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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone read this book: Reversing Chronic Lyme Disease?

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Author Topic: Anyone read this book: Reversing Chronic Lyme Disease?
VV
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http://www.amazon.com/Reversing-Chronic-Lyme-Disease-Conventional/dp/1481741470

I'm reading this today, wondering if there is anyone who has tried to incorporate therapies form this book.

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Catgirl
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I cant tell from amazon what therapies he has tried or refers to in his book (vague). Can you give us an idea?

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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VV
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It's a very mixed approach based non-pharma combinations.

In fact the main goal is to rotate substances every 1-2 weeks.

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VV
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He discusses biofilms a lot as the main culprit for persistent infection.
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Judie
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I found a copy of some of the pages on google books.

Olive Leaf and vitamin C seem like pretty standard supplements.

I like that on page 160 he says there's no proven cure for chronic Lyme disease. He seems to emphasize to find the individual method for you.

Attitude may help people to cope, but I don't think it should ever replace medical care.

I also like that on page 157 he says that "our immune systems alone are not sufficient enough to overcome infection alone."

It's interesting that he mentions NAET. That was one of my most failed treatments that I did for allergies. I'm glad that he says that treatments like these don't work for biofilms.

On page 152, it says you have to change yourself from a victim mentally to a survivor mentality or you won't get well.

I find this to be "blaming the victim."

I agree with determination, it helps so you don't give up.

I've known too many people who have tried "mind over matter" to get rid of illnesses and have gotten worse believing their mind and spirit had to be willing to heal or their physical bodies would not.

One I know even died doing this practice. It still saddens me to think of her.

I did this mental practice of "iron will" stuff for 2 years several years ago with another chronic illness. I got progressively worse while working with an alternative doctor but I kept my "spirits up" that I would conquer this.

Well, 2 years later I wound up in the hospital severely ill.

I was totally depressed and felt defeated.

One doctor was able to help me and my health was turned around for the better in 2 weeks.

I was at my emotional and spiritual lowest and that's when my body started healing.

This was a BIG lesson to me that my mind WAS NOT effecting my body healing.

My decisions and practitioners were what helped the most.

Even dealing with Lyme now, monitoring my physical symptoms and making adjustments as needed has been the most beneficial for treatment plans.

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VV
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"On page 152, it says you have to change yourself from a victim mentally to a survivor mentality or you won't get well.

I find this to be "blaming the victim.""

I don't think it's a matter blaming the victim, but realizing full well that it's your responsibility to get better. At the end of the day no one is going to end up on your doorstep with cure.

"This was a BIG lesson to me that my mind WAS NOT effecting my body healing. "

Well, there is a lot of science to the contrary.
http://www.livescience.com/8158-optimism-boosts-immune-system.html

Of course it is difficult to even conjure a half-positive attitude when feeling so dreadful and being bombarded with stuff like quinolinic acid in the brain. Telling a person with severe Lyme to cheer up is kind of like telling a rock to be a cloud. I get it.

Anyway, my interest is not so much in that as in the protocols near the end of the book. His basic mantra is "damage/kill/clean up", "damage" referring to breaking up biofilms, "kill" referring to kill the loosened pathogens and "clean up" is the mop up of toxins/debris, all in chronological order.

He goes on to categorize herbs/substances into one (or more) of the three and suggests doing something in all three categories.

A simple example would be:
lumbrokinase/Samento/chlorella

He suggests changing up the routine every 1-2 weeks and also using multiples from each category.

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surprise
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Judie, reading your post was very timely for me.

Honestly, I've come extremely close the last week of throwing everything away, all Lyme scripts, herbs, books, swear off the Internet,

and not look back. Go try and live life.
It's very strange lately, in the same day I can go from feeling pretty okay,

then a bout of depression hits and I want to throw in the towel on all of it. Yes, I am treating right now, flagyl is probably the culprit.

I am getting very sick of all Lyme all the time.
I think: I walked around for decades not knowing anything,
wondering if I'm better off knowing now?

I guess I need to find a hobby. A free one.
As for the book, I am sick to death of supplements.

Between my daughter and I, I've spent thousands of dollars
'Trying and Rotating'. I think I honestly have a supplement buying addiction.

Sorry to be down- and I do repeat positive affirmations, pray, etc.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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Judie
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Hi Surprise,

I'm glad I could help. Please don't throw in the towel.

Our bodies are like jigsaw puzzles and I believe each one is unique. All these herbs, supplements and meds we take are just pieces of the puzzle. Some fit and some don't.

If you feel like crap, take a day or half a day off and do anything not to think about health stuff.

I use to go to a pet hospital that had an adoption center and spent time just playing with the kittens and petting the cats. Maybe there's something like that that you can bring your daughter to.

