LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » ? For parasite experts

 - UBBFriend: Email this page to someone!    
Author Topic: ? For parasite experts
jwall
LymeNet Contributor
Member # 22999

Icon 1 posted      Profile for jwall     Send New Private Message       Edit/Delete Post   Reply With Quote 
My LLMD approved Dr Ks parasite protocol, so I will be starting that on Monday. He said I need to be closely monitored and to make sure I have plenty of detox strategies on board as well - hydrocolon therapy, coffee enemas(never done this, so need to figure out how!), parsley, lemon water, alka seltzer gold and glutathione. He also said to take xylitol and lactoferrin, as well as samento and banderol to help dissolve biofilm.


I am trying to figure out a good schedule for all this. He also said to do IV chelation every 3 weeks. Would this be ok to do while on this heavy parasite protocol?

So if I do one hydrocolon cleanse per week, daily coffee enemas, drink parsley smoothies and lemon water, and add in chelation every 3 weeks, does this sound good?

What else should I be doing during this time to maximize benefits of the treatment. Is there a certain binder I should be taking?

Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I would recommend adding chlorella daily. I'm sure others will add more

gmb

IP: Logged | Report this post to a Moderator
sillia
LymeNet Contributor
Member # 23994

Icon 1 posted      Profile for sillia     Send New Private Message       Edit/Delete Post   Reply With Quote 
Please be careful to start out slow with the parasite meds, in case you get bad herxes. Perhaps some people can tolerate that protocol, but I'm pretty sure it would kill me, along with the parasites! Kidding, but the worst most terrible herx I ever had was from taking the 'recommended dose' of albendazole. I also herx badly on the other ones, too.

In my case it may be that I have a hyperinfection of these critters, so killing a lot of them off at once releases a huge dose of toxins. It is also the case that I don't detox particularly well and herx a lot anyway. You have to tinker around until you find out the appropriate doses for YOU.

You want to kill off parsites, of course, but not make yourself sicker in the process.

Posts: 261 | From Nebraska | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
GiGi
Frequent Contributor (5K+ posts)
Member # 259

Icon 1 posted      Profile for GiGi         Edit/Delete Post   Reply With Quote 
It is important to treat KPU to eliminate lack of important minerals/enzymes. When killing parasites, if your body cannot respond to the toxins they release (metals, etc.), it will not be a good experience.

You will find plenty of links here to learn about KPU when doing a search.

KPU is often overlooked.

Take care.

Posts: 9834 | From Washington State | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
jwall
LymeNet Contributor
Member # 22999

Icon 1 posted      Profile for jwall     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I shouldn't just jump right into this parasite protocol? I have been on antibiotics for almost 3 years. I am very sensitive and can only handle ONE flagyl pill- 2 baby doses one day per month!

My Dr. told me alinia is very similar to flagyl and Dr. K recommends 14 days of it. I am worried. I don't know that I will be able to tolerate any of it.

I have the mthfr mutation - two copies of the C one which means I have a hard time detoxing. I can't even handle taking methylfolate and felt like death on deplin.

Now I'm not sure I should be doing this protocol.

Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
jwall
LymeNet Contributor
Member # 22999

Icon 1 posted      Profile for jwall     Send New Private Message       Edit/Delete Post   Reply With Quote 
and I don't understand KPU - that is WAY over my head.
Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would start with antiparasitic herbs and salt/c, both at low doses and ramping up if you are that sensitive. This might be easier for you to start with than the pharma meds.

This is what helped me the most. The sea salt and vitamin C also support the adrenals which might be very helpful for you since the adrenals play a big role in getting rid of infections.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
slayadragon
Member
Member # 16153

Icon 1 posted      Profile for slayadragon     Send New Private Message       Edit/Delete Post   Reply With Quote 
My experience is that the parasites themselves are much less of a problem than the metals that they sequester.

My first time trying to kill the tapeworm in my small intestine with prazaquantel, a year ago, I went overnight from mostly functional to bedridden for months. The toxic release didn't feel like mold or Lyme toxin, more like metals of some sort, and that was consistent with some research studies I found suggesting that fish tapeworms could sequester something like 500x as much lead/cadmium compared to the level of those metals in the fish that harbored them, and that the tapeworms thus were likely keeping the fish from getting sick.

So killing parasites is something to be done with care. And the fact that they can do such a good job sequestering metals probably is why they have sometimes been suggested to be a good thing (e.g. look up "helminthic therapy"). This makes a lot more sense to me than the hygiene hypothesis, which just sounds lame to me.

Reading posts from this board (especially from Gigi) was the first time I've seen anything from Dr. K about the idea that killing parasites can create a big toxic metals release. Though based on my own experience, it would have been pretty hard to miss!

Eventually last year, I gave up on trying to kill the tapeworm and just let it grow back. And I went back to mostly functional again.

In the meantime, I've realized that EDTA and DMSA suppositories appear to be really helpful for me with metals excretion, and (in combination with coffee enemas, juicing, supplements and other detox strategies that I was using last year) I seem to have made a lot of progress on that front. So I decided to try attacking the tapeworm again, this time with herbs and diatomaceous earth rather than drugs.

The suppositories do seem to be helping with the renewed metals release. If I use enough suppositories (and sometimes this has been 5 per day, e.g. half of the dosage I'd get in an IV), the sweats/vomiting/hot flashes pretty much stay under control. Admittedly I've been mostly horizontal for a couple of weeks -- my system seems to want that.

How long this will go on, I don't know. It feels like getting rid of this thing is really important, possibly the last bridge to becoming really well. But in general, as with everything with this disease paradigm, it seems to be the toxins that are the real sticking point. If it were just the parasite itself, without all those toxins sequestered in it, getting rid of it would be no big deal, I don't think.

Ideas with regard to how to get rid of the tapeworm while experiencing as few negative symptoms from the metals being released would be appreciated.

Posts: 35 | From Chicago Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Slayadragon, did you get a chance to try albenza? It's supposedly good for killing tapeworms too. That is interesting about the lead with fish tapeworms.

Maybe try parasite herbs and meds. Gael's parasites endured six months of parasite treatment before they finally released. She said it was adding salt C to parasite herbs.

I wonder if the metals are behind these critters not dying. How often did you do the dmsa/edta suppositories (daily?).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
slayadragon
Member
Member # 16153

Icon 1 posted      Profile for slayadragon     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had used herbal parasite treatment (conventional combinations, mimosa pudica) prior to last year but never got that big toxin release. The parasite had a very strong life force, it seems.

The praziquantel (just one dose) clearly did a good job of killing the tapeworm. It was very dramatic. So finding a more effective medicine did not seem to be necessary.

The head apparently stays lodged in the intestine, allowing the tapeworm to grow back when conditions become more favorable, unless you hit it a couple of times with the praziquantel though. I was supposed to take another dose of it, but finally decided that letting the parasite grow back was preferable to having all that loose metal in my system. I was really sick and weak for a while as a result of it.

This time, with a combination of diatomaceous earth and pretty standard anti-parasite herbs, I've gotten almost as much of a rapid dramatic effect as I did with the praziquantel. My immune system is stronger than it was in the past, when I was just using herbs, I think. Probably that has been helpful.

In general, I really don't think that killing these things is the issue. They're not a good thing to have in the system, because they siphon off nutrients (e.g. fish tapeworms cause frank B12 deficiency). But it's really the toxins that are the problem for us, I think.

So I'm not really looking for something that's more effective at killing it, but rather a way to escort out the toxins effectively as it's dying off.

Before I started attacking the parasite, I had been doing about 1 suppository daily. (10 Medicardium suppositories are supposed to be equal to 1 IV.) But I've been doing at least 2-4 per day over the past couple of weeks, and I'm wondering if even more would be better. It's sort of expensive though.

Posts: 35 | From Chicago Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
slayadragon
Member
Member # 16153

Icon 1 posted      Profile for slayadragon     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/122419?

From Gigi:

I am quoting here Dr. K.'s exact words as he spoke in 2004 - 2 0 0 4 -- I have repeated these thoughts many times since 2004 and have become more and more aware of this happening over the last ten years. In his words:

"We know that parasites, most of the roundworms and tapeworms have an unbelievable ability to store large amounts of metals in their skin without being metabolically disturbed by it.

When a patient has amalgam fillings, usually on a daily basis this nice stream of mercury and tin and other trace metals is coming down, and the worms immediately take that into their coat � they are like a knight in shining armor.

They become completely invulnerable to our own immune system because one thing our white cells cannot handle in large amounts is mercury.

Our white cells die when they try to gobble up the mercury. They commit suicide. And it doesn�t help the organism, because when the white cell dies, it releases everything it has stored back into the system.

Metals are not �metaboliz-able�. They cannot be transformed into something else that�s not disturbing. Once they are released again, they are just as toxic as they were before."

Treat the toxins that are being released when you cause die-off of any microorganisms or even tapeworms.

Make sure you have the necessary agents on board:
all the necessary minerals as contained in CORE, which has been created to correct the missing agents when you fall into the KPU category.

Posts: 35 | From Chicago Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think you should start with herbs. I did pharma and did good on some of them. I did good with Albenza, Mebendazole, Mepron, tindamax, Art, but can't tolerate Alinia for long periods of time, only 2-3 times a week.
Posts: 697 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
jwall
LymeNet Contributor
Member # 22999

Icon 1 posted      Profile for jwall     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well I spent $300 the other day and have all the meds. I will start and see how I do. I did really well on mebendazole, but I predict I will have a hard time with some of these. I get IV nutrients, so that will help with zinc, vitamin C, magnesium, etc.

If I start to feel really bad, I will back off. Thank you for all the advice!!

Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.