Does that mean if you had MG your ANA test would be positive ?
I have never had an ANA test done so it seems like it would be a good starting point.
I know there are specific tests for MG. But I am curious, would a negative ANA mean no MG ?
-------------------- You won't know how sick I was until you see me when I'm well ! Posts: 123 | From Colorado | Registered: Sep 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
It is my understanding that an ANA test can indicate a certain condition if positive, but it is not specific in itself for diagnosing a specific disease.
Here is a site that has some information you may find helpful.
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
ANA is specific to connective tissue autoimmunity. MG is not a connective tissue disease - it is a neurological issue. I don't think ANA would be positive in someone with MG unless they also had a connective tissue disease (such as Sjogren's, Lupus, etc.).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Myasthenia Gravis was one of the conditions they thought might be the reason my health went south.
I found it very difficult to find a doctor who knew enough to rule it out or confirm it.
I ran into others dx with MG who had suddenly had their MG go into remission after being hospitalized and taking abx
It is tricky as certain abx make MG worse so you need to know which ones.
Some of the people in the support group wondered if they really had lyme disease instead and were misdx.
Another label that some are helped by and tohers are not.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Given that many of the antibiotics to avoid if you have MG are commonly used for Lyme and Coinfections it seems that everyone with neuro symptoms should be checked for MG.
Also the link mentions magnesium. Should magnesium be avoided by those with MG ?
-------------------- You won't know how sick I was until you see me when I'm well ! Posts: 123 | From Colorado | Registered: Sep 2012
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posted
Hi, This is my first post here...I live in a high LYME hotbed and I've had Lyme at least 8 times. The first few times we never treated because it was so long ago we didn't know what it was. After we knew we were prescribed Doxy first for 2 weeks and later for longer times. I began to have weak legs about 18 months ago and so I began to read about Lyme, thinking I must have chronic Lyme. I read a lot and I began to read Stephen Buhner the herbalist who has great lists of symptoms for all aspects of Lyme.. problem is I don't really relate with most of the things on those lists... I don't have headaches, I don't feel tired i.e. sleepy. I have been in reasonablly good health. The last time I had Lyme was in 2010 and I had like 5 bands took the doxy and that was the end of it. Last summer I was very busy and my legs would hurt at the end of the day, I could hardly do stairs or walk up the hill to where I live. My son said mom you must have Lyme. I'd not had a tick bite that I was aware of but that means nothing, because there can be so many you're not aware of. I went for a test and they said I was postiitve ( at the time I didn't know I only had two bands and one was the non specific 41. I took 6 weeks of doxy and it made me very punky mentally. My memory was shot. This spring I began to think I never felt better strength wise in my legs after doing the doxy. It kind of comes and goes but I'm weak if I overdo, but will revert back to average if I rest. I began to be tested for MG ( myasthenia Gravis) so far my first antibody test for Acetylchoine receptor came back neg and I'm waiting for the MuSK test which is another antibody that has more to do with cell wall than receptor site. Now I've done tons of MG resarch and I've come back around full cycle. I don't see how I can't have chronic Lyme from all those times we never treated. It would have progressed into cyst form etc.. you know? I don't think the subsequent doxy would have wiped out the cysts . I suspect it progressed over the decades and as it had lowered my manganese, I think it may have given me MG. I know that the BB create toxins when they die off. I'm scheduled for an EMG which is a muscle test they do to diagnose MG. MG is not easy to diagnose. It's so rare, most docs don't know much about it. LIKE LYME. So after all this time or researching I feel like I've come full circle back to thinking that Lyme is the cause of my problems, but I don't understand why I don't have headaches, and the rest of it. My symptoms are just the weakness that will form in my legs say by afternoon if I'm stressing them. My vision is a bit blurry at times, but I'm 65 so I guess that's not so unusual. Sometimes my upper back muscles get tight and right now my throat and swallowing have begun to bother me a little bit , but it's pollen season here so I'm thinking maybe it's that. I suspect that there is a connection between MG and LYME... I keep reading Lyme is the great imitator,mimics MS, Parkinson's, ALS, MG etc... I search and search but I can't find anything factual . I have only ever read one or maybe two anecdotes about people who said my grandmother was diagnosed with MG but it turned out to be LYME. I find no literature. Anyway I came here searching the two terms Lyme and Myastherina Gravis and I found this link. So hello to all of you/us in Lymeland. I have found some awesome Alternative Healers out there... If you have not read Walter Last of Health -Science-Spirit, I think he is really smart. I also like to listen to Dietrich Klinghadrt on you tube , he is one of the most brilliant Lyme Doctors on the planet, in my humble opinion. He believes all healing happens on 5 different levels and if you listen to him long enough, he makes so much sense you begin to understand why he says what he does. I've been taking a lot supplements, cleaned up my eating and have been caffeine, sugar,and alcohol free for over a month and 90% gluten free as well and I'm feeling better I think. I just thought I'd share my journey with you all. People coming together can slowly raise awareness.
