-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It doesn't sound like much of a win if they changed the proposed bill and voted against putting ILADS link on their site.
They say "alternative" treatment options (to the IDSA, I suppose that means) must be posted on the Maine site but if they refuse ILADS to be that, there's no telling just what links will be allowed.
Seems really watered down.
Still, it will post advocacy group links but what if only those groups the IDSA supports?
Since inculsion of the ILADS link was voted down, will they refuse to post any advocacy groups that are ILADS "minded" - if they do, it seems that the way this bill passes says that's fine.
I hope the fine print spells out which "advocacy" groups can be listed on the state site.
This also seems to do nothing for LLMDs and long term treatment being accepted or protected. Were they just forgotten?
So little seems to have been "won" but maybe there is more to it than this article reports?
Regardless of my impressions or any limitations, and nevermind that I'm 3,000 miles away, I want to thank all the volunteers who worked so hard to open eyes and expand brains about this vital issue.
I live in a state where lyme has nearly been declared "illegal" so I know how hard it can be to bring about education. -
[ 06-15-2013, 07:41 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/