posted
I'm a newbie. But I swear my spirochetes are nocturnal. Why do I do so very well (pain levels 5,6,7) during the day and then 10PM rolls around and levels 8, 9, 10 kick right in?
I also notice that I cannot get comfortable in a horizontal position; I must sleep somewhat upright. Is this usual? (I suppose nothing is "usual" but is it that odd?)
I can almost hear them drilling...
"...and the worms ate into his brain..." - Pink Floyd
Posts: 7 | From Poquoson, VA | Registered: Nov 2013
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Have you asked your doc for something for pain---like Neurontin, for instance? Also, make sure that you get enough magnesium! That helps a lot.
Posts: 3792 | From around | Registered: Mar 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Have you asked your doc for something for pain---like Neurontin, for instance? Also, make sure that you get enough magnesium! That helps a lot.
I prop myself up in bed for that reason with a couch cushion, creating a wedge-like incline. You can buy foam wedges, I just improvised. It helps me to have somewhat less migraines in bed (still get them though).
You have to be able to get good sleep, which is a big problem for most of us.
Posts: 3792 | From around | Registered: Mar 2008
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I started on neurontin for the pain before I ever had I diagnosis (which I have to say I am very grateful to a non-llmd acupuncturist/ neurologist for testing me for the FIRST time I ever saw her). I went to see her about the pain (thinking pinched nerve) and she did "some blood tests" , prescribed neurontin to help me keep from jumping off a bridge, and gave me accupuncture. I got a call a few days later telling me that I have Lyme and getting me on doxy.
I hate being reliant on medication for anything. I'm happy to do antibiotic treatment, but I do not want to treat symptoms (neurontin, motrin) instead of cause (doxy). I'm trying to start the step down off of the neurontin so I can tell whether I think the doxy is doing its job.
I have this wonderful giant bean bag type thing called a Yogibo (borrowed from my son) that is very helpful in making me semi-upright and comfortable enough to get a couple of hours' rest, so that's comparable to your wedge I suppose.
I was wondering what the physiology behind this is. It doesn't make sense as I can take a daytime nap in the horizontal position.
Thoughts?
Posts: 7 | From Poquoson, VA | Registered: Nov 2013
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I would get a grounding mat. I recently bought one of these because I like low risk treatments that are easy.
I do not have Lyme but I do have Crohn's Disease so inflammation is a big part of it. I had slight hip pain when sleeping. Not super bad but after just a couple days it is gone.
The science is pretty solid on this and Dr. Mercola has info on his site on grounding.
It can reduce the level of inflammation which is usually involved with pain.
Not a cure all, but a low cost effective way to keep inflammation to a minimum.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Yes yes yes!
As soon as I stop moving, the pain in the bones of my body skyrockets!
It is deep bone pain, mainly in the large bones of my body, and is only "better" with movement, or if I rub the bones.
It feels at the very least like the bones are broken. At the very worst, the signals returning to my brain tell me my legs are being crushed.
I am on meds for nerve pain.
I attribute this pain to Bart.
I sleep with a grounding pad also.
I don't know if it has helped me...the pain is bad anytime I lay down, but I do believe the principle and theory behind grounding is sensible.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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