Topic: Bartonella Treatment-Which abx combo worked best for you?
GretaM
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Member # 40917
posted
Hi folks,
I have only read two posters on LN recently who have got rid of bartonella permanently.
It makes me feel like I need to attack 'Ol Bart with all barrels.
If you've been cured of bartonella, which abx combo do you feel helped you the most?
And how long did you treat 'Ol Bart to beat 'Ol Bart?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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nefferdun
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Member # 20157
posted
I think I am re-infected with Bart H. I believe I had Bart Q before. I began treatment with 5 weeks of Levaquin, which knocked it way down but left me with tendonitis and such chemical sensitivity I couldn't use any drugs for 8 months.
I tried to control it during that time with a lot of herbs including Zhang's HH2, cumanda and clove bud oil.
Then I used Rifampin for 3 months but I didn't see any improvement at all. Finally someone on here told me Bactrim DS worked well for her so I asked the GP for it. I could feel a difference in two weeks.
I took Bacctrim for about a year. Then babesia took over. I am not sure when the babesia became the primary problem because I often continued to take drugs longer than necessary thinking the infection was not gone, when it fact, I had a new one in the foreground.
So now I can't get any drugs - I am waiting on a test. In the meantime I am taking HH2 again and Japanese Knotweed. I am also doing the IV EDTA for chelation and biofilm. My symptoms have subsided some.
I am sleeping better, the soles of my feet did not hurt this morning and I don't snap at everyone and everything. I do have de-personalization though and complete lack of motivation to do much of anything.
I am also interested to know what helped others.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Catgirl
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posted
Not cured but doxy and rifampin really helped me. Also added in some zith. I did this combo for 3 months (zith was only for about a month though). Now all I need is A-Bart. My bart is so minimal, it rarely pops up now (occasional sore feet, and a little anxiety). But I am treating parasites so that may have something to do with bart slowly improving.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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TF
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Member # 14183
posted
I got rid of bart and lyme and babs over 8 1/2 years ago.
I took Levaquin for 30 days followed by Bactrim DS (treats bart and babs) for about 11 months.
That did it for me.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I was on Rifampin for about 4 months, then switched to Cipro for 12 months and finally ended up on Bactrim DS for about 3 months.
Stayed on Ceftin pretty much the entire 18 months of treatment with IV Clindamycin.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
This may sound ignorant, but I'm not really sure. I'm the Lyme/ Bart/yeast/ parasite person who had no idea anything was wrong with me,
had my daughter's LLMD tell me I needed to get tested/ it came from me. So, for many years I thought high strung amped up/ impatient was my personality/ life situations.
Having said that, I started with Levaquin and finished LLMD treatment with Levaquin, with rifampin, Cipro, A-Bart, beyond balance Bart tincture, buhner protocol this summer, etc. etc.
For me, it's been all of it, along w/ Lyme, yeast, parasite, gut healing. I can't claim a red flag moment, but rather an accumulation of healing over the last 3 years,
during which I had to walk through some dark valleys. I don't think Bartonella is all gone; in fact if I take an antibiotic for it these days, I do herx.
But I'm off anti-depressants, healthier, a whole lot calmer and wiser, my memory has improved, I have no pains that need medication, and I'm off all Bart herbs and drugs.
For me it has gone in layers- my current layer is gut healing through diet and supplements, and adrenal help as well.
I do feel grateful I was able to tolerate LLMD Bart treatment and I went through it.
I took the Levaquin protocol very seriously, with magnesium baths every night, cautious walking only exercise, etc.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Sorry to repeat myself but for Bart none of the ABX that I was on got me more than about 60% (was on it about 18 months). The edema went down, the severity of the leg pain decreased, and other symptoms improved modestly but I seemed to stall, memory, joint pain pretty much the same. Liver enzymes went up and remained there so my ABX approach was pretty much over.
I tried Ultraviolet Blood therapy with Ozone (10 Treatment) and felt good for about 2 or 3 days but could not seem to sustain the benefit longer than that and it was also costly. I did about six treatments of the Dr G G's (pm me if you do not recognize him) industrial PEMF machine. You certainly feel the treatment but other than the day of the treatment I did not notice a sustained benefit.
