2roads
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posted
I know tick battler has recommend it to the forum, but I haven't found anyone that has actually taken this brand except for one person. She did not have a problem with it, but she took 10 drops twice a day.
My son was probably a thrid of her size and took 7 drops twice a day. Too much I now realise.
ANYONE TAKE THIS STUFF?
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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tick battler
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posted
My husband and I take 30 drops twice/day and my kids currently take 9 drops and they weigh less than 60 lbs.
My practitioner gives it to any of her patients that have babesia or candida. She has over 1000 patients. It has NEVER been contaminated for her or us or anyone she treats. It can cause herxing, however, and some with bad cases of yeast or babesia may have strong herxheimer reactions. Anyone who has been on long term antibiotics is going to have a lot of yeast.
tickbattler
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2roads
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9 drops a day?
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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tick battler
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posted
Twice a day for all of us.
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Catgirl
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posted
Tick battler, did you originally start you and your children on one drop, or did you do more?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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tick battler
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I think our practitioner had the kids start at 3 or so drops but they were very young. I started at 10 I think, but from what I have seen, I would start at less to see if you herx. Occasionally there are some with very heavy babesia or candida who have big herxes. Some get air hunger really badly the first time they try it.
Have you tried it?
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Catgirl
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No, but I remember reading a post of yours a while back and buying it. I just haven't opened it because I still have some nutribiotic left (I use it daily). You've inspired me though, I'm going to open it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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BoxerMom
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posted
Mine is NutriDiem. I take 20 drops 2x/day.
It has been incredibly helpful against Babesia and Lyme cysts. It's supposed to kill Candida and viruses, as well.
I've read of people taking it long term with no ill effects.
For the price and effctiveness, it is one of my favorite herbs.
2roads
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posted
hmmmmm.....anyone else?
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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2roads
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ps-it would be helpful to hear about anymore kids that may have taken it.
Thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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tick battler
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My practitioner treats hundreds of kids and uses it for all with babesia and/or candida.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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surprise
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posted
I wrote my opinion about this on your other thread 'Jerks throughout the day and night'
If you are interested.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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2roads
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why are still using it tickbattler, and the kids?
Thanks surprise.
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tick battler
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Because living in PA it is almost impossible not to get reinfected with babesia from mosquitoes. So it is more of a precautionary measure right now. We also are keeping yeast at bay as we are killing of the parasites. Parasites hold onto a lot of other pathogens which are released as the parasites die. Yeast is one of them.
By the way, based on what I saw from my children, I believe both tourettes and PANS symptoms are from worms. As we treated the worms, these symptoms melted away.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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surprise
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I am in contact with many PANDAS/ PANS parents.
Very often it is strep, sometimes Myco P., it is treated, the immune system re-set, COMPLETE remission.
However, throw Lyme into the mix, much more complicated.
ETA: or, if it goes untreated for too long, then, also extremely difficult. Frankly, it's just extremely difficult. The behaviors, like OCD,
may become 'learned' and intensive therapy may be needed.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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tick battler
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Yes, I was on the PANDAS boards as well this past year and do agree that strep/bacterial infections are often a big part and sometimes symptoms do go away with antibiotics and sometimes they go away when the immune system is reset with IVIG, etc...,
But my theory is that parasites are often the underlying cause as to why the immune system is down in the first place. I think lyme is often in the mix too whether they know it or not. These kids are just overwhelmed with so many infections.
The abx helped us for a few days and then the symptoms would return. For some, one course of abx might work. But I don't think these children are cured. Maybe the symptoms are gone for awhile but with another strep exposure, they can come right back. That's why so many are on long term abx and steroids and IVIG. From what I could see on the boards, people were not fully healing. Some appeared to have healed but many were struggling. Many continued to have "PANDAS flares."
That was our experience until we focused on parasites. We saw improvement after herbal parasite cleanses and even more improvement after adding MMS. The MMS is so effective because it hits ALL of the infections and the helps dissolve the biofilm which is what keeps the abx and other things from fully working.
I was surprised the first time I saw Kerri Rivera write: "PANDAS is all worm!". But I was excited because that was similar to the conclusion I had come to before discovering her protocol. (I didn't think it was ALL worm, but close to it) So I knew I wanted to pursue it.
surprise
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Member # 34987
posted
I edited my last post with a few thoughts.
Keep in mind that like here, when people are well or recovered, they leave the boards. Sometimes when you are well,
hanging on the boards is too painful a reminder.
Tickbattler, I am a huge believer in parasites holding disease. Very much so.
But I am not convinced the MMS product is the safe way to go.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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tick battler
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surprise, I'm curious, why do you feel it is so dangerous? Is it FDA's warning? Wikipedia? Why do you feel it is more dangerous than abx? Or is it just that it is new and unapproved so you want to wait until more is learned?
Did you have the chance to read any of the articles, websites or did you watch any of the videos or testimonials from mothers of healed children? If not, how can you conclude it is unsafe without hearing both sides? FDA also has a warning for colloidal silver and many on this board take and and give it to their children.
My son has had terrible OCD symptoms on and off for years. We never used therapy to get rid of it. We just addressed the cause. Maybe therapy would help, but to me it's a bandaid that does not get at the root cause.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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surprise
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Tick battler, I'm weary today. I agree with you on many things. A lot. I am in my own parasite battle now, not for the first time. Having success. Without MMS.
It's the chlorine part. I can't put that into my child's body. I have read a lot. I honestly don't want to debate, or pull up
different things I've read, or have you post a scientific explanation that's it's not really chlorine, or such a small amount.
And, the ATEC scores claiming recovery are parent generated online surveys.
I haven't used colloidal silver on my daughter, either. Am I perfect? Oh no. Believe me, I have made my mistakes.
Some of the methods I've used with my daughter, high dose IVIG, a blood donor product, or even, yes wait for it, Risperadone,
would have me condemned by many other parents. So I am not judging. Please, I really am not. We all have our own comfort level, our own types of Dr.s, even.
Maybe I'm just a worn out Mom, who followed and became obsessed for years on the 'next' thing that would 'fix' my daughter. And there is always the 'next thing.'
So there is my confession on Lyme net. My journey has left some PTSD, and in the end, a little girl I love more than life, that perhaps cannot be 'fixed' in the manner I think it should be.
She is coherent and typical enough at this point that I don't think I can put her through anymore- and I have treated and treated her for years.
I am not saying we are done, because I don't know what her future holds. None of us do.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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2roads
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posted
amen surprise, I am right there with you.
I made a terrible mistake giving my son, the agrisept and the enula.
It changed him. Made him worse.
He will now have his hurdles.
I treated him for years too.
I prey he was the way he was, not now.
I am done.
I don't know what the future holds for him, but I can't put him through any more either.
Hugs to you
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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2roads
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posted
up
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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2roads
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posted
boxermom,
are you taking it now?
how long were you on it?
thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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