours on first try.

Slow down, breath as a if you're being cuddled,


If you're alone get paper and pad, notes,
You can even ask for copy of labs right when they get them,,

,I just say I have to see it to absorb it in, with a big sorry.

check papers to make sure you don't get/approve chip being put in you.Unless you want it.

That's happened to 2 people I know and I didn't remember me until 2 weeks after hospital event.


praying, God be with you, it's scary....Nonna

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cozynana
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Are you still on flagyl? If so, so if they would switch you to another drug comparable that you know in the past you have been able to tolerate.

I had to go off of flagyl because of issues. It might be you are reacting to that drug.

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Tammy N.
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It could be that the flagyl was hitting something hard and this is how your body is reacting. I would try going off it and see if your head-jerking subsides.

Sending hugs. God bless. [group hug]

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Lymetoo
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Flagyl could be the culprit.. It can cause neuro problems.

Ask if they could give you a B-complex shot or IV. They may not though!

Hope they figure it out!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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poppy
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Sounds like a herx. It used to be said that the way to start this drug was very slowly, just a sliver of a pill and then work up.

Guess you can't do this in a hospital but alka seltzer gold can knock down a herx. One dose (2 pills) several times, hours in between. Don't overdo it.

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luvema
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i stopped the flagyl two days ago now...

the head movments are not improving. i am scared i'll stay like this forever.

i don't know's happening and they cant figure it out

--------------------
Ema

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treeinatree
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Do you already take cholestyramine?
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luvema
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i take it sometimes

--------------------
Ema

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treeinatree
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Do you think it would be worth trying a couple of small doses, appropriately away from any meds that you *need that they are giving?
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luvema
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im in the hospital, they gave me some meds to relax the muscle, but nothing is working.

they told me they never seen a reaction like this. few specilasts are working on this

--------------------
Ema

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BoxerMom
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I've had the head movements. Mine are not severe, and they are definitely related to Lyme and co.

This symptom can be part of any nervous system infection, and our population has many. It's possible the hospital will check you for infections, but the odds of them finding them all (or the most important ones) are slim to none.

You will likely be checked for autoimmune conditions. If steroids are prescribed, you may want further advice from an LLMD. Steroids are sometimes necessary, but can prove dangerous to disastrous for us. You would want help with that decision. Most LLMDs would treat the infections, even in the case of autoimmunity.

I'm sorry. It would be truly wonderful if we could get our needs met in hospitals, but that is rarely the case.

My head jerking resolved with ILADS-style treatment. When symptoms become this severe, it is dangerous to treat with a non-LL GP or to self-treat. You really need an LLMD to guide your protocol and manage herxing.

I know money is tight and you are hoping for a good outcome. You may want to check into grants and other types of financial assistance. They do exist.

I hope you can figure out a way to get the best care.

Thinking of you,
BoxerMom

--------------------
 - Must...find...BRAIN!!!

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Keebler
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-
This could certainly be a herxheimer reaction. But all kinds of "liver support" are not equal.

Cholestyramine can be a fickle lover. It can leave you feeling as if you are walking on air, lighter for it taking out some of the toxic waste products . . . or . . .

Cholestyramine can cause this kind of seizure (which is what it sounds like it can be - the muscles have been seizing in the most literal sense)

because cholestyramine can leave you severely deficient in minerals such as magnesium and taurine - and deficient in key vitamins.

There are other ways to support the liver without pulling out all the good nutrients your body and brain reqquire.

I wished they would have considered an IV magnesim, taurine with B-vitamins (as TuTu suggested).

Fish oil right now is also very important. Your brain needs nourishment. The liver needs support.

I've had this happen for these reasons and these things helped.

Of course, brain, spine imaging, liver & kidney checks are important. But, for now, the obvious seems nutrient deficiecies could be related and can't hurt to consider while all else is being sorted out.

Any new exposures the chemicals, etc?


TUMARKIN'S CRISIS? Sure could be.

I would also take a look at the inner ear. This could be a kind of Tumarkin's phenom. where the inner ear is trying, even violently hard, to correct what it thinks should be your position in space but all signals are haywire.

