lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Thanks. Side effects is what I've been feeling without the drug.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I wanted yo wait a few days in between to see if I had side effects, but he wants plaquenil and avalox. Do u know if I should do them together. Doing bicillin with it when they come in.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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GretaM
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Member # 40917
posted
Haha! LIP! I think the same when I read the side effects of new meds.
That's just regular everyday stuff! Haha.
Personally, now when I start new combos, I start one at a time, wait 3-4 days then add in the second. Wait a week doing just the two together then add in 3rd. Do the three for another week then add in 4th etc.
I didn't do this with mepron zith-and I am angry with myself because one of them is giving me the runs but can't figure out which one now. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
He told me to start with avalox and I find septra first. 😒
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
Don't take Bactrim / Septra. I took it and got side effects of blood spots all over my body. They are small, but won't go away and I also suspect this antibiotic may have caused the neurological paresthesias that I developed after starting the antibiotics.
I still get paresthesias of cold water, burning and stinging 4 years later after stopping these antibiotics.
I don't think I have had lyme disease.
I got refered to a doctor who gave me the igenX test from a massage therapist. I then took that test and went to lymedisease.org and got a referral to a "lyme disease doctor" and tried treatment thinking better to be safe and see if I get better. This was wrong because you do have risks in using these antibiotics. You really have to have an infection.
My "lyme disease doctor" gave me 4 antibiotics all at once. Bactrim Rifampin, Minocyclin and Azithromycin. These is not normal.
The longer you take something like Bactrim the more likely you are to get side effects. If you take it for 7 days you may be ok, but take it for 2,3 weeks or more and you start to get blood spots, vasculitis or who knows what neurological condition.
The pharmacist won't be familiar with these side effects so much because most Dr's aren't prescribing the antibiotics for weeks or more.
If you have muscle pain, then try trigger point therapy. Learn about it from all the Books like Save Yourself, Julstro, Trael and Simons, Claire Davies workbook etc.
You can have lots of trigger points and not have Lyme disease.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Applewine-I think what you said was very important.
"You have to be sick with the bacteria to take the antibiotics"
I completely agree.
Those of us with lyme, and or bartonella, and or babesia are swimming with the bacteria.
If you'd read LIP's previous posts you would see how sick she is.
I am so sorry you feel you were misdiagnosed (again, I'm assuming you were misdiagnosed previous also, like I was). It sucks.
I agree, trigger point injections help me also
I get them every two weeks. Help with the pain. How often do you get yours? Is it prolocaine, plain lidocaine, or saline? I think mine is prolocaine, and also he rubs ketamine cream on my muscles. I tried plain lidocaine the first few times, but the prolocaine seems to last longer.
Helps a ton with muscle spasms and pain.
Doesn't help neuro lyme thought, which is what LIP, and I have.
Just wanted to state that in case others new to this whole lyme business think trigger point injections solve the lyme bacteria issue, or help with neuro lyme stuff.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
[QUOTE]Originally posted by applewine: [QB] Don't take Bactrim / Septra. I took it and got side effects of blood spots all over my body. They are small, but won't go away and I also suspect this antibiotic may have caused the neurological paresthesias that I developed after starting the antibiotics.
I still get paresthesias of cold water, burning and stinging 4 years later after stopping these antibiotics.
I don't think I have had lyme disease.
I got refered to a doctor who gave me the igenX test from a massage therapist. I then took that test and went to lymedisease.org and got a referral to a "lyme disease doctor" and tried treatment thinking better to be safe and see if I get better. This was wrong because you do have risks in using these antibiotics. You really have to have an infection.
My "lyme disease doctor" gave me 4 antibiotics all at once. Bactrim Rifampin, Minocyclin and Azithromycin. These is not normal.
The longer you take something like Bactrim the more likely you are to get side effects. If you take it for 7 days you may be ok, but take it for 2,3 weeks or more and you start to get blood spots, vasculitis or who knows what neurological condition.
The pharmacist won't be familiar with these side effects so much because most Dr's aren't prescribing the antibiotics for weeks or more.
If you have muscle pain, then try trigger point therapy. Learn about it from all the Books like Save Yourself, Julstro, Trael and Simons, Claire Davies workbook etc.
You can have lots of trigger points and not have Lyme disease.
................................................
My response to you: you bring up a couple important points, first being differential diagnosis, as in there are many causes for symptoms, including trigger point symptoms.
Second, that all of us respond differently to treatments. That's why I always say start slowly, to see how you do with a treatment.
Having said all that, septra is used for infections, as folks have noted above.
And sometimes trigger points are due to Lyme. Like in my case. I had a myofascial trigger point expert work on me for 4 years before she gave up. I found out 4 years later I had Lyme.
It wasn't until I started oral clindamycin abx around the clock that all my trigger point pain went to zero in one week's time!
Just curious - did you have any positive or indicated bands on the IGeneX test you took?
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