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» LymeNet Flash » Questions and Discussion » Medical Questions » I need stomach tube - Experiences ?

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Author Topic: I need stomach tube - Experiences ?
LuluBelle
LymeNet Contributor
Member # 38865

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My swallowing problems have gotten worse.

What was difficulty eating has become not being able to eat.

Any insights on the surgery to place a stomach tube ?

Sounds like a simple surgery.

--------------------
You won't know how sick I was until you see me when I'm well !

Posts: 123 | From Colorado | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
GretaM
Frequent Contributor (1K+ posts)
Member # 40917

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Oh Lulu. I am sorry. I am praying for some help for you so you can eat again.

A few folks on here have stomach tubes. My bro has one-it is a godsend for him. Saves his life every day and keeps him hydrated.
[group hug]

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

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Hi,

I have a G-tube. I started out with a G-J tube but had to revert to a G-tube due to complications with the tube.

The best way to get started is to try a Naso-gastric tube to make sure you tolerate the feeding formulas. Also, if your problem is temporary, it is better to use the N-G tube rather than have a hole poked in your belly for the G-tube.

Once you figure out the formula(s) that work for you, the rate of feeding you tolerate, etc., then you can get the permanent type of feeding tube if your condition is expected to be long-term.

Unfortunately, most traditional feeding tube formulas are heavily GMO'd (soy, dairy, corn syrup).

However, there are other formulas you can use - and you can make your own.

Make sure you have a Gastroenterologist on your medical team who supports your decision...I've been without a Gastro doc for a long time and it is very hard.

Feel free to PM me with further questions.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4167 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

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My swallowing problems got better with a zithromax +tindimax. Also a macroglide with anti parasitics, and colonics.
Anti-malarials with heparin.

Posts: 722 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
   

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