I've had this happen due to the inner ear issues.

Flaygl is ototoxic, toxic to ear system (the vestibular system) that whole inner / middle ear / balance system.

Most doctors also said they'd never seen anything like it and dismissed me, so many times. I'd even been thrown suddenly out of chair, or to the ground . . . as if shot out by a cannon.

To be on the safe side, of course talk to your LLMD.


A combination of an ototoxic drug and an inner ear system that is compromised - and a stressed liver - can result in a mix of seizure activity. The inner ear can trigger seizure activity and that can "seize" just about any activity and function of the body.

I think, though, that it would be a good idea to stop any medicine that is ototoxic, support the liver & kidneys for a while.

Certain herbal supplements might fill in the gaps. Allicin is the one that comes to mind. Olive Leaf Extract, too.
-

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BoxerMom
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FWIW, my symptoms get much worse when I'm undertreating. Flagyl alone would not be a good protocol for me.

I feel so bad for you.

It sounds like they are treating this as a med reaction. I'm sure they won't consider herxing.

Keep us posted.

--------------------
 - Must...find...BRAIN!!!

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Keebler
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-
While infection(s) are certainly important to consider & address (perhaps in other ways, a more comprehensive approach)

. . . I'm just grabbing for what has helped me in an adjunct manner for similar experiences:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123746;p=0

Topic: Magnesium & Taurine - LINKS sets


www.ncbi.nlm.nih.gov/pmc/articles/PMC1725934/

The role of magnesium in the emergency department


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=119810;p=0

Topic: Best way to control limbic seizures / overactivity?


http://vestibular.org/understanding-vestibular-disorder/symptoms

VESTIBULAR SYMPTOMS [note that nearly every one can go along with lyme or other tick-borne infections]


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS

OTOTOXIC medicines discussed - even after stopping a particular Rx, the inner ear can be off kilter for a while.

How to protect liver & kidneys - and ears - while taking meds that are required for good reason but can stress the ears . . . .
-

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luvema
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no improvement on head movement.
it's jerking forward and from side to side..

i am wondering how long it's gonna last. this is day 2

--------------------
Ema

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Tammy N.
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Hopefully the relaxers they give you will help, quickly.

In the meantime, try to calm yourself on a deep level....telling yourself this will pass....there is a healthy person inside and all will be well. Breathe deeply into your belly and believe you will be ok. Calm and soothe yourself deeply. Keep breathing.

God bless.

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canbravelyme
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Have you been to see an LLMD? You are fortunate to be in CA, as there are some excellent ones there. If you don't have one, post in, "Seeking a Doctor", or PM me, and I will make some suggestions. Or better yet, PM TuTu, who has the master-list.

Hope you feel better soon!

Best,

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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Keebler
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-
Be sure to get some liver support into your body in case the muscle relaxers stress the liver. If they do, they can also stress the inner ear - and if the inner ear is connected to this, well, it may still have it trying to figure out which way is up.

Try to rest with your head at a 30 degree incline. But not just your head, your whole torse from hips up should be supported with head/torso at a t30 degreee incline higher than feed.

You can do this with a few pillows, just so your neck or back don't get strained.

A 30 degree incline is the most neutral position for the inner ear. It' about what one or two bricks under the legs of the head of the bed would do.

GINGER CAPSULES and MAGNESIUM, & TAURINE would be what I'd ask friends to pick up at a health market. Ginger is especially good to help calm the inner ear but it, and others suggested, can also help reduce inflammation in the brain.

Just in case you might be vegan or vegatarian, that can result in taurine deficiency if not supplemented. Taurine deficiency can cause neuro damage. Taurine supplements can calm down muscle seizures.

DANDELION TEA or capsules might be a good basic liver support until you can figure out more.

And sublingual B-6, P5P, B-12 with folic acid. This helps the ears and the brain.
-

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Keebler
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STREP ? You mention a sore throat.

I hope they did a strep test at the hospital ?

I tend to focus on support methods and what can help right now. I'd like to think the doctors would have at least considered infection connection.