I also have been doing the Buhner herbs in March when I realized I could not go back to ABX. So I have been off ABX for a year this month. In June I started with a Doug Coil and that seemed to help a little more but not significantly noticeable until 6 weeks ago.
However I read some interesting testimonials on a PEMF like machine called Ondamed. After the first visit I could tell there was a reduction in my leg pain. I have had about 11 treatments now and think that the Ondamed is knocking back the Bart so that the other approaches can also work.
I have been doing MMS about 5 days a week for almost a month. I travel at times so I do not take it with me on the plane. And I do the two ounces every 60 to 90 minutes for 6 to 8 hours. It is hard for me to be precise with MMS at work. It looks like urine in the company fridge but I just say it is apple juice!
I realize we are all different but that has what has made the greatest difference so far. What my practitioner says that as the Bart load is knocked back the other approaches will begin to be more effective. She had Lyme, Bart, and Babesia and after 3 years of ABX had to go in a different direction. She is about 90% now and getting her ND in May.
Case in point; I was at about 6 minutes treatment time on the Doug Coil and my herx would be the following day day. Just after lunch I would have a two hour power outage, all I wanted to do was nap. Then I would be fine by say 3pm. After the first two Ondamed treatments and I was able to extend the Doug Coil treatment and I am up past 40 minutes and do not notice much of a herx the next day. This to me is big progress.
Now it could be that the Bart freq of 832 on the Doug Coil is no longer working but that does not seem to be the case. Also I can now treat Bart with the Coil every other day but before it was maybe twice a week.
My liver is doing fine and when ever I feel a tweak I take so castor oil or do a castor oil pack and it seems to be fine.
I also realize it may just be taking time for everything to kick in but I notice the improved energy and reduced pain about an hour after the Ondamed treatment. So user do not notice the improvement until the next day.
Still a long way to go but at least it is noticeable progress, thank the Lord.
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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CD57
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posted
Matt H, could you go into more detail about how your ND got her health back from the three infections after 3 yrs abx? was it from Ondamed?
I am trying Ondamed tomorrow. The lady who has the machine says it is complicated to use, that it has to do with checking your pulse. ??
Also has the Ondamed helped with the CNS stuff at all?
Posts: 3528 | From US | Registered: Apr 2007
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My practitioner is not yet an ND but will be in late spring. She got off some major ABX that were no longer working and got on herbs (I do not know which ones), did Ondamed for head, neck, and Bart. She used Rife GB 4000 for Lyme. She also had Babesia. I am not sure what she used for that since I do not have it. I will find out how long it took to recover and let you know.
So the pulse part threw me for a couple of treatments. The Ondamed will hit the infection, or problem area and the pulse will quicken. She can tell when she is hitting an area for me. The Ondamed does many things and your body's feedback mostly the pulse give the indication of it working. Does that make sense?
How did your treatment go? Did you feel any different, did you have a herx?
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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CD57
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Member # 11749
posted
I tried Ondaned the other day. The person who owned it had a manual but they were things like Delta Wave 2 and thyroid. She did not have a Lyme babs Bart or any bug specific program. She has all these bugs herself. Did we miss something? I thought there woukd be frequencies for the bugs.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Greta - I just switched out minocycline for bactrim, and by the second dose, my calf muscles were yelling at me. I am still on rifampin, plaquenil, azithromycin. I am adding a flagyl pulse monthly.
Here's hoping!
Posts: 447 | From Vermont | Registered: Jan 2011
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GretaM
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Thanks Rera! Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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It does not work like a rife machine. My explanation is that it detects issues by transmitting EMPF and your pulse lets the practitioner know where the problem is.
How did you feel after the session? How did you feel the next day?
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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I just want to say that all my anxiety (Bartonella) disappeared after taking Green Dragon Botanicals LB Protocol as well as taking HH2 (Hepapro/Zhang) and Nattokinase. I took HH2 1 pill 3x a day, Nattokinase 1 pill 3x a day, and Green Dragon Buhner Herbs 9 pills 3x a day. It took about 6 months and all my symptoms got MUCH worse before they got better. I have not had anxiety for a whole year since that point. I did detox using zeolite as well. Hope this helps. I had the anxiety for 4 and 1/2 years straight! Been anxiety free for 1 year plus.
