Topic: TxCoord's Ankle, a tendon problem,out of place
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lyme Family >>>>>,
TxCoords ankle, which they tried to say on July 1st was fine just a bit strained, isn't fine at all.
It continues to worsen, swelling,some bruising, and from the report we finally got after two weeks:
Something is out of joint, most likely the tendons have gone off kilter. We don't know if anything is torn yet.
He has, and must take regularly, anti-inflammatory meds and pain meds. I got him some fish oils,and he also takes magnesium. We can't give him much else w/o interfering w/ his prescription meds.
Any ideas,besides Ice,heat,and gentle sports cream to help keep this in check? We also use magnetics .
Tho'ts appreciated. Thank you for tho'ts and ideas!!!
We'll update when we can get more info' on his appt. and so on.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What about physical manipulation? UPLEDGER INSTITUTE site has practitioners trained and contacts on their website.
You could call one and ask if - given the medical terminology for how it's displaced has been described to you - if they might be able to put it back where it belongs?
"Out of place" though can mean a lot of different things happened to get it there.
Still, I would want someone trained in physical manipulation to give some input. And UPLEDGER is very good with knowing how to get body parts in alignment, anywhere in the body, safely - and when to leave them alone.
But if it's "out of place" it would seem that it needs to be back in place to heal. A stretched or torn tendon, though, can be a different story. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
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Member # 30398
posted
Lemongrass essential oil is very healing to tendons. It needs rest - tendons cannot heal when being used. Is he on crutches?
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Keebler
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- Razzle's good point of not using it - actually best if immobilized and that would go for sleep, too - total immobilization wrapped in a splint (once it's where it belongs).
A splint with a high top sneaker might be of some use to keep the foot from relaxing and letting the tendon heal "short" so to speak. Of course, an expert would best advise the right position. When I had similar issues, a foot splint for sleep was very helpful. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
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Member # 9196
posted
Hi <<<<< treeinatree, Lymetoo, Keebler, and Razzle >>>>>,
TxCoord isn't being treated for Lyme and Co's,tho' we are pretty certain he has it,as well as definite Herbicide exposure damage from his time in military service. So no levaquin,etc.
The VA does not treat Chronic Lyme, nor do they believe it can occur.
About two months ago, TxCoord tripped over a box, that we used for laundry. The problem started then.
As he has a wheelchair,TxC' was using it,the foot started to feel a bit better, problem was by the end of each evening, even using it as little as possible it would get worse pain wise.
He waited for a while, hoping it wold heal if he didn't use it extensively. A couple weeks ago it got so bad he finally went in for x-ray.
Instead of getting better it has slowly worsened. It was hurting all the time, wit no ease up after a night of rest.
For some reason ,they were very slow,to get info' to us. the first report,we were told it didn't appear to be anything serious, just strain and wear and tear.
Now finally,after he had to go back today, his Drs. nurse said,there is in fact an abnormality.They are making an Ortho appt. to see what is going on.
He was warned to continue to stay off the foot, handed a copy of the report,and sent home. We looked up the info' from his medical report,and the description is of a tendon problem, possibly,the actual ankle joint as well.
We wont get any further info' until they set the Ortho'appt. and we can get him there. Somewhat problematic,he'll have to drive, as I cannot.
As TxC' is being treated by the VA, we cannot have any manipulation done, or even a second opinion,until after they make ,and TxCoord keeps the Ortho' appt. We don't have the finances so we must wait on their schedule.
I am/ we are limited as to what I/we can say at this point... it is highly probable that we are being monitored.
We very greatly appreciate the input from each of y'all. The medical report also stated that the ankle issue,is degenerative.
And my first tho't is that the Herbicide exposure [A.O.]and Lyme and Co's in combo', are ruining his ankles as they did his knees.
We are depending a lot,on what ever research we can turn up here on Lymenet,and among TxCoords service friends too.
So again,all tho'ts and ideas are welcome,even if we cannot do much at this time.
As we find out more we will update. We hope and pray, that this wont have to be a surgical repair, but we'll have to deal with it as best we can. The Waiting on them to get things scheduled is difficult. So this is where we are at.
Jus' Silverwolfi and TxC' too
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Member # 9196
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Hi <<<<< Keebler >>>>>,
We don't have any splints for TxCoord right now,I type so slow,I just saw your last post.
I figure we'll just need to wait this out, if we did something splint/immobilization wise and they don't like it, we are up the creek w/o a paddle as the saying goes.
BBL Jus' Silverwolfi
edit in: Sorry, I am really concerned for my hubby TxCoord,and cannot say what all I'd like to say right now. I am trying to find simple things we can do from home, while we wait for the appt. to be scheduled. And we are hoping they will do so in a timely manner.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
Was off for a bit,to get a bite to eat...and then edit a bit in ,hopefully it is more understandable.
It's a bit frustrating to say the least... I don't know how to explain,when we can't say much right now.
Thanks for the tho'ts!
