posted
After a good week I experienced a decline on a Monday. Anxiety, then numbness and weakness, then extreme fatigue over the course of the day. Tuesday laid down half the day. Had a large blood draw that seemed to make it much worse, adding faintness. Wednesday laid down most of day.
Thursday woke up feeling better and with awful liver pressure/pain.
What the heck is that? Is it something to do with metabolizing the materials that are circulating during the flare?
The pressure really bothers me. This happened a couple of months ago. Liver numbers were normal but it took weeks for pain to decrease, even after stopping the drug we thought caused it.
This has happened both pre- and post-diagnosis.
Looking back, it does look like the decline or flare happened 28 days after the previous one.
I want to know if the pain is going to happen after every flare, so I can stop thinking every new drug or supp is causing it!
Last time around, a mini-GB flush helped partially.
On Omnicef, Mepron, CSM, sida acuta, cat's claw, fish oil, ALA, Quercetin, probiotics.
Posts: 146 | From South | Registered: Aug 2012
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posted
I hope you are taking binders to keep the toxins from re-circulating in your system. It sounds like your liver is having problems dealing with the infection as well. Some one got on Keebler's case about advocating magnesium, but it does help with a lot of things if you are ill and when we have to fight lyme, a lot of our minerals and vitamins get depleted. Make sure you are taking enough vitamin supplements the B's including D3.
Posts: 482 | From Oregon | Registered: Feb 2011
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posted
I know the feeling-sorry you have to deal with that. I have good luck with castor oil packs on my liver area. Good luck
Posts: 238 | From new england | Registered: Feb 2013
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I was taking Mag-Calm but started doubting whether that form was correct for me.
I do take a good multi with high B's.
It concerns me more because as a child I had a severe liver reaction to a drug...besides the pain and pressure it is worrisome.
dogs I tried a castor oil pack and found it very hard to make! Need to start over with better directions.
tree
Posts: 146 | From South | Registered: Aug 2012
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
My liver pain started acting up again when I started parasite treatment. That and babesia treatment caused pressure and what felt like swelling in that area. I can't say for sure why but it makes me wonder if it's parasites in there.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Mine started recently. My liver and spleen are enlarged and I now have a fatty liver. I also have high liver enzymes.
My liver felt better when my LLMD took me off of all the meds. I'm back on some and the pain is back.
Maybe your liver is hving trouble breaking down everything?
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Castor oil pack directions:
Get organic castor oil in glass jar...plastic leaches into the oil and you don't want that plastic to go into your skin.
Get a white cotton or wool cloth to use.
And get a hot water bottle or heating pad (don't use heating pad if EMF sensitive).
Saturate the cloth with castor oil and lay it on your liver area.
Cover this with a plastic bag.
Then place a towel around the heating pad or hot water bottle and place that on top of the plastic covering the castor oil-soaked cloth.
Cover with a blanket or another towel to help hold in the warmth.
Sit with this on your liver for 1 hour.
Castor oil is sticky, so you might want to have someone available to help deal with the sticky hands after you get the oil-soaked cloth put on yourself, or have a wet washcloth ready on which to wipe your hands.
Store the castor oil-soaked cloth in a glass jar in the refrigerator; it can be re-used a few times before you need to replace it.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Liver flukes can be a source of your pain. Google parasite symptoms and check out the PARASITE WARRIORS SUPPORT THREAD. Parasites/worms can be the missing link in Lyme disease. Many are finding treating parasites is KEY in getting well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Hi there. Just checking in here. I just had a scare that I was blaming my co-infections for and it actually ended up being life-threateng. So, my questions are the following.
Does your LLMD know you are having these liver pains? Have you had this pain in your liver evaluated by your normal general practitioner?
Has any testing beyond blood testing been performed? An ultrasound of your liver & gallbladder could be ordered by your general practitioner if you ask. An ultrasound can see enlargement of the liver as well as any stones that may be lurking and causing you pain in the gall bladder.
The pain you describe sounds concerning and with your childhood history of liver issues, I wouldn't keep on trying natural remedies to feel better and treat just the symptoms.
If you have gall stones or sludge in your gall bladder , the pain can come and go as you describe as well.
I hope you find something that helps you, pain is so no fun!
Hugs,
Edessa
Posts: 138 | From Eden Prairie, MN | Registered: Dec 2011
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Also, I found that I have genetic issues- low alpha1 antitrypsin levels which can cause liver/lung damage. Thank God my LLMD was smart enough to test me.
There are lots and lots of reasons that you could be having liver issues that have nothing to do with Lyme and co.
I agree with Edessa. I too had a nearly life threatening problem last winter that I was blaming on Lyme and co. It's best IMHO to rule out other causes before attributing possibly other serious things to Lyme, co-infections, herxing, or flares.
That's what scares me so much about this disease. We never truly know what's a herx and what's something else that's not covered by your Lyme treatment.
posted
Thank you all for the input. And Razzle thanks for the better instructions.
LLMD suggested it is neuropathic or gallbladder. Respectfully, I am not willing to accept that without more evidence.
Now must decide whether to go to "normal" doc with daily sick hours to ask for imaging, or complementary local doc who is supportive of TBD but might not have appt available for a while.
Only been treating 3 months. Missed 30% of (part-time) work week last week due to Lyme & co. Breathe....
Posts: 146 | From South | Registered: Aug 2012
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