But my favorite reason to send in my donation this week is because a certain duck told me:

``Stay away from that group on the Internet. They're crazy, they're depressing and they're just, uuhhmmmm, DANGEROUS!''

So hey, to all of you who are loony and dangerous enough to think
KNOWLEDGE IS POWER-

Write your check today.

We got the spirit, we're hot, we can't be stopped!!

lightfoot

to the ducks maybe!!

tROUT sCOUT

This Doctor, if I can use that word, is a moron who should not be practicing!

Docotrs are supposed to keep an open mind, to search for the best treatments and answers for their patients. These fools would not know a tick if it but them on the eye!!!! They are blind to the truth and their damn egos are hurting their patients!!!!

To everyone: NEVER FEAR TELLING YOUR DOCTOR WHAT YOU FEEL!!! Let them have it!!!!!
This is the only way they will get the message...LEARN YOU FOOLS!!!!!(DOCTORS)

We must push...they must give. They will never change unless there is a reason for them to do so...let US be that reason!!!

AHHHHHH let me at'em!!!!!

The paradox (Two Doctors?) is that most of the good LLMD's take advantage of the situation and charge through the nose!!!
LET 'EM HAVE IT HERE TOO!!!
The first thing a Doctor is sworn to do is care and treatment of the patient,,,NOT money first please. YES, I know, they are
allowed to make money, but how much is proper, especially when patients are broke because of their sickness!!!

Baaammmm!!!! Excuse me...I just wacked the wall....

Dangerous??? THANK YOU!!!!WHO"S NEXT?????

At least it was for my old GP.

The one that wrote me a prescription sayin that I should be allowed to lay on the couch while my husband took care of the kids, laundry and dishes and served me chocolate bon bons on a silver tray.

He lost the office fees from this WHOLE FAMILY!!

Yes, knowledge is power.

And it enables us to fire dem ducks!

------------------

So can we start calling ourselves the CDD?
(Crazy, Depressing, & Dangerous)

Noted side effects: consistent euphoria and enlargement of the heart, may be addictive but non-narcotic, considered at this time to be dangerous only to the status quo.

Pediatric dose: same as for adults, but more important to communicate details carefully, and consider unintended side effects.

Is Lyme Net dangerous? You bet your bootie it is!

I was a healthy, happy, and delightful person before I came to Lyme Net.

I accidently was referred here when doing a search on duck foods for my pet ducks.

I saw how folks were suffering and being ignored, and I thought.. "Gee, that looks fun... I think I will join them".

Since then, I have acquired nearly all the symptoms I have read about here.. just from seeing that this is the "cool" thing to do....

I have since completely lost my mind.. like the rest of you here.. just so I could "fit in" and be like the rest of the gang.

I did SOOOOOOO well... I am unable to hold a job, enjoy my free time, take care of my home and my family, or be very productive.

And to think.. all of that is free here on the Internet! It didn't cost me a nickle!

Had I not stumbled across this site..

I would still be out there in the back country doing my job... you know.. the one I loved so much.

But it doesn't bother me toooo much...

Cause now I get to be like YOU!

***************************************

I just happened to watch a show tonight.. Dateline?? It told the story of a small child who had a brain mass and it was causing him to have seizures.. up to 300 a day. The docs said nothing could be done... and drugs were not doing well for him.

The parents got on the Internet and found a support group. They had to take the child to Australia for surgery to save him... and they did. Even when they tried to talk to the SPECIALISTS here in the USA... they were not supportive.. and they would not do the surgery.

Had it not been for the parents going to the Internet.. they may never have heard of this procedure... and their child could have died... or gotten severely worse.

The boy was helped.. the seizures are gone.. and he is happy and healthy... and the parents are now helping others.

Yeah.. the Internet IS dangerous.

And I had a doc who told me to stay off the Internet too.

That is basically the same thing as telling me to "stay stupid".

Turned out the doc was wrong.. and had I not believed in myself.. I would have continued to get worse.

Yeah.. the Internet is dangerous.

quote:

---

Originally posted by Tincup:
Since then, I have acquired nearly all the symptoms I have read about here.. just from seeing that this is the "cool" thing to do....

---

Tincup, you rock! You are always RIGHT ON!

See how dangerous I am...ooooooo scary.

Mr. Lymie's neighborhood revisited....

One has to question the maturity, insight and focus of these fools (quackers) who would insult our intelligence by saying something so belittling. AH's!!!!

Let them have it. Let US be the ones who make the change in the system (Hurray...I can finally use my 60's radical/activist stuff for a good cause again!!!!)

