posted
Okay, here's the new deal from my LLMD. Maybe someone can offer experience or advice. I'd much appreciate it since I'm new to this.
I was diagnosed in April. Was on Doxy for two months until I could get in to see LLMD. He put me on 1) doxy (200 mg / day), Clarithromycin (500 mg / day), and 3) Cefuroxome. Plus some supplements such as andrographis. Of course, more than 100 bill probiotics a day.
So I did about two months of that and not much more improved since the initial Doxy. In fact my eyesight deteriorated and the jabbing, pinching and burning on my shins and feet got worse -- or seemed that way, but they didn't go away. Along with a rash on the palms and soles.
So he quickly said I had bart and he was going to treat me for that. So he put me on Bactrim and the Clarithromycin. He said to stop taking the Doxy and Cefuroxime because I could only handle so many antibiotics.
He also told me, since I am in the middle of a move from Penna. to Florida, when I get there to share his recommendation with the doctor I find. That would be:
- IV Rocephin - Oral Biaxin, Plaguenil and Flagyl - IV Glutathoine to detox
He said this combo is what made him better eventually.
So I'm looking for the best lyme doc in fla. Found someone everyone seems to agree is heads above ... expensive and far away, but I'm willing to try anyone. She is integrative, even does rife and acupuncture. I filled out the 15 pages of paper work to apply and hope to get in within a couple months, or within the month hopefully.
But what people in the state lyme are telling me is to try my best to avoid IV's ... that the doc they recommend can make us better with orals and other remedies.
I'm also concerned I'm not treating the bart right and that I need to be tested for other things.
I could get in more quickly and better afford two other doctors closer to me who treat lyme, but they don't have glowing reviews,
Any opinions on the protocol I'm on for Bart and stopping the lyme treatment such as my doc did? Any opinions on the aggressive recommendation he made? And should I just get in and see someone ASAP, ask for those things....or what is your experience.
Thank you in advance for your time and support, SusanH
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
| IP: Logged |
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Rash on palms and soles is characteristic of Rocky Mountain Spotted Fever. It is a dangerous infection. The abx of choice is Doxy.
Be sure your new doc includes that in the differential diagnosis. You should mention it to your current doc. You may need to go back on Doxy right away.
As for protocols, we are all different. What works for one may not work for another. In fact, that is the norm and part of what makes these infections so difficult to treat. We all respond differently.
Hopefully some Floridians will respond. Local Lyme support groups can be invaluable resources.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic