last April I was diagnosed w Lyme and responded well to oral Doxy. I had a great summer/healthy. As of Feb this year my white count rose to 14k and I am suffering chronic fatigue(12 hours+ daily). My Infectious Disease Specialist says I don't currently have Lyme and NO Picc line and no more anti-biotics. Could this be a re-occurance of PTLDS? Am I seeing the correct physician?
Posts: 10 | From Medford, new jersey | Registered: May 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
NO! You are NOT seeing the right doctor.
A few questions:
1) how long did you have the symptoms of lyme, before you were finally diagnosed with lyme?
2) Was the dose of doxycycline at least 400mg a day for at LEAST 6 weeks?
3) Was there any other antibiotics given to you with the doxycycline? Such as tinidazole or flagyl?
4) Were you tested for any common coinfections such as erlichia, anaplasma, bartonella or babesia at the time of your lyme diagnosis?
Doxycycline converts the spirochetes into cyst form.
So you will feel better, as the cyst form is not the active destructive form.
Once the doxycylcine is stopped, eventually, the cysts convert back into active spirochete and L-forms and lyme continues its destructive path through your body.
Doxycycline alone turns normal lyme into "chronic" lyme.
You need to post in Seeking, on this forum, for an LLMD or and LLND in your area and phone those docs right away.
Also, if no coinfections were tested for, you are not just infected with lyme. There will be other infections.
There is no such thing as PLDS. That is the term the infectious disease doctors use because they are too stupid to use common sense and read the latest studies on the effectiveness on singular low dose doxy on lyme spirochetes.
If you continue to show symptoms (which you will-improperley treated lyme, and coinfections), then the ID doc will diagnoses you with MS, ALS, Lupus, chronic fatigue, fibromyalgia, psychiatric disorders, migraine and alzheimers.
It really is pathetic how many lives are derailed because infectious disease doctors don't properley treat lyme, and also don't stay current on the studies coming out.
I am so sorry you are a victim of the incompetence of the IDSA.
On the top of this forum, there is a link to Dr. B's guidelines.
This is the kind of treatment you SHOULD have received.
This is the kind of treatment you CAN receive and CAN get back to your old self if you find a lyme-literate doctor.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I had the Lyme, apparently--for about 12 months before I was correctly diagnosed. Last year--I had 21 days of 500mg Doxy and it worked. I started feeling really fatigued this winter. I went to my Primary Physician and did 3 weeks of Doxy--still feeling really fatigued. IDS then tried 3 weeks more of Doxy. I am still chronically tired. I have NO coinfections. The latest bloodwork shows I currently DO NOT HAVE LYME--and no more anti-biotics are to be subscribed. I am now in no mans land--not knowing if I will ever feel better--because the bloodwork says I have no LYME, but my white count is about 14,000(Neutrophils)--and the IDS isn't that concerned.
Posts: 10 | From Medford, new jersey | Registered: May 2014
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Dump the IDS. I'm serious. That doc isn't trained on the latest research.
It doesn't matter if the IDS doctor is concerned or not.
YOU ARE CONCERNED AND YOU DON'T FEEL WELL. You need a doctor who will take you seriously.
Once the immune system take a hit, you become susceptible to all kinds of other infections. I have 13 co-infections.
Your body doesn't lie. It's clearly not well yet. Also Lyme testing is extremely flawed.
posted
OK--here were the IgG bands last year(27Feb)--please keep in mind this was before ANY DOXY
IgG P18 Ab positive IgG P23 Ab positive IgG P28 Ab positive IgG P30 Ab positive IgG P39 Ab positive IgG P41 Ab positive IgG P45 Ab positive IgG P58 Ab positive IgG P66 Ab positive IgG P93 Ab positive
here are the bands this year AFTER 3 WEEKS DOXY
IgG P30 Ab positive IgG P39 Ab positive IgG P41 Ab positive IgG P66 Ab positive IgG P93 Ab positive
I appreciate the feedback--I am not satisfied with an elevated white count and chroni fatigue
Posts: 10 | From Medford, new jersey | Registered: May 2014
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posted
I was told I also had Rocky Mountain Spotted Fever last year along with Lyme
I prefer not to take anti-biotics frivolously--and I am told I currently DO NOT have Lyme--but it sure feels like it
I also feel if any doctor can lower that 14k white count--my fatigue would subside
Posts: 10 | From Medford, new jersey | Registered: May 2014
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posted
a total panel for Ehrlichia + Babesia were negative as well as a comprehensive Ana panel NO HIV, NO Sjogrens, testosterone well in range
Posts: 10 | From Medford, new jersey | Registered: May 2014
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30: Possibly a variant of outer surface protein A.