Any number of infections can cause your symptoms (including lyme but also some maybe not yet considered).

Strep can do this myoclonus jerking.

If your doctors at the hosptical did not consider it, I'd push for a strep test.

I WOULD ABSOLUTELY INSIST UPON A STREP TEST. Because, if strep, it could be fatal if left untreated.

Not to scare you but to hit home the importance of this. Sore throat, neuro-muscular "myoclonus" or whatever they want to call it -- together it says: test for strep.

As you are still in the hospital, it should be easy to request this. If they did one and it was negative, ask for another one, just in case.

Other than that, have they considered fungal infections? That you had such a strong reaction to flagyl could indicate a fungal infection going all "herxheimer"
-

[ 04-11-2013, 03:21 PM: Message edited by: Keebler ]

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Carol in PA
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Ema,
You took Flagyl for a week and a half.
When did the sore thoat begin?

Does the head jerking stop when you are sleeping?


Low magnesium can cause rapid heart rate and muscle spasms, along with many other symptoms.
Since you are in a hospital, I know you can't do anything without your doctor's orders.

See if you can request foods that are high in magnesium, like almonds and beans.
Kidney beans, black beans, baked beans, refried beans, bean soup, bean burritoes.

It would be faster to get magnesium via an intravenous drip or by intramuscular injection, but most doctors won't realize that you need it.


If this is low magnesium, it could be due to a herxheimer reaction to the antibiotic.
The liver uses magnesium to make glutathione, which it needs to detoxify the poisons left behind by the dead Lyme bacteria.
So you need to replace that, or you get symptoms.

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Keebler
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Speaking to the importance of glutathine, be sure to avoid Tylenol (acetaminophen) as that BLOCKS glutathione throughout our body and can make things so much worse.

Sadly, they pass this stuff out like candy in the hospital. Even one dose can block glutathione all through the body.

IV Magnesium is sometimes used in hospital and that is a good pain reliever, too. It can calm spasms very nicely.
-

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Keebler
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http://www.nytimes.com/2011/12/20/health/evidence-mounts-linking-acetaminophen-and-asthma.html?_r=1&src=me&ref=general

Studies Suggest an Acetaminophen-Asthma Link

- By Christie Aschwanden - The New York Times

December 19, 2011

Excerpt:

. . . Even a single dose of acetaminophen can reduce the body�s levels of glutathione, a peptide that helps repair oxidative damage that can drive inflammation in the airways, researchers have found. . . .
-

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Keebler
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Like others, I still think MAGNESIUM is the main thing to focus on getting into you. Still . . . in addition . . .

GLUTEN can also cause the symptoms you are experiencing. If you are gluten-free, be sure a trace has not sneaked past.

Gluten can cause brain swelling and all kinds of neurological symptoms, even up to 6 months after ingesting (for those sensitive).

I've had events as you describe happen 3 days after ingesting gluten unknowingly. It took several times to figure this out. Once a month, I used to go to a potluck and, each time, 3 days later, I'd get hit.

Turns out that I should not have believed others as to the ingredients they used.

ASPARTAME & MSG can do the same thing (and they hide under many names).
-

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Keebler
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Try your very best to have friends and family bring you REAL food.

Here's why:


http://drdavidbrownstein.blogspot.com/2011/07/why-my-mother-refused-to-eat-hospital.html

Friday, July 22, 2011

WHY MY MOTHER REFUSED TO EAT HOSPITAL FOOD

- By Dr. David Brownstein


Categories of chemicals in this group are no better for those in hospital than for anyone else, yet hospital food is swamped in additives such as these:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors
-

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luvema
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ct scan is normal..

neruologist believes the head shaking will go down on it's own in few days.

called LLMD, she wasnt sure why I am having this reaction.
therfore, she told me see what the doctors tell you.

most doctors tell me they never seen such a thing.
still in the hospital feeling horrible, and I can't sleep.

i just want to go home but they are not letting me because my heart rate is 200 when I stand up and 140 laying down.

any ideas? since everyone doesnt seem to know what's going on?

