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» LymeNet Flash » Questions and Discussion » Medical Questions » Rifampin-Started-still nervous-Need a Pep Talk (Page 2)

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Author Topic: Rifampin-Started-still nervous-Need a Pep Talk
GretaM
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Surprise-thank you! I needed some serious propping up today-I could feel you there with me [Smile]

Thanks again [Smile]
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
GretaM
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Lisa-thank you so much for the tip on the migraide. I will certainly try it.

I am like you-didn't have migraines until the first tick got me.

I am hoping that them getting worse is a bartonella herx.

I have one more week at 300 mg day...normally I am impatient and want to rush into everything-but I am definitely not rushing in with the rifampin!

Thanks again for the tip [Smile]
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CD57
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Also Rifampin itself can cause nasty headaches, just so you know.
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GretaM
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Thanks CD57.

Always good to know about the side effects...

Head feels OK today...nodules in feet are bigger and swelling around Achilles is worse.

But totally manageable-much better than a migraine brain...

[Smile]
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lyme in Putnam
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Good thoughts Greta. Rifampin was tough for me. ,I just never have the patience to see it through when herx is that tough. I'm almost all neuro.

--------------------
He took u to it, He'll you through
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GretaM
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Lyme in Putnam- thanks for the good thoughts [Smile]

I'm not very patient either, but I do feel like this is so powerful I need to try. (at least that's the talk I have with myself about once an hour, haha)

Best wishes [Smile]
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GretaM
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My head felt great today!

Pain and pressure free!

This is the tenth day (in total), without a headache or migraine since Dec 2012.

I am so grateful for the great feeling head day!
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lax mom
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Yay! So glad it's working!

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0
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Lymetoo
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quote:
Originally posted by CD57:
Also Rifampin itself can cause nasty headaches, just so you know.
-
I had to quit on Day 5 due to the Rifampin itself.

--------------------
--Lymetutu--
Opinions, not medical advice!
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Lymetoo
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quote:
Originally posted by GretaM:
My head felt great today!

Pain and pressure free!

This is the tenth day (in total), without a headache or migraine since Dec 2012.

I am so grateful for the great feeling head day!
-
Hope that continues!

--------------------
--Lymetutu--
Opinions, not medical advice!
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Sammi
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GretaM, I am so happy it is helping!
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LymeSwimmer
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Awesome news!
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GretaM
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Great news!

Today my head feels great again [Big Grin]

Two days in a row!

Yippee!!!!

Thanks for the good words, all [Smile]
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Jane2904
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Yay!!! I am glad the Rifampin is helping. [Smile]
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GretaM
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Yes I really think it is. I had two great days in a row, one or two not so great days (they all roll together when the brain pain kicks in) now another great head day.

[Big Grin]
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GretaM
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Head is pressure free but the bone and leg pain is unbelievably bad!

I am maxed up on my NSAIDS, taking berberine and magnesium.

Pretty sure this is a lyme flare.

It feels like sciatic nerve pain down my left leg (left side always affected more) and like a broken knee cap with pinching around the knee joint.

Any one have any suggestions for this pain?

Thanks
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Lady11
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How are you doing now Greta?
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Lady11
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How are you doing now Greta?
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GretaM
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Feel like rifampin has helped me the most.

Today, trying to figure out how to take zithromax.

Bit of confusion between the pharmacist and my docs instructions.

Have been fighting a fair bit of depression lately.

Not sure what coinfection is causing that.

Leg and feet pain still at an all time high.

But only about one major migraine a week now, and about 2 days a week where my head is pain and pressure free.

Really grateful for the rifampin.
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