39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.
41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
66: Heat shock protein. This is the second most common borrelia antibody.
83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi.
-- In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28,30, 31, 34, 37, 39, 41, 83, and 93.
[---- from DR C's update from 2005 --- ----The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.----]---- Dr C of MO
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
By the way, the western blot ONLY tests for antibodies.
Basically, your test says that your immune system is strong enough to make antibodies to Lyme.
The good news is your immune system is working strong. Best to get treatment while it still works. As time goes on your immune system will lose the fight.
My suspicion is after you took the doxycycline the first time, it batted back the infection. Your immune system was strong enough to keep Lyme at bay for awhile.
Basically the infection just kept simmering over the past 12 months because it wasn't fully eradicated from the first time you treated (not the right antibiotic combo and for too short a duration).
There are currently no tests that can tell a person you don't have Lyme. It's a clinical diagnosis (based on the patients symptoms, not a test). Your doctor is wrong.
Some of the most ill people with Lyme don't get a positive test because their immune system has just crapped out. I have two friends who didn't get a positive Lyme test until they took antibiotics for over a year. They were some of the sickest people you could imagine (bed-ridden, one was in a wheel chair).
Posts: 2839 | From California | Registered: Jul 2012
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GretaM
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Member # 40917
posted
Coldpunch-I agree with all of the above.
Believe you me, I was anti antibiotics also.
Then I fell into the lyme pit.
Health deteriorated so badly I was heading towards assisted living, and MS or ALS dx.
Both me and Judie also had Rocky Mountain Spotted Fever. I had mine for 11 years. Covered in spots 11 years. Saw over 6 dermatologists and was in a study at a university.
Took an LL 2 minutes to see my spots, and within 2 weeks of treating my spots went away.
When I say it is important to ditch the infectious disease doc (or neuro,dermo, gastro, immunologist etc) and find an LLMD immediately for PROPER treatment. I'm dead serious.
You felt better while on the 21 days doxy becasue it hit the RMSF and turned the lyme into a "dormant" cyst form. 21 days doesn't even cover a full life cycle of lyme...according to studies-would have killed 2/3rds of 20% of the lyme in your body.
Totally inadequate.
What the ID docs choose to ignore is mind boggling. They all want shiny HIV drug trials.
With your white count what it is-you need to find an LLMD immediately, as fast as you can.
You're sick.
And take it from me, if you try to ignore it, it will only get worse.
I forgot to add, ticks also pass viruses as well as other bacterial and protozoa infections.
Lyme disables the immune system over time-the long terms effects of the coinfections get more dangerous as time goes on.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I appreciate all of the feedback. The IgMs are all negative this year. The Western Blot IgG bands say I am positive--the doctor says I am negative. This IDS doctor doesn't even want to check these bands--she says they are meaningless since I had Lyme last year. The IgG and IgM numbers reported were from my primary and my nephrologist--who initially found out I had Lyme.
Posts: 10 | From Medford, new jersey | Registered: May 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I forgot to add-you're STILL sero positive by the bands positive in your WB this year.
Lyme bacteria sheds it's outer surface protein, so everytime it has a new surface coating, the immune system sends new antibodies.
It is one of the bacterias that if ANY bands are positive, in IgM or IgG-then the infection is still present.
It also steals DNA from other bacteria, such as mycoplasma, for more resistance to antibiotics and the hosts immune system.
Borellia really is a nasty nasty bacteria. That's why Judie called it virulent.
The immune system will NEVER get a hold on things becasue lyme is a bacterial "shape shifter" for lack of a better term.
It changes it's outer surface protein anytime it senses a threat. It goes from spirochete "screw shape" into L-form, cyst form, round body forms (string of pearls-see Dr. Alan MacDonalds video on youtube)
These "pearls" from the string of pearls forms of lyme, are being found in autopsied brain tissue of ALS MS Parkinsons and other neurodegenerative disease brain tissues.
Check out the videos. They are long but helpful.
Any way, my point is you are very much SERO POSITIVE.
You need to find an LLMD in your area ASAP.
Blessings and good on you for not accepting the chronic fatigue dx. I wish more people were strong like you, and listened to their bodies, Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I agree with Greta, we have so many similar infections along with Lyme. You probably have a combination going on.
Another borellia illness is "relapsing fever" (borellia hermsii). I have that along with viruses, Lyme, mycoplasma and rocky mountain spotted fever (which can also be chronic).
Here's what Stanfords Chronic Fatigue department tests for (I bet you haven't been tested for some of these):
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"The Western Blot IgG bands say I am positive--the doctor says I am negative."
It doesn't matter if it's IgG or IgM with Lyme.
A friend of mine went through something similar 4 years ago. She had a CDC positive Lyme test (only the IgM, no IgG). The doctor said she didn't think she had Lyme even though she had positive bands.
She got diagnosed with fibromylgia, chronic fatigue and rosacea (she was put on low-dose doxycycline for the rosacea).
My friend wound up being in severe pain and walking with a cane. Her thyroid also went crazy.
I asked her to revisit Lyme, but she was still going by what the doctor said 4 years ago. She was under the impression both IgG and IgM had to be positive, so both her AND the doctor were misreading the test.
She now has full-blown chronic Lyme and is finally seeing a Lyme specialist (still testing positive by the way).
Even the doxycycline she's been taking for 4 years for the rosacea wasn't enough to knock Lyme out.
Posts: 2839 | From California | Registered: Jul 2012
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here in NJ--there are 3 listed "so called" Lyme Specialists--and they are all over a 2 hour drive for me one way. Of course I want to get healthy--but I don't want to drive over 2 hours one way for a doctor to put me on Doxycycline--I have Doxy here and had to stop taking it after 3 weeks due to vomiting. On top of all of that--I currently have an Infectious Disease Specialist--which--despite all of the folks here with considerable knowledge--tells me I DO NOT CURRENTLY HAVE LYME. She also tells me the IgG and IgM markers mean nothing because I have already had the disease and the bands will ALWAYS show a positive even if I become 100% healthy.
I don't know what to do. I am seeing a specialist--the Doxy made me vomit after more than 3 weeks of it--and I am chronically fatigued.
It seems as if I am suddenly expected going to become healthy all by myself.
I don't know who to believe--or where to turn next--and I am NOT driving a round trip of over 6 hours for Doxycycline--which I cant take.
Posts: 10 | From Medford, new jersey | Registered: May 2014
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
If you didn't want help, you wouldn't be here. You wanted us to convince you to get help, since your life is probably getting quite difficult. So take advice as you get it now, or call us from the ER in 6 mos when the heart stuff or neuro stuff kicks in.
Sorry to be blunt, but that's what did it for me. I had an LLMD's phone number for 6 mos, continued to read here, and ping ponged between all of the 'Specialists' that were supposed to know how to help me.
So I'm just going to be blunt here and hope you get some real help soon. Dump the ID and get to one of those '3'.
I'm not sure why you assume you'll just get Doxy. It's not always the treatment of choice. And were you taking probiotics and keeping a clean sugar free diet while taking the Doxy previously? Or perhaps call your ID or whoever and asked for the enteric coated kind to spare your stomach?
And finally - one of the MANY reasons to dump your ID for an LLMD in this case is - they have offered you nothing to help improve the quality of your life. That is one of the greatest things an LLMD has to offer. They know to ask the right questions and get to the root of the issues, REGARDLESS of what the tests say. It doesn't all come in a prescription bottle, and getting well requires effort on your part, which includes following advice from your LLMD, lifestyle changes, diet changes, detoxing, parasite treatment,....
And yes, I am well, I have my life back and have for many years, but I know that it's really peaceful coexistence.
PS. Medford to Jackson or Howell is less than 2 hours. It's just a long boring drive up Rt 70. Find another excuse not to be helped.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I do not see any specialists in Jackson--which would be slightly more than an hour
Posts: 10 | From Medford, new jersey | Registered: May 2014
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I just sent you a private message. Click on the little flashing box at the top of the screen by your profile.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
You said that the doxycycline made you vomit. Were you taking it in the middle of a large meal?
The instructions that come with the drug are outdated and wrong. They are for tetracycline which is an older medication. Doxycycline MUST be taken with food. I've confirmed this with doctors and a person who works for the pharmaceutical industry.
The industry just hasn't gotten around to updating the instructions (just another failure of information).
Not all Lyme doctors treat with doxycycline. I don't know how you got that impression.
"She also tells me the IgG and IgM markers mean nothing because I have already had the disease and the bands will ALWAYS show a positive even if I become 100% healthy."
Again your doctor is wrong, wrong, wrong.
"I am seeing a specialist"
You are NOT seeing a specialist.
Let me explain.
YES, you CAN have a negative Lyme test after having Lyme. Your doctor doesn't even understand the basics of Lyme testing and diagnosis.
I got infected in 2012. I had a bulls-eye rash. I tested CDC positive on the western blot 6 weeks later.
I then got reinfected in 2013 with WAY WORSE symptoms along with the bulls-eye rash.