--------------------
Ema

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Keebler
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Did you get a STREP TEST?

Have you asked about IV MAGNESIUM & TAURINE with some other nutrients (as you can't just put that into the blood vessels alone).

MAGNESIUM & TAURINE are your best bet to help regular blood pressure and heart rhythm and that can cover several other bases - and will help you rest, too.

IV GLUTATHIONE could be very good, too. It's turned around many such instances for several with lyme herxheimer reactions or liver dysfunction.

Avoiding gluten, acetaminophen & food additives (which are neuro-toxic & also neuro-excitatory and can clobber abilitity to sleep)?

I know all this seems like a lot of stuff but it all matters, all of it.
-

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canbravelyme
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It just so happens that I'm realizing how much havoc Dysautonomia can wreak. I believe the jump in your heart rate between sitting and standing could be a symptom of POTS (a form of Dysautonomia), so I did a search and found some are complaining about myoclonus (involuntary jerking) in conjunction with Dysautonomia: http://forums.dinet.org/index.php?/topic/18800-myoclonic-jerks/

Please get them to check for this � be advised that if they do a tilt-table test to diagnose POTS, they may want to use a drug to stimulate your heart which, if I were you, I would determine whether it was absolutely necessary to take, considering you're having some kind of physical crisis.

Dysautonomia: http://en.m.wikipedia.org/wiki/Dysautonomia

BTW, Dysautonomia is, from what I can tell, fairly common with Lyme.

[group hug]

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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Lymetoo
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Keebler .. respectfully .. Please don't hound her. A person in a hospital has only so much control over things.

luvema.. Have they checked your heart as well?

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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Sorry, did not mean to be hounding. I replied with key points to the last post where she had just posted when her doctors came up with nothing . . .

"most doctors tell me they never seen such a thing. . . any ideas? since everyone doesnt seem to know what's going on?" (end quote)

I thought maybe if she could still ask them, it would help. They are key points.
-

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Lymetoo
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Perhaps "overload" would have been a better choice of words. I apologize. I'm losing my vocabulary! [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Robin123
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I read through this and don't know more to add. Flagyl herxing makes sense to me. What I'm wondering is if that is the case, shouldn't your LLMD be more involved?

I would think LLMDs would know about herxing and what to do, or should be in touch with other LLMDs about what to do. And, be in touch with the hospital personnel about it. -?

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Lymetoo
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The only problem is that most LLMDs do not have hospital privileges and hospitals don't want to listen to them then.

luvema may be able to relay info from her LLMD though

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--Lymetutu--
Opinions, not medical advice!

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canbravelyme
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She said she did, and that her LLMD didn't know what could be causing it (see above). And yes, Robin, one would think if she didn't know she would consult w / someone? What is it with doctors so rarely consulting w/ each other? I do so in my field all the time!

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Robin123
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Hi there, Canbrave...

I would think that LLMDs can consult with one another, even through ILADS? They should be able to recognize symptoms of herxing and be aware of good approaches for dealing with that.

If I were having a medical crisis due to Lyme treatment, I would want my Lyme doctor to be on top of it and finding out from other LLMDs, if they didn't know what to do themself, and relaying info to me at least about what to do. Yes, I know it's tricky with the hospital privilege issue.

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Lymetoo
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I'd better keep my little mouth shut! [bonk]

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--Lymetutu--
Opinions, not medical advice!

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Keebler
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-
She needs Bea Seibert there to light a fire under the doctors, for crying out loud. Bea would see that no stone went unturned.

Haven't seen Bea for a while, hope she is okay.
-

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luvema
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in the hospital they want to order a lyme disease test, I told them it wont e accure and they said they'll try to do their research. I am at a good hospital with a team of speciliets working with me. just so far it's a puzzle.. i been put on iv fluids two times.

strep throat I had that test done a week ago it came back negative.

i cant fall asleep because everytime I close my eyes I get a senseation that my whole body is rocking when it's not.

i feel weird and very weak.

someone mentioned pots, I've done a tilt table test years ago. I think I might have pots, but what is causing all this?

this is really strange to me. My whole body keeps shaking, my head especially. I am scared, I try to keep calm as much as possible, but I am afraid

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Ema

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luvema
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carol I always had sore throat. it comes and goes. I had it before I started flagyl and while on it.

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Ema

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Lymetoo
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Is it any better since you arrived at the hospital?

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--Lymetutu--
Opinions, not medical advice!

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canbravelyme
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Lyme can cause POTS / Dysautonomia (there are different kinds, not just POTS); there is some "alternative" discussion that there may be a hormonal connection; Familial Dysautonomia is a rare genetic condition found in Ashkanazi Jews; finally, I've read many people have POTS or other Dysautonomia of unknown origin...

Personally, I don't see the point of their focusing on Lyme when you're having a physical crisis � Lyme attacks various systems, and I think the first order of business should be finding out what the h*ll is causing your heart rate to shoot through the roof, as well as what is causing the myclonus, and getting those symptoms under control. Maybe they think If they put you on IV abx, that could stop it?

Will your LLMD come to the hospital tomorrow, see you and speak with the doctors? I would encourage her to do that.

Crappy disease. Sorry you're going through this [group hug]

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For medical advice related to Lyme disease, please see an ILADS physician.

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canbravelyme
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I re-read your post, and I'm thinking you're asking not what could cause Dysautonomia, but what could be causing your symptoms. What I'm saying is that Dysautonomia could be a possible explanation for your symptoms:

Here's a list of symptoms from Wiki: The primary symptoms present in patients with dysautonomia are:

Excessive fatigue
Excessive thirst (polydipsia)
Lightheadedness, dizziness or vertigo
Feelings of anxiety or panic (not mentally induced[citation needed])
Rapid heart rate or slow heart rate
Orthostatic hypotension, sometimes resulting in syncope[1] (fainting)
Other symptoms frequently associated with dysautonomia include: Gastroparesis (delayed gastric emptying), headaches, pallor, malaise, facial flushing, salt cravings, mydriasis (abnormal dilation of the pupils), constipation, diarrhea, nausea, acid reflux, visual disturbances, orthostatic hypotension, numbness, nerve pain, trouble breathing, chest pains, in some cases loss of consciousness and seizures.[1] Dysautonomia can also present with orthostatic hypertension.[2] A full list of symptoms may be found at the Dysautonomia Information Network.[3]

I am NOT a medical doctor; the body is very complex, and many of the systems all work together, which is why a doctor has to ultimately figure this out. That said, if they're not coming up with answers, I think making queries about possible diagnoses is entirely reasonable.

All my best wishes,

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tick battler
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So sorry you are having these symptoms. My guess would be either a herx reaction to flagyl or a type of PANDAS reaction to strep. Can you have them check your ASO and Dnase B titers? It is a simple blood test. Even if the strep swab is negative (which it often is, even if there is strep present), these tests could show high strep.

Flagyl does hit a lot of infections and it is possible it set off a huge neuro herx. Can you get someone to bring you some clay or other detox agents? Bentonite Clay works well for us.

My son used to get motor tics when he was highly infected with lyme/coinfections/strep. He had head turning that he couldn't control and would ask me to hold his head still sometimes. The tics would increase with certain meds that caused herx reactions. Now that his infection load is down, the tics have disappeared.

I hope you feel better soon!
tickbattler

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Rumigirl
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Ask the drs to give you an IV of magnesium. Usually, it is given as 1 gram of magnesium sulphate or chloride in 20 ml of sterile water over 5 or 10 minutes in an IV push---or as a drip. 2 grams would even be fine. Diluting it further is fine, also.

It is not so unusual for this to be given in a hospital anymore. They could give you one or more of these per day until your symptoms resolve. This helps with nerve, muscle, and heart problems, as well as anxiety.

Can anyone bring you the alma seltzer gold to stop a herx, as someone mentioned above? you could just drink it down, so as to clear your herx, if that is what this is, which seems more than possible.

