posted
Our niece has been diagnosed with CVS. It is a strange diagnosis. It seems like every day they come up with some diagnosis we have never heard of. Although, it is said that this was founded in the late 1800's. I have never heard of it. Does anyone know if this could be linked with lyme disease? My niece is around 11 years old and hate to see her suffer with this if lyme has something to do with it.
Posts: 20 | From Pennsylvania | Registered: May 2010
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posted
I have read about someone that has/had that with lyme disease. I believe her blog is called ticks and trust if you wanted to look it up.
Posts: 486 | From USA | Registered: Jan 2012
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Very likely this is parasitic or Lyme/coinfection related. Critter life-cycles cause the "cyclic" nature of the syndrome...too bad regular medical science hasn't figured out the connection with parasites yet...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Would definitely want to rule out babesia as the cause. Hubby was on nausea meds for years due to his babesia. Phenergan worked the best for him -- he had to take it around the clock.
He also had gastritis multiple times per endoscopy and even a mild duodenal ulcer once -- bartonella was probably the cause of those issues.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
CVS is much different than vomiting due to nausea. My son was diagnosed with CVS at age 8. It is nicknamed "abdominal migraines". They came out of no where, then we learned what some triggers were. He had terrible pain with his. Only way to get relief was to vomit. We withheld food from him. Anything more than a jello cup would send him up to pain level 9 r 10. We let him have one saltine every 30 minutes. It was torture for him and for me. He was so hungry. After diagnosis, meaning everything else ruled out, he took cyrpoheptadine as a prophylactic. It usually worked. Once a cycle started it had to be aborted with a black boxed med which escapes me. This all was before we knew Lyme was an issue for anyone. I have emailed the CVS big docs and told them what I learned about my son and how he doesn't suffer anymore with CVS. Doc said he has never seen a connection and that CA, where he practices, doesn't have Lyme. The theory is that kids can outgrow CVS like they do migraines. My son's CVS is a thing of the past after Lyme treatment. CVS has a forum that is fairly active. Maybe someone there would know. I would love to see a study on this. If I were a doc I would personally test everyone with the diagnosis. Save the children a horrendous condition. Good luck.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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I have never had CVS but if I did I would run to the nearest good acupuncturist. Acupuncture is just terrific for gi stuff and this in the acupuncture world is a textbook definition of rebellious stomach chi.
Note that I am not a pediatrician and don't practice medicine but acupuncture is really almost without risk in experienced hands.
Chipster
Posts: 44 | From Yes | Registered: Jan 2014
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
A friend's son was nauseous a lot and vomited on and off. I sent her to my EDS practitioner and he was on several herbs for a month from her and it went away. Prior to this, the mainstream docs had told her he had an "intestinal migraine" and proposed giving him antidepressants. She did not want to go that route and thankfully tried my practitioner.
Clearly it was a pathogenic cause. I told her that it was probably the result of him falling into his grandparent's septic field a few months earlier. He most likely had some amoebas causing the symptoms.
Mainstream docs scare me now.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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what is an EDS practitioner? What does EDS stand for?
Sorry, I am new on this board and don't have all the acronyms down yet.
Chipster
Posts: 44 | From Yes | Registered: Jan 2014
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
EDS is electrodermal screening. It is also referred to as EAV (electro acupuncture according to Voll). Dr. Voll discovered a way to energetically test acupuncture meridians to see where there were blockages. This is through a computerized machine that can tell you which infecions you have based on your meridian testing.
It is highly accurate if you are with a good practitioner. You can test infections and also which treatments will work on them. It is very, very helpful for healing from lyme/coinfections.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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