posted
I posted in another thread about having visual snow and related vision issues.
I also had some form of infection with low igg subclasses and cd8/cd57.
It turns out that I tested extremely high for mold exposure and one test negative but the other extremely high for babesia.
Unfortunately I couldn't speak to my doctor and the nurse would only tell me what the results were, not what they mean.
To me it looks as if it is a mold infection and a strain of babesia.
When I had lyme and was treated I did not have babesia, or it was taken care of with the lyme (doxy, biaxin, metronidazole).
For those that don't know me or didn't see my other thread, I was treated for lyme for 15 months successfully. About two months later I was bit again. A month or two after that I began with visual snow, slight occasional fatigue, and twitching.
About eight months later I had surgery with a cortisone injection, the next day and the following week I had a 105 temp. I was also vomiting, diharrea, and achy joints and muscles.
This went away, but I continued getting temps from 100 to 102 about every three weeks for about a week at a time. With it constant fatigue, brain fog, word block, excessive sweating, night terrors, sleep disturbance, foul smelling sweat, halitosis, nerve issues and various others.
My lyme western blot and elisa(sp?) were negative, the only abnormality being the low igg subclasses, immunogloben(sp?), and mthfr a1298c mutation. That until the recent test showing babs and mold.
My question for all of you with any experience with these is what to expect? Could the babs or mold cause the nuero issues and vision problems (which I suspect is optical neuritis)? And how is babs and mold treated?
For the mold I know that during 2007 I was living in a building that was absolutely infested with black mold for about six months, even worse was a pretty strict physical fitness routine that I did inside this building.
Anyway, as I said before, I do have extensive experience with lyme and treatment. My doctor is fantastic and I trust with no question. If anyone has any lyme related questions feel free to pm me, but please if you have any experience with visual snow, the nuero issues, babs, or mold share with me! = )
I really thought I have lyme again because fatigue and nuero issues were two of my biggest symptoms, when I got these results I was relieved to finally know what's going on but confused as to whether I do have lyme again or just the babs and mold.
Thanks all for taking the time to listen and/or respond.
Posts: 80 | From US | Registered: Aug 2011
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posted
In my opinion babesia by itself could cause all of the symptoms you list.
But if I were you I would also want treatment for lyme. If you do have babesia then that would weaken your immune system and any lyme that had gone dormant could be reactivated.
I would want to cover all my bases so to speak.
It depends a lot on what species of babesia you have as to how aggressive the treatment will need to be. Babesia duncani or WA-1 is much much more problematic than babesia microti.
Babesia requires multi drug cocktails and a minimum of 4 or 5 months of treatment -- but for really entrenched cases it can take a couple of years of treatment.
Depends a lot on who your doc is as to the treatment.
Most docs have favorite meds and some will not prescribe some of the babs meds due to potential side effects. Quinine and clindamycin is the cheapest route but very few docs will prescribe that. Mepron and Zithromax is the "standard" but mepron seems to not be as effective as in the past requiring very high doses which are very expensive.
Herbals can be very helpful, but probably need to be combined with prescription meds.
Lumbrokinase or something similar for hypercoagulation is a must in babesia treatment in my opinion.
Many of the babesia meds can affect the heart so that is something most docs keep a close eye on.
If the treatment was bacteriostatic then hubby just seemed to feel better on the meds, but if it was bacteriocidal then the herxes frequently resulted in ER visits so it can be a real balancing act to find meds that work but don't incapacitate a person.
The first step in mold treatment would be to move out of a moldy environment. Otherwise I am not sure that treatment would do much good.
Good luck.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Thank you for the info! I should have been out of the mold for a few years as far as I am aware.
Posts: 80 | From US | Registered: Aug 2011
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