If we ignore this nonsense, they will not change. We have to kick up as much of a fuss as we can. Threaten to hold their pay...this ALWAYS freaks out doctors. Make them read articles while we wait...and watch.
Then, ask for their opinion. Call them on their knowledge...

Kick butt, because we are....DANGEROUS..YES!!

Did I hear Bootie mentioned??? Just asking...heh heh...(Wild Lyme Guy)

Peace, love, and wellness...with just a little element of danger....and, of course, chocolate!

I was never told about the internet but I have a friend who was just recently. I think it went something like, "the people on there are the exception. They haven't researched anything and they have no idea what they are talking about." (rolls eyes)

So, would all you wannabe know-it-alls quit influencing my decisions here..hahahaahahha! Like Tincup, if I didn't come here, I wouldn't have caught everything I'm currently being treated for. Hahhaa.

Thanks everyone. I can now giggle myself to work.

Dangerous?

Lymenet, dangerous? Nah, try LIFESAVING. When I got infected over a year ago, it was the people who hand out flyers on Lyme (and a student who'd had it) who made me suspicious that I might have it, too. So I did a search on "Lyme disease" on the ol' computer and arrived here.

From you all, I got enough information to be pretty sure that I had Lyme, and the knowledge to ask for both an Elisa AND Western Blot test from my friendly walk-in doc. (God bless him for listening to his patients, he has passed away this year. His colleague told me I "must" have rheumatoid!) He also put me on doxy BEFORE the tests came back, at my insistance. The tests were positive for Lyme.

From you all, I got the information that the doxy I was on was not enough or for long enough, so I was able to get a renewed prescription (had to insist on it from the duck "colleague.")

From you all, I knew what kinds of treatment were open to me when the doxy was not enough to kick out the disease.

From you all, I knew to keep a journal of my symptoms and treatment, and to get copies of my positive tests, which served me very well in explaining my case, through my dense brain fog, to an ID doc. With evidence in hand, he believed me.

From you all, I got lots of advice about immune system support. No, I didn't believe everything I read, but took those things that I felt made sense and I could afford, and helped my body get better.

I was infected in June 2001, got on meds by the end of that month, but it took easily six months to get over a supposedly simple infection. I teach dance and gymnastics for a living, and I thought I might have to switch careers, as my stamina was gone. My biggest challenge each afternoon was to see if I could still climb 2 flights of stairs in the library to the computer floor. Some days, I took the elevator. Now, I am back RUNNING up those same stairs. No one can convince me that I wasn't very sick. The other coaches consider ME to be the strong one!

I know I will always be looking over my shoulder to see if those little 'keets are flaring again, but I am essentially cured (residual hand tenderness, and a little memory trouble that may or may not be Lyme's fault). I am soooo thankful to you guys for posting day after day, and giving me back my quality of life.

Please never give up. You never know who may be lurking, listening, and heeding your advice.

PayPal, I have a donation to make....

Well, 'dangerous'?

The day when knowledge, compassion, humor, and positive action can be called 'dangerous'....then, "Yes..LymeNet will become 'dangerous'.."

Until then, never give up, never give in!!!!!!!!!!!!!!!!

But understand why others might consider it harmful or dangerous. Information posted on here does not come from a doctor, registered nurse, PA, etc.... it comes from other patients.

So I guess it could be dangerous if we followed through on EVERYTHING we read about and didn't even consult an LLMD. But as intelligent beings that we are - we know better!!!

And I believe that ignorance would be even MORE DANGEROUS!

I love LymeNet! It has been GREAT support for me and a GOOD place for valuable information on the subject!

""I predict that the internet is going to be to the modern medical establishment what Gutenberg's printing press was to the Reformation 500 years ago. Think about it."" (TXMOM)

yup. What she said... I think it already is. The mainstream medical establishment just hasn't caught on very well yet... They need a little help...

& could someone please show them how to do a google search?

Truth is always dangerous. Hey, they nail people for that you know...

So what are you waiting for- for fast releif of that helpless feeling that Lyme gives you, take charge and fight back with a little old contribution.......

On a search for what was wrong with him in April of this year is when I found this site and have never left.

Thanks to all the wonderful people here. He is getting better and I am getting the support I need.

I will be doing PayPal first thing in the morning when I pay the rest of my bills.

Can you make a Donation all year long or just at this time of year???

Thanks
Starr

I got lot's of replies.

I went to Italy, got lot's of well wishes.

Some I have not seen for a year on this thread that still makes my heart warm to see their names.

One I met in my LLMD's office after my first ICHT.

