I am writing for a friend with severe arthritis. She has been treating Lyme for more than a decade but this flare has been sudden and extreme in the past couple of months.
Her fingers and toes are twisted and there is considerable bone growth and locking of joints. Wrists, back, knees, it is all over her body and there is so much distortion that she cannot hold a bowl or bend to reach in to the fridge.
She is on IV Zith right now but has bad gut problems as well. Using amitriptaline for pain. Taking good supps and other tinctures for Lyme.
Anyone out there go through anything like this? She doesn't have a doctor to work with here, can anyone recommend a Dr in the Vermont/NH or New England area who could help?
Gluten, as you know, also causes gut problems, leaky gut.
Posts: 631 | From the south | Registered: Nov 2008
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I felt my recent bout with inflammatory arthritis was due to lyme, but in fact it may be due to inflammation in the body itself due to leaky gut, hormonal and adrenal issues, candida etc. as I learned today after seeing a new practitioner.
At this point the IV antibiotics maybe making her worse as it is causing the body to produce more inflammation. She needs someone who will look at her body as a whole, beyond lyme. Sometimes LLMD's are only focused on the antibiotics.
[ 06-08-2013, 03:39 AM: Message edited by: Robin123 ]
Posts: 1750 | From United States | Registered: Dec 2011
| IP: Logged |
posted
Definitely look into the gluten connection. I think the basis of the book The Arthritis Cure was based on a healthy diet, minus wheat and nightshades. Not positive on that but I know it had to do with diet.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
I watched an anti-arthritis program last nite. They suggested a strongly anti-arthritis diet. In fact, they had people enrolled in their program, put them all on this kind of diet for a month, and people reportedly said they felt better after eating like this. So diet might really matter.
Very little protein and diary, prefer no red meat, no fried foods, no sugar, low starch.
And yes to:
lots of water, fish 2x/week, some whole grains, beans, raw vegs, dark greens, avocados, cucumber, celery, juicing, ginger, ginger tea, curcumin, cinnamon, garlic, onions, red fruits like berries, apples,
blueberries, papaya, pineapple, black currant oil, dandelion, aloe, alfalfa, seaweed, wasabi, Vit C for collagen, Vit D, fish oil, CoQ10,
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/