posted
Thanks! I'll check it out
Posts: 22 | From San Diego | Registered: Sep 2013
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Keebler
Honored Contributor (25K+ posts)
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posted
- I had reactions to it (although not side-effects per se). The difference in "reactions" and "side-effects" is that with "reactions" I think of it as this is just not working for MY body, this point in time, perhaps due to METHOD used.
I very slowly ramped up from 1.5 mg and from the first day, I was much worse with symptoms that I had not had in years, very strong.
I was on the suspension with almond oil and I suspect that the hydrocloric acid component (it IS Naproxone HCL, after all) is what so irritated my mouth, tough, throat, etc. My ears also hurt tremendously and urinary issues intensified.
All over body pain was more severe than in recent years, taking me back to when this all began, it was that bad.
Three weeks, working up gradually was all I could tolerate. Now, it may be that capsules would be better than the oral suspension.
I may try it later and start over with capsules but the capsules are so much more expensive in low dose and not sure I could precisely use empty capsules for the right dose on my own if I got the regular dose.
I sure don't want this to touch my mouth again.
I've never been able to tolerate much acid, even citrus. I do think, for me, the HCL form is what caused the issues, though I can't be certain. -
[ 09-14-2013, 04:54 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- 3 mg is far too high of a dose to start with. It should be 1.5, or even half of that.
Still, with your reaction, you should stop and talk with your doctor about this on Monday. I would not give up on it but start VERY low dose and settle on effects for a while before ramping up to next step. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Judie
Frequent Contributor (1K+ posts)
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posted
I had a bad reaction to LDN. I was on such a low dose (like 1mg or less). I can't remember.
Stuck with it for a week then had to stop because I couldn't function. It made me a loopy, space case and I felt high as a kite but couldn't come down.
I didn't feel pain because it made me not care. This might be good though if someone is in horrible pain and just needs relief.
I have bad pain, but I was losing my mental faculties on LDN. It took about a day for me to go back to my usual.
Everyone is different. What's low for someone is high for someone else, which is what I experienced.
Yes, I heard you need to treat Lyme before taking LDN (which is what I did).
Good luck. It was no miracle for me, but I'm really glad it helps others.
Posts: 2839 | From California | Registered: Jul 2012
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Judie
Frequent Contributor (1K+ posts)
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posted
I had a bad reaction to LDN. I was on such a low dose (like 1mg or less). I can't remember.
Stuck with it for a week then had to stop because I couldn't function. It made me a loopy, space case and I felt high as a kite but couldn't come down.
I didn't feel pain because it made me not care. This might be good though if someone is in horrible pain and just needs relief.
I have bad pain, but I was losing my mental faculties on LDN. It took about a day for me to go back to my usual.
Everyone is different. What's low for someone is high for someone else, which is what I experienced.
Yes, I heard you need to treat Lyme before taking LDN (which is what I did).
Good luck. It was no miracle for me, but I'm really glad it helps others.
Posts: 2839 | From California | Registered: Jul 2012
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nefferdun
Frequent Contributor (1K+ posts)
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posted
More than likely you are herxing on it. When I first tried LDN I had bladder irritation so bad I felt like I would scream. I was up almost every hour all night long. I thought I was having a very rare side effect. Even if I only took 0.5 mg I still had an increase in bladder irritation. I stopped and started it several times , finally giving up.
Several months later I tested positive for protomyxzoa and began treatment with ivermectin. Right before starting ivermectin, I was having a hyperactive thyroid flare. I couldn't sleep and lost a lot of weight. I was extremely irritable. I have Hashimoto's which is auto immune and LDN is supposed to be good to stop attacks so after a month of misery, I decided to try LDN again.
I had no problems at all. By the time I got to full dose, my thyroid was functioning normally. In about two mouths using ivermectin and the LDN (as well as methy cycle mutation supplements) I was very close to remission.
I am certain the LDN was causing a herx. Protomyxzoa causes bladder irritation. Whenever I begin to relapse that is one of my first symptoms to return. Most of the time now I get by without drugs except for the LDN. I only take ivermectin when I feel a return of symptoms. If I stick to the diet that is once every two weeks or so.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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posted
You can buy 50 mg tablets of Naltrexone from River Pharmacy online. Then you mix it yourself in distilled water. That way you can start as low as necessary.
You can buy a 10 ml syringe from Kmart and a 1 ml dropper. Cut the Naltrexone tablet into quarters so it dissolves. Add 50 ml of distilled water. Every 1 ml dropper will be 1 mg of naltrexone. Slowly work your way up.
It does not matter what time of day you take it. If it causes a sleep disturbance, take it in the morning.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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posted
Keebler, I really wonder if you have protomyxzoa. Have you tried ivermectin and the low fat vegan diet?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
How do I get tested for protomyxzoa? Is there a long treatment course?
Im doing an anti-candida diet (which is near impossible). Why a vegan diet? Does meat affect it?
Posts: 22 | From San Diego | Registered: Sep 2013
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Keebler
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posted
- I've never "officially" treated any of the several TBD (it's been just doing the best I can on my own due to lack of LL doctor access) so that could be something to consider, too.
It may well be that any untreated or undertreated chronic / stealth infection might not do well with this . . . or it may just depend on the individual.
I have no way to access those kinds of Rx. That is just not possible for various reasons. Also no way to get the FL 1053 test.
I do take certain strong herbs that are similar to the Rx you listed.
Do you know of specific herbal protocols for this?
I am thinking of researching RIFE in terms of this, though.
I must have certain kinds of fats in my diet to protect against seizures. I do think - for myself - there are other ways to address this besides severely limiting fats (to the degree that Dr. F suggests) and magnesium. I can do neither (problems arose in past when I tried).
Might you have any idea of any RIFE frequencies for this. I see that the Rx you took / take are anti worm / anti parasitics. I might assume that RIFE frequencies for those things might come close but there are hundreds of frequencies in that category.
It would be nice to know if anyone has thought about RIFE and, if so, might have specific frequencies.
I've been meaning to post this over in the rife discussion thread. And, if you do have detail, it may be best to resume the discussion over there so that this thread is not high jacked.
Or, if you have other ways to approach this for those with no access to any kind of MD or Rx, then, maybe start a new thread? -
[ 09-16-2013, 05:32 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- jjekblad
Until Pam can answer, cross search at Google Advanced Search for: Fry Laboratories, FL 1953 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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