posted
I've had a hard time taking the antibiotics because of nausea. I've been discouraged as well because my doctor told me all my health problems (Chronic Fatigue Syndrome, Fibromyalgia, etc cannot be reversed.) My doctor said that if I don't take the medicine, I will have to deal with dementia.
I was given some cognitive testing and it came back presenile dementia. I have several categories that come back very low.
Is this something that is common? What type of dementia is common?
Posts: 132 | From Texas | Registered: Apr 2012
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posted
I agree with Lymetoo. What antibiotics are you taking, in what dosage? Are you taking with or without food? Have you tried other antibiotics?
For Lyme patients, the Chronic Fatigue Syndrome and Fibromyalgia are caused by the Lyme disease. So treating the Lyme should reduce or eliminate these. I speak from experience; I'm about 75% improved in these areas.
The brain fog and cognitive problems can be severe and debilitating, but I don't think that they are the same as true dementia. Neurolyme cam make one seem like they have dementia.
Also needed are treatment of other causes of fatigue, such as the adrenals, thyroid and HPA axis. Supportive medications and supplements can help.
There's no doubt that systemic candida needs to be addressed, along with adequate detoxing.
Usually a good LLMD will have many tools to try. Many of us are very sensitive to Rx medications, herbals and supplements. So being somewhat flexible as a doctor, and working with the responses and needs of the patient are critical in treating Lyme.
Best wishes.
Posts: 873 | From WA | Registered: Dec 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Agree with the others. It's time for you to find a new doctor-an LLMD.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I agree that the 'dementia' is probably not the same as the real deal, especially as , with me, it is so variable and has been that way for at least 20 years, so don't panic!
It doesn't sound as if you have a doctor who is very understanding, so maybe you should consider asking around for someone who is both knowledgable and compassionate.
Posts: 1647 | From UK | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Do you have babs too?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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