Posts: 12 | From MA | Registered: Jul 2014
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Breaking up the above post for easier reading:
Hi, This is my first post here...I live in a high LYME hotbed and I've had Lyme at least 8 times.
The first few times we never treated because it was so long ago we didn't know what it was. After we knew we were prescribed Doxy first for 2 weeks and later for longer times.
I began to have weak legs about 18 months ago and so I began to read about Lyme, thinking I must have chronic Lyme.
I read a lot and I began to read Stephen Buhner the herbalist who has great lists of symptoms for all aspects of Lyme.. problem is I don't really relate with most of the things on those lists...
I don't have headaches, I don't feel tired i.e. sleepy. I have been in reasonablly good health.
The last time I had Lyme was in 2010 and I had like 5 bands took the doxy and that was the end of it.
Last summer I was very busy and my legs would hurt at the end of the day, I could hardly do stairs or walk up the hill to where I live.
My son said mom you must have Lyme. I'd not had a tick bite that I was aware of but that means nothing, because there can be so many you're not aware of.
I went for a test and they said I was postiitve ( at the time I didn't know I only had two bands and one was the non specific 41.
I took 6 weeks of doxy and it made me very punky mentally. My memory was shot. This spring I began to think I never felt better strength wise in my legs after doing the doxy.
It kind of comes and goes but I'm weak if I overdo, but will revert back to average if I rest.
I began to be tested for MG ( myasthenia Gravis) so far my first antibody test for Acetylchoine receptor came back neg and I'm waiting for the MuSK test which is another antibody that has more to do with cell wall than receptor site.
Now I've done tons of MG resarch and I've come back around full cycle. I don't see how I can't have chronic Lyme from all those times we never treated. It would have progressed into cyst form etc.. you know?
I don't think the subsequent doxy would have wiped out the cysts . I suspect it progressed over the decades and as it had lowered my manganese, I think it may have given me MG.
I know that the BB create toxins when they die off. I'm scheduled for an EMG which is a muscle test they do to diagnose MG. MG is not easy to diagnose. It's so rare, most docs don't know much about it. LIKE LYME.
So after all this time or researching I feel like I've come full circle back to thinking that Lyme is the cause of my problems, but I don't understand why I don't have headaches, and the rest of it.
My symptoms are just the weakness that will form in my legs say by afternoon if I'm stressing them.
My vision is a bit blurry at times, but I'm 65 so I guess that's not so unusual.
Sometimes my upper back muscles get tight and right now my throat and swallowing have begun to bother me a little bit , but it's pollen season here so I'm thinking maybe it's that.
I suspect that there is a connection between MG and LYME... I keep reading Lyme is the great imitator,mimics MS, Parkinson's, ALS, MG etc... I search and search but I can't find anything factual .
I have only ever read one or maybe two anecdotes about people who said my grandmother was diagnosed with MG but it turned out to be LYME. I find no literature.
Anyway I came here searching the two terms Lyme and Myastherina Gravis and I found this link. So hello to all of you/us in Lymeland.
I have found some awesome Alternative Healers out there... If you have not read Walter Last of Health -Science-Spirit, I think he is really smart.
I also like to listen to Dietrich Klinghadrt on you tube , he is one of the most brilliant Lyme Doctors on the planet, in my humble opinion. He believes all healing happens on 5 different levels and if you listen to him long enough, he makes so much sense you begin to understand why he says what he does.
I've been taking a lot supplements, cleaned up my eating and have been caffeine, sugar,and alcohol free for over a month and 90% gluten free as well and I'm feeling better I think.
I just thought I'd share my journey with you all. People coming together can slowly raise awareness.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Penacillamine is to be avoided if you have MG
Does this hold for amox and bicillin ?
A couple months ago I posted that bicillin really destroyed - muscle loss
Wonder if MG explains this ?
-------------------- You won't know how sick I was until you see me when I'm well ! Posts: 123 | From Colorado | Registered: Sep 2012
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Entirely different disease and pathogen.
For MG - remove the thymus gland.
I'm not joking. Many years ago, friends of our went to a 5 star dude ranch in Colorado.
When they came home, their son, age 17 and in high school, rapidly (very) developed MG.
It got to the point where he could not open his eyes (extreme muscle weakness).
At Northwestern Hospital in Evanston, Illinois, the docs removed his thymus gland and
CURED HIM.
Today, he is a college grad, married and has children and is healthy.
He does have to supplement cortisone/cortisol only, if I remember correctly.
This is the God's honest truth.
I have no idea what pathogen he came into contact with and the other members did not, but given the speed of progression...likely a virus/viral particle...possibly (2013 discovery) Nest Nile virus.
Talk about mosquitoes...did you all catch the latest infection spread by them? Whoa.
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