I've had 2 lyme tests since then (6 weeks after the rash and a month after that). BOTH were CDC negative even though I had 8 bands! (igenex positive though).
I was so ill, it was awful. My body was making antibodies, but not for all the ones the CDC counts.
The amount of Lyme bands one must have to be CDC positive are COMPLETELY arbitrary and meaningless. It's a clinical diagnosis.
I travel over an hour to see my Lyme doctor. When I'm in the waiting room, I talk to the other patients. Most come from waaaaaaaaaay further than me (they fly in from other states or drive 5 hours to get there).
Two hours is nothing to see a good doctor. I'm sure if you had cancer and the nearest center was two hours away you'd find a way to get there.
Posts: 2839 | From California | Registered: Jul 2012
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
If you are truly dedicated to learning about Lyme and not falling into the blackhole diagnosis of chronic fatigue, please look at the following:
posted
Ive never seen such a positive test. Wow amazing!
really quick I see your doxy usage, but what about cyst busters? No doubt you have cystic LD and you have to use stuff like flagyl to kill.
Your still sick.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
coldpunch, it is true that once a person has had lyme disease, they will continue to have a positive lyme test for years.
I got rid of lyme 9 years ago. Then, 7 years ago I got bitten again and got the bulls eye rash again.
I still get a positive lyme test to this day. (A doctor who didn't understand this tested me about 2 years ago. Then, he tried to tell me I had lyme disease. My lyme doctor laughed about that.!) I haven't had any lyme symptoms for 9 years! I have the same life now that I had before I ever got lyme disease. But, I still test positive for lyme.
The reason for this is that the blood test is NOT looking for the lyme bacteria. Instead, it is looking for antibodies to the lyme bacteria. When your immune system notices the lyme, it makes antibodies to it. These antibodies will stay in your bloodstream for YEARS to protect you.
So, a person who has had lyme in the past cannot be diagnosed by the regular lyme test (Western Blot).
So, your ID doctor is correct about your test. Because you HAD lyme in the past, you can't go by the lyme test anymore. You have to go by symptoms and other tests.
You really need to educate yourself about this disease so that you will know what to believe. You should start by reading the Burrascano Lyme Treatment Guidelines. They are found here:
Burrascano was the lyme disease pioneer and the #1 lyme doctor in the world until he retired. They came from all over the globe to see him. He had a great cure rate. He treated lyme for over 25 years in the Hamptons. He had lyme himself and so did his son.
You also have to understand the lyme disease controversy that has been going on in medicine for at least 25 years.
The Infectious Diseases Society of American (IDSA) has miseducated all U.S. doctors that: 1. lyme is rare, and 2. lyme is easily cured.
Meanwhile, Burrascano and our lyme doctors know that : 1. lyme is worse than an epidemic, and 2. lyme is difficult to cure
So, there you have it. You are going to doctors who are convinced that lyme is easily cured. Since they treated you for lyme in the past, they therefore believe that it is impossible for you to still have lyme. They cured you!!!
Also, they don't believe you could have gotten a new case of lyme because lyme is RARE.
I have seen people in your situation over and over again. A coworker of mine had a "bruise" which I now know was a bulls eye rash on her dark skin. She then lost her memory and ability to think or do her job. She didn't know what day it was, how to retrieve her messages from her phone, didn't know her age, or anything.
So, I took her to her doctor and asked to have her tested for lyme. The doctor said, "Even if you had lyme, the antibiotics you were given in the past for other things would have gotten rid of it."
Unbelievable! But, it shows you how strongly they believe that lyme is EASILY cured. But, he wrote the order, I got her tested, and she was positive for lyme. Still, her doctors would not consider lyme. I believe she is in a nursing home now. And, she was only 51 when she got the so-called Alzheimers that a panel of doctors at Johns Hopkins Hospital eventually diagnosed her with.
So, you can stick with that crowd and never be treated for your illness. (Their philosophy doesn't allow them to treat you.)
Or, you can cross over to the other side of the controversy and go to a lyme doctor. The lyme doctor will instantly see that you were initially undertreated so your lyme has resurfaced.
See this quote:
"GENERAL PRINCIPLES In general, you can think of LB as having three categories: acute, early disseminated, and chronic. The sooner treatment is begun after the start of the infection, the higher the success rate. However, since it is easiest to cure early disease, this category of LB must be taken VERY seriously. Undertreated infections will inevitably resurface, usually as chronic Lyme, with its tremendous problems of morbidity and difficulty with diagnosis and treatment and high cost in every sense of the word." (page 3 of Burrascano)
See where he says that undertreated infections will INEVITABLY resurface. That's what happened to you. But ID docs refuse to believe that this could be possible! Instead, they say you have "post lyme disease syndrome" meaning that your body is still reacting to the lyme you had so long ago!!
