randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
My recent ctrl scan shows
Scattered colonic diverticulitis. Stable tiny 5mm cyst in the lower pole of the right kidney. Stable 5mm bone island in the right Iliad wing. Arthritic changes are noted at six joints. With multilevel degenerative disc disease and arthritic changes in the kilowatts spine.
Haemoglobin was high at 16.3 Glucose was high at 105 Globular was high at 4.1 A/g ratio was low at .9
Doctor said everything was perfectly normal. I can't eat without severe pain. Only on water and am passing orange floAting Riley looking spots.
I actually lost control of my bowels this morning sitting on the sofa...thank.god I had my light depends on. It was mostly orange diArrhea. Am not sleeping for the pain.
What's going on? Gosh I hope it's not the pancreas.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Many (of not most) with chronic infection have "fatty liver disease" - the infection can cause inflammation (&/or thickness &/or scarring) in the liver that leads to this. Diet matters but is not at all the only connection.
And weight is also not necessarily the connection that some might think. This can affect very thin people, too.
Acetaminophen, certain Rx, can also damage the liver and any damage can lead to "fatty liver disease."
Be sure to research EVERY OTC product, EVERY RX. Cross reference with Google for "liver" -- and read the fine print.
And also EVERY ingredient in foods. Especially many restaurant foods, they can just kill a liver due top the additive and prep methods. Any fat that gets too hot can "kill" the liver, so to speak. Stockyard "factory" meats, too.
There are lots of things that can help that, though, specifically addressing all infections, inflammation management, nutrition through excellent choices, gentle movement but not aerobic if infection is on board (that can stress a compromised liver), rest, key herbs.
Pilates, Yoga, Qi Gong, Tai Chi, etc. are all very gentle yet very helpful for the liver's circulation support.
A LL ND would know best. It's a detailed plan of action. YOur LLMD should also know a lot as it's very common in those with lyme - still it must be addressed so healing can take place. If left unaddressed, it can be impossible to make headway. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Dietary Control. Controlling one’s weight by regulating fat intake and overall nutrition is very important. Limiting daily calories and avoiding foods high in saturated fat. Regular exercise is also important.
Anti-oxidant and Multiple Vitamins Supplement
Anti-hyperlipidemia Treatment: Many western anti-hyperlipidemia drugs are hard on the liver, so using alternative Chinese herbal remedies can be suitable for NASH.
By maintaining a healthy diet, the blood lipid level can be reduced along with fat deposits in the liver.
Facilitating bile secretion helps eliminate bile acid and reduce fat deposits in the liver.
Anti-fibrosis Treatment
Controlling liver inflammation and Facilitate Restoration of Liver Functions
Help heal liver inflammation and increase the liver's ability to metabolize fat and reduce accumulation -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
They took 4 vials of blood and did ctrl scan.blood pressure was 224 over 157. In fact they would not take it the third time because the cuff was causing extreme pain so they stopped. They kept giving me little pink pills. It got down to 140 over 90 and they said that was good enough.
They were more concerned about the blood pressure than the abdominal pain.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I have early NASH (fatty liver + inflammation and slight damage).
My LLMD seems to put all of the blame on me, but I feel that massive meds/supps hasn't helped either.(add to that I have a genetic tendency toward fatty liver based on my 23andme test) He feels that diet alone will reverse it...we'll see.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- lax mom,
I don't know your habits have been (if processed foods, those can damage the liver), yet, for anyone with stealth infection, all the blame cannot be on the person. Besides the infection(s), are the Rx that can be hard on the liver. (Why support is essential but, even then, it's not a picnic).
As you point out, the genetic wild card really DOES matter. If the liver cannot properly metabolize, there is going to be some "slush" factor.
I do not think diet, alone, will "fix" it. That's important but only a part. You might want to find a LL ND -- or books by some who specifically address this issue.
The liver links set has the "How to find a LL ND" set in it and, in that, are many books and article by LL authors who shine light on the liver.
But whoever diagnosed the "23 & me" liver details should also be able to offer suggestions for what MUST be on board so your liver can metabolize as best it can. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I get fatty liver from TPN lipids (fats added to IV nutrition). What works is IV Milk Thistle.
So I think milk thistle is something you can take orally to help the liver repair itself and get rid of the fatty liver.
I also think I remember reading Artichoke (the green vegetable, not the Jerusalem type) helps with pulling the fats out of a fatty liver.
