I just had a quick question. I am having major issues with sweating. Now, I know you are thinking 'ding ding ding, that's Babs!" I actually don't think it is Babesia at all.
It isn't drenching night sweats. It is just very exaggerated axillary and palmar sweating. I have to change shirts throughout the day and try to camouflage it as best I can. I sweat through layers of clothes. It's ridiculous.
I am using clinical strength deodorant, and it isn't touching it. It is significantly impacting my daily life at this point. I even am getting dehydrated from it.
I have dysautonomia, so I feel like that could be the culprit. I am no where near the age of menopause, my thyroid levels are 'fine,' my hormones look 'fine,'even though I haven't had a menstrual cycle in several months.
I don't think it is Babesia because all of my Babs symptoms I used to have are gone. I have no more air hunger or cough. I now test negative through the good labs. I know there are multiple strands, but I really don't think it is the issue.
Any suggestions? Advice? I've looked into Botox shots, but they aren't covered by my insurance for this problem.
Thanks!
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Mine is caused by Dysautonomia. Are you being treated for that? If so, maybe your treatment needs to be adjusted.
I've been taking Florinef, but I haven't had much relief from it. I am severely allergic to Midrodine...I'm surprised everything turned out ok.
My ADH is low, so I was taking Desmopressin for a while, but I couldn't say it was beneficial.
I have tachycardia, really low BP (almost pass out all day every day), stomach motility issues, etc that I can all link back to dysautonomia.
I've done IV saline on and off for years. I guess it is good when things get really bad--at least in terms of low BP. I also inhale those Powerade Zeros, too funny!
Funny that you should mention the Vandy clinic. I have been really looking into it the past couple of weeks. It is in my backyard, relatively speaking. Do you not think your LLMD would refer you?
I also looked at the research study, and it looks mighty tempting. All of that free healthcare sure does seem great.
My only concern with the clinic as a whole is their view on Lyme. It makes me nervous that they would try to throw steroids at me. Also, we all know that Lyme caused our dysautonomia, but I doubt they will acknowledge that.
It's just tricky trying to figure out what to say/not to say. If you have a port, there aren't many secrets you can keep haha.
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I just emailed a request to be referred to the Vandy clinic. Fingers crossed.
What type of Dr RX'd IV saline? I just know I need that, but have asked and have been dismissed.
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- LL Bean 100% cotton shirts also very helpful. I can't handle even 1% synthetic fabric in anything near my skin. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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