LymeNet Flash: MTHFR

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»	LymeNet Flash » Questions and Discussion » Medical Questions » MTHFR

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Author

Topic: MTHFR

RZR
Frequent Contributor (1K+ posts)
Member # 20953

posted

I have been taking methyl B-12, methyl folate, and P-5-P for about 4 months now.

My labs show my B-12 very high. PCP told me I need to cut way back on B-12.

Does this mean my body is still not able to use the B-12?

Is there something else I need to add to the mix?

--------------------
Tick bite May 2009
Diagnosed June 2009

Posts: 2329 | From SouthEast | Registered: Jun 2009 | IP: Logged |

LymeSwimmer
LymeNet Contributor
Member # 40540

posted

Hi RZR - what were your MTHFR genetic testing results? I will go through my notes and see what info I can find.

Posts: 118 | From New England | Registered: Apr 2013 | IP: Logged |

RZR
Frequent Contributor (1K+ posts)
Member # 20953

posted

I don't know what to look for. I have pages of labs. My LLMD told me 2 years ago I had the "bad detox gene" but never said anything else.

I just found out recently (on my own) that I needed to take certain forms of B-vitamins to help.

Obviously, I there is something missing in my regimen because my B-12 is still very high.

Thanks...LymeSwimmer for trying to help!

--------------------
Tick bite May 2009
Diagnosed June 2009

Posts: 2329 | From SouthEast | Registered: Jun 2009 | IP: Logged |

delljen
Member
Member # 25090

posted

MTHFR mutations effect your body's ability to convert inactive forms of folate and B12 to the active forms.

This thread link is very informative and may help:
http://mthfr.net/forums/topic/mthfr-with-elevated-b12-and-folate/

--------------------
Lyme, Bart, Babs D, FL1953
I am just sharing my thoughts and experiences - I'm not a medical professional.

Posts: 69 | From Midwest | Registered: Mar 2010 | IP: Logged |

cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769

posted

I found this on Amy Yasko's site:

'Because different parts of the methylation cycle function in ways that can trigger effects elsewhere in the cycle, it’s important to address mutations in a precise sequence, especially for three critical mutations: SHMT, ACAT, and CBS. I call these the First Priority mutations. If you

have SHMT or ACAT, please read about them and address them, if needed, first. And then, if needed, go on to address the CBS mutation. If you only have the CBS mutation, please address that one before proceeding to the second priority
mutations.'

I got a list of my genetic mutations at 23andme. They are under fire from the FDA right now. I am really pleased with the info I got from them, and it is really cheap compared to labs ordered from your doctor. I have no affilitation with them in any way --

One can take the data you get from 23andme and run it through a website called GeneticGeni (or something like that). For a five dollar donation she will translate the 23andme data into simple explanations that can start you on your way to treating methylation defects through diet.

Also, google Rich VanK (forget his name -- help, please) he died recently but was a huge help to people who needed info about the methylation cycle.

hope this helps

Posts: 1173 | From USA | Registered: Nov 2007 | IP: Logged |

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