I have taken both milk thistle and artichoke and it seemed to help with the nausea and itching from the fatty liver.
Might also be good to take digestive enzymes with food.
And reduce sugar intake as best as you can...sugars make triglycerides in the blood, which can contribute to fatty liver.
Garlic can help with blood pressure normalization.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
My LLMD had me take Milk Thistle and do a couple of liver flushes. The liver flushes were horrible but the first one made a big difference, the sharp pains I was always feeling in my side went away.
I did three flushes over six months (I tried a fourth but just couldn't do it...they're horrible). I had a PICC and was taking handfuls of pills so lots of probiotics and antioxidants as well. I also made big changes to my diet (for Lyme, not liver).
Seven months after starting Milk Thistle my liver enzymes were back to normal for the first time in almost 5 years. My last ultrasound showed my liver is clean.
My LLMD was really surprised, with all the meds I'm on she didn't think I'd get back to where I should be and was ready to take me off some of my meds if they didn't improve.
That was six months ago. I just had my liver enzymes checked again and still good.
Posts: 99 | From Cali | Registered: Dec 2011
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posted
Randi.. Those pink pills may be Verapamil. That is a very good calcium channel blocker. I don't know why they haven't tried putting you on it full time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Randi-i was clinically d x with diverticulitis yesterday because i am having yellow,frothy diarrhea. I believe it is from my mag supp but doc insists it is diver...cuz of color
So i am bringing this up cuz of your orange color-u have a history with diver...too right?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Sorry I'm using my new kindle and can't type worth a dang. Ctrl is supposed to be cat scan. Ill figure this thing out eventually and is got spell check too supposedly....lol
Nope didn't mention anything about changing bpd meds but said to go back to go who prescribed them.
And yes I've had numerous diverticulitis attacks and two hospital stays. Last time my gastro referred me to a surgeon who wanted to take out 12 inches of my colon. I said no way because I know how difficult it would be so I'm doing diet.
As for fat if it's a pancreas and I'm absolutely positive that that technician did damage something then I should do low fat low carb. No dairy no sugar etc.
I was able to eat a 6 inch turkey with low fat mayonnaise on diet oat dark wheat bread today and keep it down course won't really know until about 1 in the morning. Then if thahuit pain starts ill be highly suspicious.
Well at least I'm looking weight. I've read to take circuit,grape seed extract and vitamin c for pancreatitis.
Hope this helps. But drinking only water is tough.
Sorry just read...should be curcumin
Geeezzzzz
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Did you get copies of all the bloodwork done? Check to see if they tested amylase and lipase -- those are the pancreatic enzymes. If those are normal then I don't think your pancreas is the problem.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Weight loss can elevate triglycerides artificially...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Randi-I am sorry you're feeling so awful!
I am sorry about the couch incident also-I'm glad you had depends on.
I've had bladder control issues-I know it's not the same but I can relate to the feeling of not being in control of bodily functions anymore. It sucks.
Thursday seems like a long way away when you're feeling as bad as you are.
I will say a prayer for you tonight.
Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
YeH I got copies of amalyse 157 and lipase 166. They showed as normal. Soo frustrating....
This lyme has destroyed my gi tract. I mean totally destroyed.... Im going to ask for celiac test and some meds for this crap...
My sister has told me to never ever suggest or ask anything of doctors. Says it po's them something fierce.
Well if you cant have a rational adult conversation with these idiots then wth are you supposed to do? Just suffer?????
Nobody questioned my moms drs and look how that turned out.
Id just like a nice cave in Wyoming to go hide in.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Randi, I also have GI issues, which I've been in denial about for a long, long time, managing it on my own.
I have severe anxiety around medical procedures (it is amazing I had kids- they had to give me oxygen because I hyperventilate at the birth)
Soooo. I've been too chicken for further evaluation, thinking I can fix this stuff on my own.
But think I am going to the ER tomorrow for a CT scan. Scared to death.
Just wanted to say I can relate- hope you feel better soon.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
By the way, my H has a fatty liver. He does not drink alcohol, mid-40's, works out regularly in a gym for years,
But. He eats a lot of meat and fat in his diet. Heart disease rampant in the men in his family. He is on statins.
I give H all kinds of supplements, but until he really changes his diet consciously, there is not much I can do.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
My husband had this. He lost some weight and took milk thistle and is now back to normal.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I'm off to the store.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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