This is what will happen when you get to a good lyme doctor: You will be tested for all tick-borne diseases. Lyme doctors know that ticks don't give a person just lyme disease.
Everyone in Maryland with lyme disease, for example, also has babesiosis and bartonella. These 3 are the most common infections. Lyme docs call them "the big 3." I had all 3.
The lyme doctor will send you blood to a tick specialty lab--Igenex in California. Look at their website. They specialize in testing for these lyme coinfections.
Burrascano says that the patient cannot get well until every infection they have is treated. So, a lyme doctor will treat you for every infection he believes you have. Since the tests are not reliable, he will look at test results but will also consider your symptoms and other indicators of coinfections.
The lyme doctor will treat you based on symptoms. You will be treated until you are symptom free and then 2 more months of treatment.
See the symptom list on pages 9-10 and make a list of all that you have. The most important thing you can do to prepare to see a lyme doc is to make the most complete list of symptoms that you can.
You will be treated with more than one antibiotic, and the dosages will be higher than what an ID doctor will give. See Burrascano's dosages starting on page 18.
You will be taken SERIOUSLY. Each of your symptoms will be taken seriously. I know the kind of treatment the non-lyme doctors give people with lyme. I was humiliated and treated as a mental case for 10 LONG years before a doctor took me seriously and I was finally diagnosed with lyme disease. I suffered for 10 years with undiagnosed lyme disease!
When you see a real lyme doctor, it is like dying and going to heaven. You will be helped. Your treatment will be complex. It will include supplements. (See the list Burrascano says lyme patients need--discussion starts on page 27.)
You owe it to yourself to read this document to see how good lyme doctors treat this complex disease.
If you don't get good treatment, you will just get worse and worse. Lyme doesn't go away on its own. Instead, you will just add symptom after symptom. Your life can become a living hell.
I know the lyme fatigue is horrible, but many more worse things can be in store. For example, I eventually got trigeminal neuralgia. And, you can lose all of your mental capacity. This disease is nothing to ignore.
A Boston TV station did a show on the lyme disease controversy a few years ago. Here is the Boston Chronicle video on YouTube:
I suggest you watch this video a few times. It explains the lyme disease controversy and the role the IDSA plays in making it difficult for a person to get good lyme treatment.
I am glad you found LymeNet. We will help you here all we can.
Get a lot of input from others about which lyme doctor to see. There are a lot in NJ that don't have good reputations. You can post in "Seeking a Doctor" to find out who is the best.
Posts: 9931 | From Maryland | Registered: Dec 2007
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Thanks TF. I didn't know that about the western blots continuing to stay positive after effective treatment. It confuses me, but I think I may be confusing antibodies with antigens.
Always learning new things in this journey Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lymeboy
Unregistered
posted
Coldpunch, there are NO good LLMD's in NJ. The 3 that you speak of are all ok, but not really good. They just seem to be more willing to treat Chronic Lyme than the average doc. NJ is a wasteland of bad docs. NY is not much better. The entire Northeast is pretty bad, actually. I think everyone around here is frightened of losing their business, as a few docs up here have been squashed by the govt. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get undertreated and continue to relapse.
I know there are plenty of people who love their lesser known LLMDs but in my experience most of them are in over their heads, or out and out Charlatans.
You are going to spend a lot of money no matter what, so you might as well spend it in the right place. Insurance is not going to be your friend here.
If you want to PM me, I can give you some insight on what I think could help you best.
I was seeing a good doc, out of state, but ran out of money. Luckily, this doc got me far enough along that I could pursue alternative methods on the cheap and on my own. So far so good. I am not in remission, but my life is now manageable and I can explore other options.
PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors.
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lymeboy
Unregistered
posted
I forgot to add that there are some LLMD's in NY and NJ that you should absolutely not go to under any circumstances. I cannot get into detail here, but I'd be happy to divulge through PM. DO NOT attend any more docs until you've done some research.
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Good advice, lymeboy!
Posts: 9931 | From Maryland | Registered: Dec 2007
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I concur with the good advice above. I wish I didn't try the herbal route first, but went straight to the various antibiotics.
I had been to a dozens of specialists and several well known university hospitals, but no one knew how to properly treat me.
I also went to three LLMD's, as well. It paid to shop around as I have my life back today from disability with Lyme Disease.
I suggest reading Dr. H's book WHY CAN'T I GET BETTER? Things do get complicated when Lyme Disease does not get treated properly.
Posts: 1954 | From Illinois | Registered: Aug 2007
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