Because we have a lot of knowledgeable people on here, I am toying with the idea of creating a podcast on chronic illness. In a sense, we would talk to each other and record "interviews" of sorts on subjects people specialize in - for example - tick coinfections with Lyme disease, or, treatment with Rife machines.
Please post here if you're interested and we talk!
SC
-------------------- Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks. Lyme WB Bands Positive: 31, 41, 58, 66 HHV6, EBV, CMV, & Mycoplasma IGG positive. Chronically Low CD4 count. Posts: 106 | From Texas | Registered: Apr 2008
| IP: Logged |
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I'd do it. There's a need for something like this.
quote:Originally posted by droid1226: I'd do it. There's a need for something like this.
Great, what specifically can you talk about?
-------------------- Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks. Lyme WB Bands Positive: 31, 41, 58, 66 HHV6, EBV, CMV, & Mycoplasma IGG positive. Chronically Low CD4 count. Posts: 106 | From Texas | Registered: Apr 2008
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Count me in
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I'm very passionate about this subject.
What has helped others and myself as far as antibiotic and non antibiotic treatments.
Co-infections
News(which seems to be daily) at this point.
Testing.
Obviously we could all talk forever about our own experiences and others we know, but I think the idea would be to get it off the ground and that way we could get new people and guests.
I think a recorded Skype or Podbean might be a good idea. Although Podbean has had it's issues.
posted
Great, thanks guys, I'll message all of you privately and we can setup times to record. If you can do me a favor and message me what you're knowledgeable about and would like to discuss, that would be great.
I am looking to squeeze good, helpful information for people into about 30 minutes sessions. It's just another medium for us Lyme patients who can't stare at a screen all day
-------------------- Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks. Lyme WB Bands Positive: 31, 41, 58, 66 HHV6, EBV, CMV, & Mycoplasma IGG positive. Chronically Low CD4 count. Posts: 106 | From Texas | Registered: Apr 2008
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
StephenC, you should talk to Robin123 about this. I've seen a video of one of her interviews, and she is knowledgeable and eloquent about many facets of Lyme.
If I were going to invest the time to listen to a podcast, I would want clear and accurate information and not people chatting about their problems. I process information better by reading it, but I know that many people do better by listening.
Once you know the topics you intend to cover, they need to be organized into a coherant framework. A mish mash with a few good nuggets thrown in here and there is just time consuming and frustrating to listen to.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Carol has excellent points.
I also appreciate links to the LL researchers & various doctors' video clips, themselves. As close to the experts as possible. LLMDs, LL NDs, Rife, etc.
There are so many video links on ILADS site that many here may not even know about. YouTube has some excellent rife videos, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I agree with Carol, and Keebler. This needs to be high quality and concise for people to listen to it. Don't reinvent the wheel. Check into what is already available before adding to it.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic