posted
The IgM came back CDC and Igenex positive. Research I have found says there is a false positive rate of 3%, can anyone confirm?
Posts: 48 | From california | Registered: Jul 2009
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Firstly, consider the IND bands as + also.
IND is a response, albeit a faint one.
(would be like saying 3 mos pregnant is IND, if 6 mos pregnant was a +)
So the bands you responded to on BOTH your IGG and IGM are very much lyme specific.
If your body has not "seen" the specific Borellia parts which are identified by those bands, it would not have responded to them.
I would recommend posting on Seeking a Doctor to find the best lyme literate physician you can afford in your area so you can start treatment as soon as possible.
Ignoring a lyme infection makes it go from bad to worse.
Best wishes and good luck in your treatment, Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Gosh, that looks positive to me. I don't know exactly where you're located but there are some great Lyme doctors in California.
Don't bother with the infectious disease doctors. You need a specialist in Lyme.
Posts: 2839 | From California | Registered: Jul 2012
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
There are no false positives. By the way, 23 only pops up for lyme, nothing else. She has lyme.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Roger that, anything else I should forward to her?
Another DR is having a Ispot test done? Any information regarding that?
Posts: 48 | From california | Registered: Jul 2009
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
It sounds like your friend is looking for the answer she wants to hear (which is she doesn't have Lyme).
She's entitled to her own beliefs, but not facts. Testing is flawed, there's just no point in it after you get positive. You're way more likely to get a false negative.
No such thing as false positives with Lyme.
Posts: 2839 | From California | Registered: Jul 2012
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posted
Thank you for your help on this. Any other information I should forward to her?
Posts: 48 | From california | Registered: Jul 2009
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Here's more info on the western blot and other tests. I don't know if it will help:
"17) Pharmasan Labs now offers the iSpot Lyme panel. This panel is available through NeuroSciences. It is still a very new test, and I have not gotten enough information yet to see where this option may fit in the landscape of available tests.
Update January 2014: My understanding is that the iSpot may not be as helpful for trying to identify Lyme disease in a patient with a negative or indeterminate Western Blot as the results may come back with low phytohemagglutinin which may suggest that there is a suppression of T-cells potentially as a response to Lyme but not provide any additional useful information..."
Posts: 2839 | From California | Registered: Jul 2012
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