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» LymeNet Flash » Questions and Discussion » Medical Questions » neurolyme question

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Author Topic: neurolyme question
joebar
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Hi all,

I am a veteran lymie, been dealing with this for 10+ years. In the past 2 years I have done multiple courses of various IV antibiotics through an IV Port, my main symptoms are neurologic (memory, brain fog, depression, neuropathy, etc.).

Over the past 2 years, I have monitored how I felt going on and off IV drugs multiple times when i needed breaks to detox. I pay attention in particular to how the bugs shift around my upper cervical region in response to coming on and off antibiotics.

It seems as though the IV drugs push the Lyme deeper into the brain stem into hiding whenever I initiate treatment and they come right back out when I stop.

Prior to going on antibiotics, I had a great healing crisis where after several weeks into a juice fast I eventually felt the lyme come out of my neck and spine and it came out through my skin. I had rashes all over. It was very painful but I know it was effective. It was like my body pushed the bugs out of my central nervous system out through my skin.

The rationale in juice fasting is that by freeing up your body to rid itself of toxins and infection the immune system can push out latent infections and neurotoxins which have been harboring in the brain and spinal column. For example, many people get shingles during extended juice fast detox treatments because the herpes virus literally gets pushed out of the central nervous system where it has remained for decades.

I say all of this because I am finding little permanent benefit from ongoing IV antibiotics for my neurologic symptoms and I am wondering if I am "pushing in" the bugs when I should be "pulling them out" again through aggressive detoxification and juice fasting again?

I would think after two years of 5+ different IV drugs I have experienced the maximal benefit I can receive from this treatment approach?

Any thoughts on this hypothesis?

Posts: 14 | From Los Angeles | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
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My thought would be that maybe you are targeting the wrong infection.

I honestly think that many with chronic tickborne infections have greater problems from bartonella or babesia than from lyme. So maybe your symptoms are more related to a coinfection than to the lyme.

Bea Seibert

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lax mom
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I would want to keep dormant viruses dormant. I don't see how reactivating dormant viruses is a good thing.

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t9im
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Hi joebar:

I still think a 4 to 6 month pulse with tindamax, if it can be tolerated, should be in any Lyme protocol.

Other meds will be based on co infections.

Then balance with environmental factors and side effects.

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Tim

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