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Razzle
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Member # 30398
posted
Vitamin C (500mg/day minimum) and Epsom Salt soaks (use pleasantly warm, not hot water; soak no more than 20 minutes at a time) may be helpful for the pain and to prevent pain from lack of use.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Razzle >>>>>,
Thanks for the Vit. C and Epsom Salts soak idea!!!
We can check and see,any contra-indications, w/ TxC's prescriptions. If there are no issues, it sure could help.
I appreciate the tho'ts and ideas, hoping they get TxCoord scheduled for this Ortho' consult quickly.
It feels like our hands are tied w/ all this mess. But we'll keep on keeping on!
jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Thanks all for the info and help. I told Silver that if I didn't hear from the Ortho department by the end of business today I will call them in the morning.
This has become emergent because I am the driver for us and even though I can "wheel" myself around the stores for shopping, it is very wearying and then when I get home we still have to unload the car.
We'll see what happens. In the meantime I'm going to follow Silver's advice and use my crutches indoors when I'm going room to room where the chair won't fit through the doorways.
Yippee.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Google this set and some nice images and sites pop up to give you some ideas.
Search: ankle+tendon, twist, splint
Then, you might try to figure out just which tendon by finding an anatomy chart of the foot.
Then, search a range of therapeutic modalities & splints.
If you don't have a splint, you can make one but it's a bit tricky so compare various video clips that you can find. The America Red Cross or some hiking groups may have emergency treatment videos.
A high back tennis shoe (cleaned well) that you sleep in can help keep the ankle stable.
There may be a good orthopedist or osteopathic site where you can learn more about what is likely going on and what you can do about if your doctors are dropping this ball.
I do not think it's good to have to wait. If you have a stretched tendon, now is a very important time for very specific measures. You may have to do some of this for yourself with the best professional web advice you can find if your own doctors are ignoring you.
The position of the foot - every moment - really matters.
BONESET, herbal tincture can be of help with structural stuff.
Hope you feel better. -
[ 07-16-2013, 06:35 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- ? -- good illustration here and detailed advice all the way down:
This is a decent ankle support, and not expensive. Numerous Amazon vendors carry it under different titles. Good reviews. Buy two!
If you want to get it with free shipping at Amazon, you'll need to order $25 worth of merchandise. This shouldn't be difficult, as Amazon carries everything...food, supplements, personal care items, office supplies, cleaning supplies, etc. Drugstore and hardware store items, crafts, furniture, jewelry, clothing, shoes.
A support like this should not cause any problems with later diagnosis. Now, if you want the tendons to heal, try the SOTA Magnetic Pulser. I've treated joints and ligaments with excellant results.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glad Carol weighed in.
When you decide the size, figure in a cotton sock.
WHITE (or undyed) COTTON SOCKS are very important for under any kind of support. This will help them be more comfortable - especially not be too hot (some of those support fabrics are very hot or irritating without a cotton sock),
A cotton sock will also absorb sweat so that your brace lasts longer and stays cleaner.
You can cut the toe part off of some if you need even more heat relief. Just HAND WASH in that case, not in washer or they will ravel all over the washing machine and other clothes.
That SOTA LIGHTWORKS sounds great. Some PTs acutally use a very similar device. But you may have to ask about it. -
[ 07-17-2013, 01:35 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
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posted
<<<<< Keebler, Carol', each topic poster >>>>>, Hi there!
Thanks for the info'links and tho'ts and ideas.
Having trouble getting in here on Lymenet, and hoping it is just a local problem soon fixed.
TxCoord checked in w/ the Ortho' appt. folk, we and they are stuck in the 'waiting game'. So if we don't hear soon it's back to patient advocate.
Who knows what's up this time... not us. With finances tight, the links are a huge help because we can at least get lower cost ways to treat Txc's painful foot 'til they get the appt. set up.and done w/.
Thanks again, so much it is a great help to us!!!
If we aren't on here for a few day, it'll be because we can't get in...this is the second time, in the last five days,there's been some issue.
Jus' Grateful Silverwolfi and Txcoord too [we are so glad Lymenet is here].
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you can't get a SOTA LIGHTWORKS, when taking a break from a support splint - the ankle would probably do very well with some direct sunlight - and also some day light, even if not direct sun (which has it's time limit, of course).
When getting good rays, though, keep in the same position as it would be in a good splint. With the foot as if in walking postion, not relaxed as that can cause the tendon to "heal short" so to speak.
The sun light is very important to penetrate the skin for at least 20 minutes a day, with no sunscreen. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Jane2904
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posted
Hope you are able to get the appt and help you need very soon.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Keebler, and Jane' >>>>>,
It has been crazy,w/ TxC's ankle, bad weather, and symptoms flaring w/ the Lyme and Co's.
TxC' has another appt. thru VA tomorrow, and will check to find out why he hasn't received his Ortho' appt. yet. Hopefully they will get something done while he is there.
He's stayed off the ankle as much as he could,but it is still problematic and painful. We'll update when we find out more info'.
I don't think these crazy electrical storms have helped anything either.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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