Sometimes we just need a mental break. This stuff is maddening.

VV - I respectfully disagree. I think positive thinking may help some people as an emotional coping skill. Any form of it has not worked for me when it comes to healing my body.

I've read the book "Bright-sided" by Barbara Ehrenreich and it has science to the contrary. It was prompted by her experience with breast cancer (which is what my friend died of).

Here's a video about Ehrenreich's views, that starts with commentary about layoffs:

http://www.youtube.com/watch?v=u5um8QWWRvo

I also like what Dave Chappelle has to say about positive thinking:

http://www.youtube.com/watch?v=WbS9jZOlQjc

Healing for me has taken the perseverance of finding the right meds and doctors for my body and being realistic when something is not working.

It hasn't had much to do with attitude for me.

I'm naturally a tenacious person and being bed-ridden for 2 years with the first chronic illness I deal with broke my spirit.

Having a new doc who believed in me and knew how to treat me, helped me see progress in 2 weeks by changing my meds and supplements.

This brought hope back to me after having a doctor say it was "mental" why I wasn't healing after 2 years of working with a so-called expert.

Having Lyme is like a repeat of the other experience.

A month ago I just saw a quack acupuncturist tell me I didn't need antibiotics or herbs to heal from Lyme. She told me to visualize "healing angels" while on the table and that I wouldn't heal unless I stopped thinking about my health all together.

I've been so sick I've been having trouble walking or moving. Her session did nothing.

Flash forward to the new LLND that just set up practice by me.

I saw her last week and she started me on a whole new regimen. I herxed a few days and I'm finally slightly functional.

I just got back from the bank and shopping for groceries which has been impossible for months.

I just wanted to put some caution out there for if someone believes that changing their attitude will help their body heal, it may or may not work for them. It didn't work for me and it was crushing the first time around having someone blame me for that being the "reason" I wasn't healing.

[ 11-04-2013, 08:12 PM: Message edited by: Judie ]

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VV
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I think I am being misunderstood here. I am not suggesting positive thinking as a substitute for abx or other protocols, I am only saying that it has the ability to aid in recovery.

Of course if you don't get treatment, your chances of recovery will be slim to none.

Also, this wasn't really the point of my post as it is only a minor part of the book I mentioned.

I am mostly interested in treatments he suggests (with an emphasis on combinations and rotation).

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Catgirl
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What does he use to treat biofilms?

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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surprise
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Thank you Judie----------

Sorry VV for the vent on your thread :-/. Having some gut issues again, makes me cranky. And dd back on antibiotics. Oops, venting again.

I took Bouloke while on combo antibiotics, and now I'm on Wobenzyme, and I have to say, I can *feel* it, and can't get over 2-4 a day.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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VV
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Catgirl-

Oral EDTA, Lumbrokinase, serrapeptase, Rechts Regulat, "Mixed Oxidants" (including ozonated water, MMS, H202, and something else I can't recall), Sanicle, Carnivora, Sparganium/Zedoaria, No Fenol, Royal Jelly, Gallium Nitrate, essential oils (cinnamon, clove, tea tree, rosemary, eucalyptus, and peppermint), Banderol, berberine.

I don't know what half this s**t is.

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VV
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Surprise- Sorry to hear of the cranks [Frown]
I know where you are coming from.

I just started Nattokinase. What do you mean when you say you can feel the Wobenzyme?

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surprise
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Well VV, it is strange. I'm on Bactrim and now flagyl, but when I take the Wobenzyme (empty stomach, 2-3 pills)

I feel my hands and sometimes feet tingle more- before I started the Wobenzyme, I developed swelling and joint pain
(first time) in my right thumb area-

that is gone now. But still tingling on and off extremities (not from Flagyl) feels like it's from Wobenzyme - maybe getting treatments further.
I am taking the flagyl for my gut.

The Wobenzyme is suppose to eat fibrin-
Natto I tried once, couldn't tell anything-

EDTA for biofilms (while on antibx) I did for 4-6 weeks, then, I intuitively felt it was starting to pull minerals from my teeth and bones, stopped and done with that-

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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VV
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Flagyl for gut? How so? Proto?
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surprise
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No, presumed bacterial infection (like SIBO) in gut-
I figured, what the heck, I'll give it a go.

And, it hits parasites and Lyme. I did a lot of Tindamax before, never Flagyl.
It's been *interesting*

Okay, I hate it. But if there really is SIBO (and there's a good chance) need to finish script. I am so ready to quit tho.

Anyway- sorry about your thread- don't think I'm going to buy this book, waiting on Dr. H's new book to arrive,

which I'm sure will wind me up with more anxiety.
Sorry. Cranky. I'm going to stay quiet now.

Judie- I would LOVE time off, and WILL take it once this Flagyl is done.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
   

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