posted
I'm confused isn't the number there? I've tested negative for lymes. Could it still be the case. Is it typical to just have babesia? Thank you so much for the reply
-------------------- Emmys Posts: 14 | From Nj | Registered: Nov 2013
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-------------------- Emmys Posts: 14 | From Nj | Registered: Nov 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
From what I've read, only lyme causes a low CD57.
If you're positive for babesia, then there's a good chance you have other tick borne infections.
Do you have an LLMD?
It is important to find one and be assessed.
Your quality of care will be substantially more effective than with a IDSA type doc.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Thank you again for getting back to me. The only reason I found this information out is because I switched Dr's. She put me on azithromycin 250 mgx2 a day and.artimisinin 250 mg x2. Do you think this is a good treatment option. I will look into a llmd.
-------------------- Emmys Posts: 14 | From Nj | Registered: Nov 2013
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Tons have this positive WA-1 test, including me. Not sure really what it means yet. I feel there is some cross-reactivity perhaps with another pathogen. Who knows. Bea has done a LOT of research into it? I don't see many posting here that have a negative WA-1 titer honestly (of those who actually were tested for it).
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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I agree with Seekhelp. I do think the positive WA-1 test indicates a babesia like blood borne parasite. There is some question as to whether the strain is actually WA-1 (babesia duncani) or another strain.
But regardless of the strain the best thing to do is to treat with the standard babesia treatments but to probably at some point add in additional meds such as ivermectin and flagyl.
In theory you could only have babesia, but the reality is that most do have lyme as well. The tests for both infections are not reliable. A positive test means a lot simply because the tests are so bad.
Those CD57 numbers are extremely low, which means that your immune system is not doing much to fight or recognize what infections you actually have.
The Zithromax and artemisinin are a good starting point. But in my opinion, it will probably take a lot higher doses and different combinations of meds to get rid of either lyme or babesia wa-1.
My suggestion is to find the best doctor you can afford and be as aggressive with meds as you can tolerate. The sooner you get aggressive treatment the better in my opinion.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Thank you. The hard part is convincing other family members that I actually do have lymes and babesia. At initial infection I was extremely ill and thought the worse. Had a lymph node removed etc..I was in panic mode and made my family think I was crazy. I was tested over and over for lymes but nothing ever came up. Just the test I have mentioned above. I have been researching lymes dr but it seems that they cost you out of pocket. The dr I have been seeing, the one who found the pathogen is what I can afford. She is covered by my insurance. Unfortunately she is not a specialist.
-------------------- Emmys Posts: 14 | From Nj | Registered: Nov 2013
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Emmys , if you really can't afford a llmd. I would buy two copies of dr. H's new book. Give one to your dr. And read the other yourself. And work with her. Tell her you would like to treat aggressively (as tolerated as Bea suggests) she sounds more with it than most GP's as she included the Artiminisin .
And if your family needs more proof ask this dr if she could help you get an Igenix Western Blot test. Their test is more specific.
Good luck.
Posts: 1728 | From USA | Registered: May 2011
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