Posts: 123 | From Washington State | Registered: Dec 2013
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canefan17
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Good stuff slml
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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CD57
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way to go SLML! thanks for posting your doses. I wish it was like that for all of us! Was the Green Dragon formulation for Lyme? or bartonella, or both?
Posts: 3528 | From US | Registered: Apr 2007
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nefferdun
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I have been taking two HH2 capsules twice a day. I tried to take four but it gave me an upset stomach. It is helping. I have been sleeping better with less anxiety. But I need abx and have an appointment soon to get on something stronger.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
CD57 - The Green Dragon was for lyme, yes. Although the formulation of capsules includes japanese knotweed which Buhner says is helpful to fight bartonella.
Posts: 123 | From Washington State | Registered: Dec 2013
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GretaM
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posted
I don't have anxiety as part of my bart symptoms.
Just about everything else, haha, but not anxiety.
It's so frustrating. Sometimes bart just feels like a prison.
Update: I've switched from rif and zith to levaquin.
Also starting boluoke. (sp?)
[ 01-08-2014, 08:01 PM: Message edited by: GretaM ]
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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CD57
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Greta can you make sure that you take something with the Levaquin for it? Also I have noticed that people seem to do better on 3 intracellulars for Bart rather than 2. Maybe add plaquenil to get better penetration. Let us know how the Levaquin goes. Take lots of Vit C and Magnesium.
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GretaM
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CD- yes I am nervous about the levaquin.
I always swore up and down no quinolones and now I am at a place of desperation and am a hypocrite.
What other intracellular antibiotics should I try?
I did like mino. And I'm still on IV Rocephin, but I don't know if that hits bart.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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GretaM
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I don't know if I can take plaquenil because of "psoriasis". (Although I'm pretty sure it was lyme the entire time).
Argh! So frustrating, this Bart Battle.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
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It is frustrating. I understand you completely. I do.
Are you going to do oral Levaquin?
I took an Epsom salt bath every single night while on it, with 4 cups of Epsom salts, body brush beforehand, I made myself do it, I was so nervous. I'm okay- no damage.
Also did oral magnesium and vitamin C supplements.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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Thanks surprise.
Yes, oral levaquin.
I am scared sh!tless to take it.
Thanks for the advice on the dry brushing and epsom baths.
How much vitamin C and magnesium did you take?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
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Can't remember exactly, Greta, but I'm thinking 1,000-1,500 grams each... and that bath every bloody night ;-).
Let us know how it goes!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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Thanks Surprise.
24 hours no rif or zith and my bart symptoms are cascading back.
It's very discouraging it only took 24 hours.
I'm not sure if I want to cry, yell, punch, barf or run Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Judie
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I'm going to try to hopeful for you Greta. I also share your concern over fluoroquinolones.
Here's a story I'm going to tell myself if my doctor ever suggests them.
The leader of my Lyme support group came down with a horrible infection while in India (this after the Lyme diagnosis).
She was treated with IV cipro when she was there.
Low and behold, it hit a strain of bart she didn't even know she had.
Her eyesight even improved. She wore coke-bottle glasses prior to the IV. Her prescription went back to an earlier date after treatment (like by 10 years). It turns out she had a bart strain that effects eyesight and mimics natural vision deterioration.
Her optometrist was shocked at how good her vision had become and said it must have been that infection.
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GretaM
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Judie-that story helped. It brought tears to my eyes. I will reread everytime I get cold feet about the levaquin.
Thanks Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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TF
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Member # 14183
posted
Here is a lyme doctor's recommendation on the amount of mag to take with Levaquin:
Notice that you want to start the mag 2 weeks before the Levaquin.
Posts: 9931 | From Maryland | Registered: Dec 2007
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GretaM
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Thanks TF! You're a gem!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
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posted
I really felt like the Epsom salt baths, every single night, 4 cups of salt, body brush to open up pores, at least 20-30 minutes fully immersed,
got magnesium right into my muscles and tendons. And, awesome detox (sweating). I didn't like it, but I did it.
Saltworks.com has quality, good priced Epsom salts, large quantity, delivered right to your door (not affiliated) but not sure they go to Canada. Probably don't :-/
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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