posted
Thank you! Wouldn't it be GREAT if it worked?
Posts: 631 | From the south | Registered: Nov 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Not sure how LDN would help MCS. I have MCS and tried LDN for Lyme. It backfired...got wayyyy more inflamed and broke out in a rash on my leg.
LDN is typically useful in disorders involving the immune system.
MCS is an enzyme/toxicity problem. Consider detox protocols or methylation issues - I think you'll get more help that way for MCS.
For example, Molybdenum is needed for those with a SUOX or CBS genetic mutation (methylation genes). I have a CBS mutation, and also have a diagnosis of MCS. When I take Molybdenum, I find my tolerance for chemicals improves a little bit.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Dang. I am so sensitive to side effects if there is a side effect I WILL GET IT.
Razzle, I haven't gotten the 23 and me testing (did you?) for MTHFR but I'm sure I have it. I know the treatment depends on exactly how you test (right?) but is there a general treatment of B.vitamins or something to that effect that you think I could do on my own to get started? I am currently on an anti.yeast diet and taking minerals. I have noticed that DAIRY flares it even more but I am still missing something.
I am not taking B.vitamins because I'm not sure which kind quite yet.
I take enzymes with meals and have considered proteolytic enzymes. I'm on that good Magnesium, as you know, and I know it has activated a lot of enzyme processes but not sure how this all ties in together. So much to learn!
Any advice appreciated. I am so tired of this MCS. It's such a hindrance. Not nearly as bad as when I first treated Lyme 10 years ago. I can now go out in public etc. but still have to avoid and run and really don't like that. It gets in the way of getting to know new people and so I become a hermit!
Any idea you might have, I would love to hear them! or anyone else.. please share! Posts: 631 | From the south | Registered: Nov 2008
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posted
Honestly though, my chemical sensitivity started BEFORE my Lyme treatment and so I think only a part of it is related to Candida issues. So I will keep in mind "toxins and enzymes" like you said.
I don't know, I probably had Candida before I had Lyme so who knows.. I think a lot of that stuff is hereditary since we get our parents' flora.
My little nephew has Candida issues and he's never had an antibiotic in his life. Or a vaccine for that matter.
Posts: 631 | From the south | Registered: Nov 2008
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
LDN has been very helpful for me for immune regulation and some help with pain.
But it has not helped me with my sensitivities towards synthetic chemicals, although I do not have MCS.
I also have several MTHFR mutations and an absent gene.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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