posted
Hi, I haven't been on here in about a year. Last August I went off all my meds after speaking with my LLMD. I wasn't sure what was side effects and what was symptoms anymore so after tx for a year I decided to take a break. I have been feeling great until recently. Ever so slowly I have noticed my dizziness was creeping back, then fatigue and now headaches and bone and joint pain also I am more short tempered and angry again. Help, I think it may be back or please tell me it's just my mind playing tricks on me.
If it is back what now? Is there someway to know for sure, a lab test etc? Can it come back again?
Posts: 53 | From IL | Registered: Jun 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have protomyxzoa. I was off meds (except LDN) and feeling great for nearly a year too. I began getting symptoms back so I started stromectol again. I also had headaches, bone pain and joint stiffness. I had a hoarse voice now and then. I felt more anxious than usual.
Most of it is gone but I still feel stiff in the mornings. It is so easy to dismiss the early signs as I don't feel sick or fatigued. I can really go into a state of denial because I treated for so long and just can't tolerate the idea of taking drugs again - but it is better to hit it early than allow it to become full blown again.
I am going to get another blood test done at F labs to check to be sure I do not have a lingering infection other than PR, which is incurable. I suspect I might have something like toxoplasmosis.
I believe most of us can relapse so we have to stay on top of things keeping ourselves healthy and not slipping into old habits. i know that is true of PR and suspect bartonella, babesia and borellia are probably also not completely eradicated in our bodies.
They say there can be millions of weed seeds in the soil of your yard but if you keep your lawn healthy, they don't have a chance to grow. Once they get started though, they can take over, if you don't take care of them. I think we have to always be aware and ready to resume treatment again. It stinks but that is reality.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I have not been here for a while and thought I would just check in.
I also had a relapse about a year after I was "cured" and went off my abxs. I got a bad cold and URI. I went to my doc and was given a z-pack. A few weeks later I started to have cramping in my hands and feet, which was how my LD started years and years ago before it progressed to the other sypmtoms you described. I don't know if the relapse was triggered by my immune system being down or by the z-pack since there are some studies showing certain abxs, such as doxy, can actually trigger a relapse. I went back on my regimen of tindamax and cipro that had worked for me before and started to feel better. I stayed on those meds for 3 months. I have been off abxs for over a year now and have been fine(fingers crossed!).
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
It sounds like people were in remission and then with whatever stressors or time, they buggers reproduced at higher levels and created symptoms.
Lmedler- Could it be that Lyme is in check but not bart? Is your doc done practicing now?
So sorry you guys! It is the relapses that are hard for us so I imagine after a good year it has to be heartbreaking.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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