For that person I hope your life is better

One I met in El Paso that I had never known before and is a part of this group. Only after ICHT.

I feel so blessed. I have met so many wonderful people, even people in my own city, I did not know until I travel half way across the the world.

Happy Thanksgiving everyone!

to all the drs who would have kept us as
patients forever because we would never get

Look, medical school is hard enough, don't actually think that after all that training you might know something more than your doctor. Your doctor is always right, haven't you seen their degree prominently displayed.
Don't you remember your warm and friendly doc treating you for your first staph infection? They really do care.

The vast majority of diseases are simple to treat, your chances of being infected with chronic illness are worse than your winning the lottery. Pharmaceutical firms work hand-in-hand with the medical profession to ensure optimal public health. They have the best interest of the public in mind; public health has been a priority in this country since its founding.

It is absolutely ludicrous to think that a multi-systemic disease such as Lyme could fail to respond to known treatment. While co-infections may exist, they are simple enough to treat and all doctors are aware of the telltale signs.

The internet is a dangerous pit of misinformation and it does a disservice to those who are actually ill to waste the time of legitimate doctors treating mystery diseases.

The same applies today with the teaching hospitals teaching "autoimmune" diseases but the doctors in the field who care and the people here on the Internet are sharing that what the Hospitals are teaching is flat out wrong.

There is a lot of money and reputations involved. The treatments for the so called "autoimune" diseases are expensive and life long. If these diseases are prevented or even cured a lot of people will loose their jobs.

So we are very dangerous indeed!

Saw a great plaque with the words of the genius Michelangelo spoken when he was 87 years old. It reads:

"Ancora Imparo" (I am still learning.)

Some version of this- a plaque or home-made calligraphy- would make a nice gift for those committed to life-long learning (for example, an LLMD).

The quotation would be an appropriate motto for LymeNet as well.

cws

It was through the internet that I found my LLMD/ID who is now actually treating my. It was here where I found the liturature and info for my PCP who actually read it. It was here where I got the guts to fire the morons and take charge of MY health.

I now have a new black belt to add to my collection, it is in Lyme care and Duck Squashing :P

Oh about the shave your head bald comment....I have had to let my hair grow back in because the abx have made me break out a bit on my head. But I look good bald......

I hope that reading Lymenet will encourage patients to consider taking combinations of ABX rather than Rocephin alone as you did for so long. It may turn out to be important to start taking combos as early in the disease process as possible.

BGM:

The significance of your name distracted me from my original purpose of replying to you above. That intention was to thank you for your extremely articulate, heart-felt post. Great to have you here!

To all,

Thanks for your valuable input on this lively thread.

Anyway, I found this post while I was searching for the link to the flyer.

I'm just moving this up as a reminder that voting doesn't always occur at the ballot box. Everytime someone posts support and information on Lymenet, passes info onto their docs, donates to an LD cause, spreads the word through the media or a T-shirt or a conversation with a friend...they're contributing to better Lyme treatment.

And if you're too sick to do anything else and are feeling a little worthless, just remember that simply by not giving up you're doing something tremendously valuable.

All I can say is LymeNet opened doors for me and also opened my mind...just in time too.
Was about to lose my mind.

I had so many questions I wanted to ask and to have answerd and now I can do that.

One thing I do know..is Lyme is not a well versed topic for docs or in the news or anywhere else that I could find...

But lymenet is real, with real people to talk to and real help when there isn't much help out there.

Thank You Lord for LymeNet and the people who come here..yes we are sick..but we have found a place where others, like ourselfs, find comfort and help.

When i first got this here ting day call a
puter, and got on line ilooked around at
more then one site, i planted my ass here
at this site and for good reason, ya all
know who yuo are. Down to earth, streaght
forward, backed up with facts and where to
look.

Without the net we would still be in a duck
slime ses-pool, you know the kind of slime
that you just cant swim in.

You go down down down into a thick pool of slime.

Gee think we should add some gaters.

A sprkle in your eye to all.

Then there's some who do kind of specialize in lyme (be it docs or naturopaths) but always stick to one type of lyme treatment and start to form believes about that way being the final answer. Thats better than ignoring lyme but still: Most important thing is and will always be discussion and exchange of views and treatment suggestions.
Seems like everyone has to take a different road to recovery and this is the most important thing to know.
Discussion promotes knowledge in a good and dynamic way and can BY NATURE never be dogmatic or a cult. If anyone still says so, hit them with that logic.

Tincup, I laughed my head off. You made it so clear what type of simplistic thinking and circular argumentation we sometimes have to face.

Take good care everyone,
Petra