I was diagnosed with this about 6 months ago. Its a rythmic tremor of my soft palat.
No tumors according to my cervical and brain MRI. Neurologists just said sometimes there's no known cause.
They seem to think my head pressure is a result of this muscle tremor.
But I think its a result of something else not being in balance.
And the neurologists don't like that opinion and since my scans are clean are basically like well we just don't know, so see you later.
My only option are klonopin or Botox injections.
I'm not keen on either, as I do not see the benefit of adding another poison to my body.
I'm just hoping someone out there can give me some insight into what coud be causing this tremor?
I also have a lot of muscle issues in my back. All along my spine it feels like my muscles are contraction and loosening over and over all day.
This also causes popping sensation that others can feel in my ribs....though the pain is in my back.
Any help at all would be so appreciated!!! Thanks in advance.
Posts: 54 | From Central, MA | Registered: May 2012
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have never heard of it, but it is not unusual for doctors to come up with an obscure "condition" or "syndrome" to avoid diagnosing lyme disease and the co-infections associated with it.
The back issues sound like babesia to me. My back would seize up. Hopefully you are taking anti-malarial drugs and/or abx for your infections and not trying to go the herbal route. THese are virulent pathogens, the equivalent of germ warfare, not ordinary bugs.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
lyme / parasites / heavy metals can cause all sorts of problems. I'm not saying for sure it is one of those, as I know little about your condition, but much can go wrong when someone has these issues, and the docs often cannot find the cause.
You need to ask yourself (perhaps with the help of docs who understand that condition and what it can do to you) how tolerable and how dangerous that specific condition is you are talking about. Does it need to be treated? Or can you treat lyme and be patient and see if it resolves?
Posts: 1927 | From se usa | Registered: Mar 2010
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Its definetly a real condition....as anyone can see it plain as day if I open my mouth... Most people are shocked they generally say, "wow I didn't expect it to be so obvious"
What is not known is what the heck is causing it.
My LLMD is also an osteopath....and he has been doing some work...he says tension along the spine typically is caused by tightness lower down on the spinal column.
So I don't know if tension lower on my back is causing pulling in the neck area, and thus causing the tremor.
Nefferdun when you had the back stuff going on did you ever feel like you could hear and feel fluid squirting up your back?
That's how I keep describing it. It sometimes feels like a pocket of really dense fluid and then it will relax and then something else will be tight.
Its the worst, or most noticeable when I'm sitting (like driving a car), or lying down. Everything is constantly popping and shifting and it feels like a vice around my ribs.
My doc said my breathing is very very shallow because my chest cavity is so tight.( I'm also wondering how this shallow breathing....oxygen to cells etc....may be effecting my detoxing)
Perhaps you can help me out with this; I read somewhere that babesia can block the signal for inflamation in the body....
I don't have noticeable swollen joints, but I feel, as mentioned, that I have fluid moving around between the muscles in my thoracic cavity. I even get pools of fluid (that feel like water balloons) on my hips.
I also get this fluid feeling in the back of my neck.
But everytime I have had a blood test for inflamation it comes back normal.
Could this be a sign that it is babesia plaging me?
I have been treated for heavy metals both with an IV and orally (my mercury and lead levels where 5 and 7 times higher then what's considered safe).
I've treated yeast. And was on doxy for a while. But now I mainly just take a lot of herbs.
I've taken a-bab, some highly concentrated artemisinin combined with other stuff that works on biofilms, and highly concentrated curcumin called enhansa.
Posts: 54 | From Central, MA | Registered: May 2012
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