Topic: Pentosan (Elmiron) for Interstitial Cystitis?
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Was researching Pentosan for my horse. To my surprise I read that it is used for IC. (human of course). I think it is compounded. Anyone heard of this? Tried it?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
I am taking elmiron and also having bladder instillation(I think it's called Rimzo) It's helped me so much! I used to get up at least 7-10 times a night to use the bathroom, lately, it's been just 3 times and one night I just had to get up once.
I don't have any pain, but I did have a lot of pelvic pressure, frequency and urgency.
Posts: 287 | From somewhere | Registered: Oct 2011
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posted
I'm taking it. I've been on it 2.5 months and I think it helps.
I just had my first LLMD appointment yesterday and he says most his Lyme patients bladder issues resolve with Lyme treatment,
Posts: 22 | From San Diego | Registered: Sep 2013
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posted
I tried it yrs ago stopped it after it was making my hair fall out --a side effect--- my bladder improved with lyme treatment
Posts: 315 | From USA | Registered: May 2005
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