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Carol in PA
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Alka Seltzer Gold?
I looked for it at Amazon, and reviewers were saying that they couldn't find it at the stores.
So Ema's family would likely have problems finding it.


"Contains heat treated sodium bicarbonate 1050 mg and citric acid 1000 mg."

Dang, wouldn't this be the same as mixing a teaspoon of Baking Soda in a glass of water?
Baking Soda is sodium bicarbonate.


Well, people use Alka Seltzer for hangovers, so it must do something good for liver function.
I know that sodium bicarbonate can neutralize excess acidity in the body.


Rumigirl said, "Ask the doctors to give you an IV of magnesium."
Hmm, do you really think they will listen to a 21 year old, whose internet friends are advising her?

I agree that an intravenous dose of magnesium is a logical idea, as she is having symptoms of low mag.
And because she has Lyme and recently took an antibiotic known to kill Lyme.
Which can cause a Herxheimer Reaction.


Alka-Seltzer Gold Tablets, Non-Aspirin
http://www.amazon.com/Alka-Seltzer-Tablets--Non-Aspirin-36-Count-Boxes/dp/B001G7QRV2/

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Robin123
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The hospital will not do a decent Lyme test, and that doesn't happen soon enough anyway. Someone more knowledgeable about you needs to get involved, and that person should be your Lyme doctor.

Am wondering if you can ask the doctor to visit you in the hospital, as CanBrave suggested, so you'll have someone you can talk it through with? Also I think the doctor should be consulting with other LLMDs about your symptoms.

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Keebler
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-
In the meantime . . .

MAGNESIUM IV needs not mention of lyme at all. It treats so many of the symptoms you have. Same with adding TAURINE in with that.

Both will help correct blood pressure & heart rhythm irregularities . . . relieve muscle spasms, myoclonus, tonic muscle spasms . . . pain . . . inflammation . . . inner ear distress . . . .

If they do a magnesium test, a serum test will not work - it must be INTRACELLULAR, to see what's inside the cells. Chances are you are low and that would warrant IV Magnesium.

As for GINGER Capsules, with the rocking sensation you have, that could be an inner ear symptom, even medical abstracts at PubMed post that ginger helps with vertigo symptoms - and it can lower inflammation.

They may not have Ginger Capsules in the hospital but if your friends or family could go out and get a bottle, your doctors might be fine with you adding that.

At least Ginger TEA is something you should be able to use - but the capsules have a far better effect on the inner ear to calm the "rocking". Magnesium should help with that, too.


Is there an advocate from your local lyme support group who may be a good solid voice for you?

I hope you don't sign for any more lyme tests to be done. You don't need them, they will not be done correctly by the right labs and then could hurt you down the road - and you will have to pay for that.

ADVOCATE from your lyme support groug ? Not to get lyme treatment as that is just not going to happen in any hospital in the U.S. -- but so that you can have a voice for some of the other common sense approaches to symptom relief that they doctors are ignoring.

An Advocate might be able to look into the kind of strep test they did before. I wonder if a repeat might be better. STREP could be causing this, an advocate could look into PANDAS.

Other than being certain strep is not an inssue . . .

Main Goal: relieve symptoms and get you out of there. You will not get all your answers, still, the goal is to stabilize and go home.

Your best chance that you are most likely to be able to get is IV Magnesium & Taurine, with Glutathione.
-

[ 04-12-2013, 12:19 PM: Message edited by: Keebler ]

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poppy
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Most hospitals will not listen to lyme doctors, especially not ones that don't have admitting privileges.

I think it is a mistake to let them do a lyme test, knowing how inaccurate they can be. The hospital will not treat you for lyme, so what is the point of this?

Think I found alka seltzer gold in a CVS drugstore. Not sure though.

The IV magnesium and glutatione suggestions sounded good to me.

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luvema
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my doctor at the hospital is willing to talk to my LLMD to understand the suitotion, but she isn't giving her number to talk to him... this is frustraiting

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Ema

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luvema
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i am at a research hospital, and they want to know everything about lyme from my lmdd because he said their understanding it of it is minimal and they want to talk to my lmdd

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Ema

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