posted
I started treating Bartonella last month. I am on 600mg of Rifampin as well as Bactrim DS, plus a whole bunch of herbals and supplements.
I had my doctors visit yesterday. Next month, my Rifampin dosage will be doubled. However, before that, I am being put on Minocycline. I am terrified of taking it.
I have horrible head pressure/sinus pressure morning day night. I was warned that if after 30 minutes or so I get a very bad pressure headache, to stop taking it. It can cause intracranial hypertension and can trigger Pseudotumor cerebri???
This is something I definitely do not need. I do remember a while back talking to 2 people who has horrible head pressure as their main symptom and they took mini, and it actually helped it go away??
I really don't want to end up in the ER or something bad happen.
Does anyone have any experience with Mino in relation to head pressure or know someone who does?? I am willing to tackle bartonella as much as possible to see if that is what is in fact causing the head pressure.
I tested positive for Babesia but after almost a year of treatment, the head pressure didnt change at all. I had zero classic babs symptoms.
Thanks.
Posts: 251 | From Baltimore | Registered: Oct 2012
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posted
I was really worried about intracranial hypertension when I started doxy two years ago... I had horrible headaches on a super small starting dose.
I was so worried that I went to my eye doctor to see if my optic nerves were swollen. They were fine .
I have almost every risk factor for ICH - and have never had had a problem. I know it will always be a risk but now I love my doxy and couldnt function without it .
The doxy plus lots of methyl b12 and hydroxy b12 are the two things that have really helped my head pressure.
Lots and lots of lemon water helped me get through the herx headaches
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi there,
I understand your concern about trying a new abx. I am like that everytime one is added as well.
My primary symptom, that I found most annoying is head pressure and pain.
I started on doxy, added tinidazole, added clarithromycin.
Head pressure high. For months I imagined drilling a hole into my head to relieve the pressure...the pressure was consistently terrible. Memory problems worsening.
Doc put my on mino, and warned me about the dizziness or vertigo side effects from mino. (I guess mino is one of those abx that penetrates the middle ear, which can cause these side effects).
I am lucky that my doc prescribed mino. It was the turning point for me for reducing my head pressure.
I had ZERO side effects.
Unless relief from head pressure is considered a side effect, haha.
I no longer take clarithromycin.
Cryptolepsis for babs, tinidazole and mino.
If you are feeling anxious about the mino, try to remember that it is frequently prescribed to people for acne. Some people take it for years and years.
Just listen to your docs advice and remember to breathe. Mino may be the turning point for your head pressure also Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Thank you!!! I am going to start it on Sunday. I'll update to see how it goes. Do you have Bart or do you think it was the Lyme which was causing it?
Posts: 251 | From Baltimore | Registered: Oct 2012
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Wow - doubling 600 mgs Rifampin is a lot. That would cause head pressure.
Greta - good tip about Minocycline. Do you take 100 mgs a day?
Posts: 2232 | From USA | Registered: Aug 2009
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
A small 50 mg dose of Mino is keeping my brain fog at bay. I have nothing but good things to say about it.
posted
I was on Mino for a short time. I gave me electric shocks every time I moved my eyes. It is a side effect. Don't assume it's a herx if it happens. Call your doc right away and let him know. Mine said stop immediately.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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