posted
Hi all, I am curious about immune modulation. I am aware of the various supplements, herbs, and diets that exist. I am looking at prescription medications. I am on LDN at the moment. Are there other Rx routes to boosting immune system?
Posts: 77 | From Denver | Registered: Feb 2012
| IP: Logged |
posted
I am also aware of gamma globulin but I know that is not an option since my IGG subclasses are not out of range.
Posts: 77 | From Denver | Registered: Feb 2012
| IP: Logged |
posted
What brand of transfer factor
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Sargramostim (GM-CSF) & similar drugs stimulate the immune system...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I think Keebler posted previously that it's not a good idea to try to stimulate the immune system unless your LLMD is guiding you.
I recently went to an Integrative Dr with that same goal in mind. He put me on mistletoe injections to boost my immune system...great idea in theory, horrible in reality.
It seems like even though my immune system is weak in just about every way, it must also be over-reacting in other ways...if that's possible.
posted
i tried gamma globulin and g-csf. had high hopes, spend lot of money - but it didnt help.
Posts: 214 | From Home | Registered: Apr 2011
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As lax mom conveys my thoughts, indeed, any immune modulation MUST be guided by a LLMD or LL ND. Lyme changes so much about immune function in ways that anyone not LL could really mess up.
"Modulation" is the right idea, though. Not a boost but a support, a balancing approach.
When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Be aware that integrative doctors can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first. Some have learned on their own from experts in the field. There are many ways to acquire knowledge and most are eager to share basic details about their training. You want someone with a deep knowledge.
Some of the specialities above may not actually treat lyme yet, for things such as physical adjustments, it is just good that they are also LL, at least to some degree (to know never to suddenly twist the neck or spine).
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I love certain mushrooms. I think they hold great promise for many things. But, again, guidance by a LL doctor is essential, be that in person or through their writings (if in no physical access to consult).
Medical Mushrooms -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry, I just reread your top post and saw " prescription medications" for "boosting immune system" -- my eyes skipped over that the first time.
Even if you go with prescription only, it is absolutely vital to be guided by LLMD. "Boosting" immune function can result in catastrophe for someone with lyme. Only a LL doctor will understand how to properly support / modulate for someone with lyme, and all that goes with it.
Lyme dismantles immune function in several ways.
The TH1 & Th2 immune "stuff" is flipped from what is typical. One part is so overwhelmed it just can't take any more pushing. The part that is revved up too much needs to be soothed, not pushed.
The nutritional supplements offer "food" so to speak.
Transfer Factor is said to be very helpful for many. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
You guys rock. So here is what I am already on:
1. 1500 mgs of beta glucan. Stuff is a godsend. HHV6 IGG titers went from 1:640 to 1:60 in 3 months on this stuff.
2. Transfer Factor Multi Immune
3. Xymogen IGG- 3X more powerful than colostrum
4. Thorne Myco-Immune (Mushrooms)
and I am on a variety of herbs....a combo of cowden, buhner, and byron white.
I have a top LLMD and my integrative MD works along side with her.
I have laid off the LDN. I know I have yeast and I think it is making the problem worse.
I have been on a TON of abx and I am to the point where I am starting to come off them as I am at 90-95% almost everyday. I work full time, go to the gym, hike, etc.
Posts: 77 | From Denver | Registered: Feb 2012
| IP: Logged |
posted
I should say I am still on abx. My protocol has been mepron, malarone, biaxin, bicillin, tindamax, bactrim, and levaquin. I am off levaquin and bicillin at the moment.
Posts: 77 | From Denver | Registered: Feb 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic